Request for anyone with Nilou c2r1

I’m wondering what Nefer’s team score is against the dummy with c2 Nilou.

My team is c0r1 Nefer, c0r0 Lauma/Columbina, and I hope to get Nilou c2 from the con event once it resets but I’m just wondering if it is an upgrade from Nahida or Sucrose c6.

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u/nilghias — 9 days ago
▲ 2 r/POTS

#POTSproblems

It’s hot enough that I only need to sleep with a light quilt, but my feet are still frozen so I have to use a hot water bottle to heat them up 🥲

Feel free to add your ##POTSproblems below

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u/nilghias — 16 days ago

What’s your ratio for homemade solutions?

I was doing 1 part salt, 1 part baking soda, 2 parts xylitol. But I’m seeing now maybe I should be doing 3 parts salt to 1 part baking soda? And I’m not sure about the xylitol

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u/nilghias — 18 days ago

How long is a buttercream cake safe for at room temp?

I tried searching for a clear answer but there’s so many different responses.

Birthday was Sunday, cake was picked up Saturday, not sure if it was baked Friday or Saturday. So it’s 5-6 days old.

The room it was kept in was about 22 Celsius, and I had a slice earlier. Is it still safe? Or should I be worried (I am a bit of a paranoid person when I comes to food 🥲)

It has no fresh cream, just buttercream filling and icing on top.

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u/nilghias — 19 days ago

Nasal irrigation machine

I just got one off Amazon, the ones that are basically electric flossers with different heads.

I’m a bit lightheaded after using it, and my ear hurts a small bit but I’ve had problems with that ear for a long time now.

Are they even worth it? Or do I just need to get used to it?

I got it cause my infection this time was so bad, usually a few days of sinus rinses help but I’m on day 7 now and I still have the worst tasting post nasal drip. I can’t handle antibiotics so I just rinse.

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u/nilghias — 19 days ago

Kimchi power or lanto health?

For anyone who has tried either of these, or both, have they helped?

I’m quite desperate atm. Twice a day rinses aren’t helping anymore and I’m disabled and housebound so can’t make the trip to the ENT

u/nilghias — 21 days ago
▲ 1 r/POTS

Woke up on my birthday with the worst air hunger

I haven’t slept well in a few days. I also have my period and a sinus infection (and ME/CFS so that all triggered a flare.)

All I wanted last night was to get a good nights sleep. Instead I wake up early today and feel like I just can’t catch my breath. It took me a while to realise I was air hunger because I’ve only experienced it twice before in my 11 years of having POTS.

Trying to fall back asleep was horrible because I felt like I had to manually breath to take deep enough breathes and every time I’d relax I wasn’t getting enough air. I managed to get a small bit more sleep but now I’m awake again, exhausted, and constantly taking huge breaths because I just don’t feel like I’m breathing deep enough.

I thought maybe my sinus infection had gotten to my lungs but my watch says my blood oxygen levels are fine so I have no reason to be anxious, it’s just a horrible feeling.

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u/nilghias — 23 days ago

Controller buttons opposite of what’s in the settings?

I’m playing on a legion go s with steam os, and using my 8bitdo controller with the switch layout.

When I connect the controller it works for me, but the buttons that show up on screen are the opposite of what I need to press.

For example it tells me to press the bottom button to continue, but I press A on my controller which is the right button and it works.

I saw in the settings I could change from Xbox layout to Nintendo, which I did, but then the buttons work the opposite way! It will show that the right button is to interact, but when I press it registers like I pressed B instead.

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u/nilghias — 25 days ago

Buying from Amazon Spain?

Anyone bought electronics from Amazon Spain? Any issues?

I’m looking at the legion go 2. The reason I wanna get it from Amazon (Spain being the only one with it in stock) is the easy returns if I don’t like it. Any other shop and I’m stuck with it. It works out at €50 more than from Harvey Norman including shipping, but I think it’s better for the return guarantee.

I know the plug will be difference but I have adapters and other chargers so that should be alright.

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u/nilghias — 25 days ago

Have to rinse twice a day and still have recurring infections.

What else can I do?

I’m disabled and struggle to leave the house. I was told I have an issue with my concha bullosa after an MRI but I was never able to make a follow visit and the doctor won’t do phone calls so I have no idea where to go.

Surgery is out of the question, I’m physically unable for it. Antibiotics also make me sick to my stomach. I feel like I’m just all out of luck.

Usually rinsing my nose twice a day works but if I miss even one I’ll wake up within a day or two with the worse tasting post nasal drip. I never get green or yellow mucous, but it’s like there’s something rotten mixed in with my post nasal drip and I’ll feel more unwell than I usually do. This has been going on for two years now. At first it was an infection every few months and I’d take antibiotics and it would be fine. But then my overall health declined and I started to be unable to stomach antibiotics.

Is there any kind of sprays or something else I can add to my rinses? I’ve tried xylitol and baby shampoo but doesn’t seem to make much of a difference. Would a rinse machine work better over just using a bottle?

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u/nilghias — 25 days ago

Is there anywhere to buy a legion go new?

I feel like I’ve looked everywhere online and I can only find the go s or the go 2, but not the original go.

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u/nilghias — 27 days ago

Which is the better option?

I was initially going to buy the windows OS version as it was cheaper, and install steam OS on it if I decide I don’t like windows. But then I realised the windows version is 512gb but the steam one is 1tb which explains the price difference.

Realistically I’m not going to be playing heavy games, it’ll be most indie ones so I don’t need a lot of space or crazy power.

But is there one that’s easier to install a dual boot in? Or one that’s easier to install the other OS on? I would like to try both at some stage, steam and windows, to see which I like best.

I appreciate any advice :) I’ve got two hours to make a decision so I can have it here on time for my birthday

u/nilghias — 29 days ago

Worth it? Or wait for a refurbished steam deck to come in?

The Amazon one goes to €486 at checkout after customs and minus a voucher I have.

Im not fussy about screens so I would’ve been happy with an LCD steam deck but I doubt they’ll have them back in stock anymore on the valve refurbished section.

Or any other suggestions for other consoles? Honestly all I’d be playing are indie games, and some pokemon fan games, so I don’t need anything powerful. I have no interest in getting a pc, I want something portable.

u/nilghias — 29 days ago

Advise on what to get?

I’m looking to get a windows based handheld console. Most of the games I want to play are steam based, but there are a couple of games not on steam I want to play too.

The main thing is that I have a chronic illness and my forearms can’t really hold up a console. The switch 2 has been great for me because I always put it up on the kickstand and use the joy cons detached. This is the same reason I became interested in the legion go as I can basically do the same thing.

I could ofc just buy some sort of stand for the rog ally (I assume there’s something out there) and attach a controller. So basically the same thing but just a little more effort.

For anyone who has either console, or also has similar issues, could you offer any advice on which one you’d recommend? Or even another windows based option. I would say I’m good with technically, in case that’s a factor in a suggestion.

Thanks in advance!

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u/nilghias — 1 month ago

Attack or speed boots with MBlade?

I might be trying for e2 Blade, if that has any factor in the decision. Also I have Tribbie on eagle (evil I know) so I should have more attacks in general because of that.

u/nilghias — 1 month ago