u/penguin37

For years, multiple providers suggested I might have EDS. I have a primary immunodeficiency and have had multiple orthopedic surgeries. An orthopedist referred me to a rheumatologist who said I didn't really meet the Beighton scale criteria and said I would have to see a geneticist to really determine it. I recently saw another orthpedic specialist who referred me to this big-deal neurologist in my area who is apparently highly specialized in EDS/POTS, etc. They do a pretty thorough screening to determine if they think you're candidate to be seen. I went through the screening and they are saying I'm an appropriate candidate.

This physician doesn't accept insurance and it will be a very expensive endeavor to see him. My question is - is it worth it to get diagnosed? How did your life change after getting a diagnosis? My understanding of EDS is that it's not really treatable so I'm not sure what I would gain other than having suspicions validated. I am prone to dislocations and have pretty well figured out what I can, cannot and should not do with my body to maintain joint integrity. I'm active, exercise and stay as healthy as I can. I'm just not sure if this is worthwhile avenue to pursue especially given the cost.

Does anyone have one they like? This is for a kitty who is insanely sweet but has a tightly wound nervous system. Every little sound has him scrambling and since he's usually on me, I often get scratched. My vet gave him a supplement that has helped a bit and she suggested I consult a behaviorist.

I'm assuming it has to do with moisture in my perimenopausal skin but I always moisturize before applying makeup and it only seems to appear after I've applied liquid foundation. It usually happens on my cheeks. More importantly, how do I fix it without starting over? The world is lucky I bothered to put makeup on at all... Surely I can't be expected to redo it. 😆

I just finished about ten months of myofunctional therapy (which is essentially physical therapy for the tongue) and had my tongue tie released on Thursday. I did this because my understanding is that tongue ties can really contribute to neck and shoulder tension (my neck is where I feel migraines the most). It's early still but it seems like the neck and shoulders feel more relaxed. Fingers crossed that this helps.

I'm in need of recommendations for a new stylist. I prefer salon suites or small shops if possible. Thank you!

I set a boundary with my mom last fall and she pretty much stopped talking to me. If I text her, she will text back with very short, curt responses.

Yesterday was hard. I felt sad to be where we are. At the same time, I'm tired of transactional relationships and she's always keeping score. I'm in the process of undoing a lot of programming from my childhood and the more I uncover and process, the angrier I feel.

Yesterday felt lonely and this morning in my spin class, everybody was talking about their mother's day with their moms and kids and it just hurt all over again.

Thanks for listening. 💜