Advice on caring for an early Alzheimer’s father in a strained family
Hi all. I’m hoping some folks could share their experiences/guidance for how they navigated an Alzheimer’s diagnosis amidst difficult family dynamics.
My dad is 69, and after many years of symptoms, he was finally diagnosed with Alzheimer’s about 2 years ago. He has started receiving infusion treatment for the plaques, but I know that that only slows progression.
He and my mom live together, but their marriage has never been good. Long story short, he has always had some behavioral issues and was not a loving partner to my mom. They have essentially been roommates for the last 20 years. Similarly, these personality issues have also challenged his relationships with me and my siblings.
He is at a stage where he has virtually no short-term memory: he can remember who his loved ones are and things from long ago, but he won’t remember a discussion from 30 minutes prior. He has to be reminded/encouraged to shower every day, and he fights us about taking his BP and cholesterol medications (I think we should stop arguing and let him make that choice). He thinks he should be able to keep driving, but the doctors have said no: we are going to need to hide the keys as he went for a drive when left alone the other day and doesn’t remember going.
Aside from all that stress, the hardest part for my mom as his main caregiver has been how he follows her around the house, constantly talking and/or criticizing what she does. It’s like she never has peace within her own home.
Me and my siblings try to help as much as we can, but we are varying distances away and have our own lives to tend to. My main concern is protecting my mom’s own health and well-being, and I’m not sure how to do that. Does anyone have any experience with a situation like this? I’m looking into day programs in the county, but most of them are geared toward people in more advanced stages (and I’d have to convince my dad to go). It feels so hopeless right now.