Lung transplant support

Hello all,

I am figuring out how to get a lung transplant eval with my dad’s insurance, he has LA Care plus (we reside in LA), but before I move forward.. I would like to get any pre-op / post-op details from anyone who has been through a double lung transplant.

My dad just turned 70 and he was diagnosed in 2023, he had been fine until about a year ago.. he is now on oxygen 24/7 at 2L. He started getting really tired and started losing weight a few months ago and was hospitalized in February resulting him being placed on oxygen 24/7 - I had no idea that once his oxygen would start dropping he would lose weight because he would start burning more calories as his body started working harder to breathe than normal.

Can anyone please guide or provide what post-op looks like after a lung transplant.. I love love my dad with all my heart, and I don’t want him to suffer more than he has too. I don’t want to go in this blind and hurt him because I didn’t know or asked.

Also, if anyone out there decided not to go through with the lung transplant eval - can you please share how the disease progresses, can you share you experience and how the stages develop or look like especially at the end stages.

Asking these difficult things with empathy, compassion and all my respect. Thank you. ❤️

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u/sushinemeer — 2 days ago

Where is Nelly and Willie?

I watched all 8 episodes to feel it all out it was OKAY but why did they have to change/edit out some of the characters? Where are the siblings we loved and hated: Willie and Nelly?

I don’t know how I feel about this.. anyone else?

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u/sushinemeer — 22 days ago

Benefits discontinued (la county)

Hello all,

I help my elder father with all his medical and legal documentation. I made sure to submit his food stamp application weeks in advance to avoid any issues for him but his application has yet been reviewed and his due date has now passed. We logged onto the portal and now his benefits are discontinued for the month. I am going to assist him and call in tomorrow - will this affect this months benefits for him? He gets his deposit every second of the month meaning tomorrow but the portal says benefits have been discontinued.

Can anyone guide me? Please and thank you.

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u/sushinemeer — 2 months ago
▲ 1 r/IHSS

New hours after re-assessment (LA county)

Hello everyone,

There was a change in my fathers hours (as of today July 1st according to documentation we received in the mail) and I checked the portal this morning.. And it still reflects hours from last fiscal year.

Do I wait for the holiday to pass (4th of July) or do I have to call and have then look into it?

Any direction is appreciated. Thank you!

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u/sushinemeer — 2 months ago
▲ 3 r/pulmonaryfibrosis+1 crossposts

Lung transplant in Los Angeles, CA

A anyone in the process or have gone through a lung transplant in Los Angeles? I am researching hospitals for an evaluation for my father - and the two local hospital with great reviews are UCLA and Cedars Sinai but what has me a little worried is UCLA is high lighted for the one year patient survival but shorter wait times. Mmmm that unsettles me. Has anyone gone through evaluations or an actual transplant at either hospital and can share their experience or knowledge or either departments?

Please and thank you!

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u/sushinemeer — 2 months ago
▲ 15 r/IHSS

40 hrs of sick leave

Hello all,

I have been a live-in provider since February of last year 2025. I believe I am entitled to these court hours, an I correct? Can anyone help me figure this out?

Also, has anyone else received this email? And, has anyone submitted their claim? If so; please let us know what’s easier.. the paper claim form or submitting it online.

Please and thank you!

u/sushinemeer — 2 months ago
▲ 2 r/IHSS

We had our first re-assessment

Hello everyone,

I am my father’s live-in provider. We had our first re-assessment in early may, we just got our updated hours documentation in the mail. Our new hours per our paperwork take affect as of July. We got a few more hours as my dad’s needs have increased starting him being discharged from a hospitalization in February. We provided the social worker with discharge paperwork at the re-assessment.

Does anyone know if by any chance we get any back pay from the hospitalization discharge date or the date of the re-assessment in May to July? Or our new hours start as of July regardless of his needs increasing as of February?

Please and thank you.

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u/sushinemeer — 2 months ago
▲ 3 r/IHSS

IHSS in LA country

Hello; I feel like I was rushed/pushed into joining the membership, I have never been part of a union and I have a lot on my plate. I don’t have time to partake in the extras they require/suggest.

I feel uncomfortable getting ongoing calls and emails now. I don’t want to be rude every time someone calls and to avoid all that I just want out.

Can someone guide me on how I can cancel my membership?

Please and thank you.

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u/sushinemeer — 2 months ago

Has anyone tried Neuromuscular Electrical Stimulation?

This keeps popping up on my social media.

I googled: Google Neuromuscular Electrical Stimulation vs TENS unit

So, I am curious to know if anyone here has bought this and if it has helped.

u/sushinemeer — 3 months ago

Has anyone tried this?

This came up as an ad on my IG and i decided to come on here and see if anyone has bought this.

And if so, can you share your experience with it? Does it work?

I’ve had a laminectomy and a discectomy at L5-S1, Idk what to do anymore to help decrease my pain.

u/sushinemeer — 3 months ago

Looking for psoas/myofascial/cupping

Hello all,
I am looking for a location / person who does house calls... I suffer from sciatica post two laminectomy surgeries. My body is still on *fight and flight* from all the pain and just life.. I am having a hard time locating someone who does psoas release massages / myofascial release and cupping.
I am location in Los Angeles near Koreatown and
USC area. Looking for suggestions in Los Angeles. I greatly appreciated any responses and suggestions.

reddit.com
u/sushinemeer — 3 months ago

Seeking detox suggestions

Hello all,

After two laminectomies and I am still in pain, I have decided to try a new approach..

I am going to detox my body and regulate my nervous system (by grounding, belly breathing and sleeping a little more before starting any physical therapy again. I am also taking ginger, tumeric, pineapple and lime shots in the morning to help decrease inflammation..

There are a lot of (liver) detox’s online… Have any of you guys done a detox that works? can anyone share a recipe?

Also; totally off topic. Has anyone tried the vitamin b droplets? Let me add a picture of the product… if you have please let me know if you e found them helpful.

u/sushinemeer — 3 months ago

I was denied in 2023

Hello everyone, I am seeking some guidance. I was denied for not responding to my renewal. I was in excruciating pain from sciatica and ended up having surgery, my mom was diagnosed with cancer, she passed away, I had another surgery… long story short life has been lifing and I totally forgot about my food stamps. I am now taking care of my dad working as a live-in IHSS provider. I live in Los Angeles County.

Can I still appeal or do something to get benefits now? Thank you in advance for any advice or guidance.

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u/sushinemeer — 3 months ago
▲ 2 r/ConsumerAdvice+1 crossposts

Need help getting a refund from an online merchant (Los Angeles)

I brought a portable oxygen concentrator online, but before I ordered it, I emailed them a screenshot of the concentrator I was considering to make sure it met all of my father’s needs. My father requires continuous oxygen flow NOT pulse. They confirmed their oxygen concentrator met my father's needs. They had two options for that concentrator: the first with 1 extra battery and the second with 2 extra batteries.

After confirming I was ordering the correct item - I ordered the concentrator with two extra batteries - they also confirmed I would be receiving 3 batteries in total.

I received a Pulse concentrator with 1 not 2 extra batteries. They insisted I received the correct one after multiple emails and sending them a picture - they apologized for sending me the wrong item and offered to send me the “correct one”. I agreed because that's what I originally wanted. I also asked for a return label and they ignored me - I had to pay out of pocket to send them their item back. After multiple ignored emails I emailed them letting them know I was no longer interested in a replacement and wanted a full refund including my shipping refund. They have been slow to respond to all my emails and now their email is full and my emails will not go through.

I filed a complaint with the BBB in the hope that they can help.

The concentrator was 839.00 + shipping 65.40 = 904.40

Can anyone offer any type of advice/suggestions on how I can go about this? Can I sue them? We live in location: Los Angeles, CA

The company doesn’t have a physical address on their website nor a phone number - they only have an email. I did include the address I mailed the item back to on my BBB complaint.

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u/sushinemeer — 3 months ago

Please help me / suggestions welcomed

Hello all, can you guys take a look at my MRI and give me some advice/suggestions on what I can do/ try?

I've had two surgeries for two very large herniated discs at L5-S1 and my doctor is talking about a fusion already because of my DDD and my disc (bulge) looking the way it looks.

I don't want a fusion. I changed my mattress. I drink a lot of water. I started using a posture brace during the day. I walk up to 8k steps a day. I take NATURELO Calcium Supplement (bone strength). I am also taking juicy joint drops to help my disc hydrate and to help with inflammation. I am also taking ZEN Nutrients Everyday Back Vitamins. Oh and I use ice packs on my back once a day.

I am still on restrictions - no bending, twisting or lifting. And, I can't drive because it's too painful.
I will be going back to pool physical therapy once I am taking off restrictions.

I tried acupuncture momentarily but that same night I went to acupuncture I felt drop foot at night and my doctor told me to stop.

I don't what else to do or try. I want to try PRP injections but I am currently waiting for someone to let me now how it worked for them. Is there anything else I can do in the meantime? Has anyone done cupping or Myofascial Release massages (to help with flood flow)? Could/Would spinal decompression help me?

Please and thank you! 🙏🏽

u/sushinemeer — 3 months ago

Please help me / suggestions welcome

Hello all, can you guys take a look at my MRI and give me some advice/suggestions on what I can do/try?

I’ve had two surgeries for two very large herniated discs at L5-S1 and my doctor is taking about a fusion already because of my DDD and my disc (bulge) looking the way it looks.

I don’t want a fusion. I changed my mattress. I drink a lot of water. I started using a posture brace during the day. I walk up to 8k steps a day. I take NATURELO Calcium Supplement (bone strength). I am also taking juicy joint drops to help my disc hydrate and to help with inflammation. I am also taking ZEN Nutrients Everyday Back Vitamins. Oh and I use ice packs on my back once a day.

I am still on restrictions - no bending, twisting or lifting. And, I can’t drive because it’s too painful.

I will be going back to pool physical therapy once I am taking off restrictions.

I tried acupuncture momentarily but that same night I went to acupuncture I felt drop foot at night and my doctor told me to stop.

I don’t what else to do or try. I want to try PRP injections but I am currently waiting for someone to let me now how it worked for them. Is there anything else I can do in the meantime? Has anyone done cupping or Myofascial Release massages (to help with flood flow)? Could/Would spinal decompression help me?

Please and thank you!

u/sushinemeer — 3 months ago

Hello all,

I had had two laminectomy surgeries for lumbar disc hernias. I also suffer from now worsening disc degeneration.

I am looking into PRP injections but there isn’t enough research to help me decide if I should get PRP injections.

Has anyone tried them for herniated disc, bulge discs or disc degenerative disease?

Or have you tried any other treatments that I can look into?

I have done spinal decompression but that scares me by back is really sensitive right now. I have had complications post both surgeries.

Any and all suggestions are appreciated in advance.

Thank you. ♥️

reddit.com
u/sushinemeer — 4 months ago

Hello,

My father a low income is a 69 yr old and our living situation is no longer working for us. He requires assistance (I am his IHSS in-home provider). Can someone guide me on how I can assist him in applying to section 8 (provide me an estimate - wait time) and if there’s a number or a department for senior citizens?

Please and thank you. 🙏🏽

reddit.com
u/sushinemeer — 4 months ago