Cf vent post, sorry.
I think I honestly just need someone to hear me out here.
I constantly feel like even though medicine has advanced this far and people with cf are doing better and living longer, it's not going to be the same with me. I've been on alfytrek for a while, it's definitely helping me out, I mean I don't even need to do my nebulizers anymore. I'm just constantly worried that I'm not going to be healthy for much longer, and my plans in life are going to be cut short. I guess I just can't feel that what I'm doing is worth it anymore.
My CF doctor kind of made me feel like the problems I do have are just in my head, it's such a pain to get referrals to the doctors I urgently need. When it comes to psych stuff, my doctor and I can't figure out what's wrong with me. I've been on 3 different mood medications in the last year and a half, and not a single one has helped at all. Im located in a state that supposedly has some of the best care for people with CF and yet I feel so neglected sometimes. Therapy doesn't work for me, it doesn't make me feel better, I've tried it.
I'm frequently paranoid that anything good going on in my life is fully temporary and is going to away soon.
I don't know what to do anymore. I don't know if maybe I just need a community to talk to or something but I clearly need something if that makes sense.
I'm sorry that this is formatted terribly, I'm incredibly tired and I just needed to write this all down so I wouldn't have another panic attack. ❤️