Would anyone be willing to share their experience as a caregiver?
Hi everyone,
I'm a neuroscience student and freelance writer, and I'm currently reporting a feature for Business Insider about a part of dementia caregiving that often goes unspoken: how adult children gradually become caretakers not just of a parent's daily needs, but of their sense of reality.
I'm interested in speaking with adults who have cared for a parent with dementia or significant memory loss. Some experiences I'm hoping to learn more about include:
- Repeating conversations or answering the same questions many times a day
- Deciding when to correct a false memory and when to let it stand
- Taking over finances, driving decisions, medications, or appointments
- Balancing caregiving with work, school, parenting, or other responsibilities
- The emotional experience of watching a parent forget important memories or aspects of your relationship
- Feeling as though you've become an interpreter between your parent and the world around them
The article will explore both the emotional and practical realities of caregiving, including the growing burden placed on families as long-term care becomes increasingly expensive and difficult to access.
Interviews would be really short and conducted by phone, Zoom, or email, depending on your preference. Business Insider is also interested in including family photos if participants are comfortable sharing them, though that's not required for an initial conversation.
If you're willing to speak or would like more information, please comment below or send me a direct message. You can also reach me at jpgendin@bu.edu.