u/zonemiax

Hi,(19F & UK) over the last year or two, I have started to get intense headaches on my magnet site that go into my eye, neck and mouth. My eye has a strange pressure feeling like someone is squeezing it, and my left side of my mouth, more specifically my cheek (implant side) has a weak sensation. It happens a couple of times a day with varying intensity; it could be that it's a very slight headache and I can ignore it or it's just so intense that I have to rip off the processor and physically hold my hand over the magnet site.

I am 18 years post-cochlear implantation, and I have never had any symptoms that were processor-related until now.

I, at the very first point of call, went to my audiologist, and he seemed concerned and wrote it down. He checked my implant site and my electrodes, he said all is fine and that since I have an average of 15 hours on air daily, he thinks it'll be down to overuse.

I switched down magnet sizes as I've been on a size 3 all my life, and nothing has changed except for my processor falling off all the time, so nothing has come out of that.

I'm not disputing that it may be down to overuse, but I have always had a range of 13-15 hours with the processor, and symptoms have only cropped up recently, and I've tried everything, even putting a little plaster on the processor, thinking it was just rubbing onto the site.

I obviously have tried to cut down on my hours, but I find it gives me that usual headache in the morning if I don't wear the processor for a while, and everything feels overstimulating, so 13-15 hours is the most comfortable for me.

I have not changed anything with my mapping, and I'm scoring very highly on hearing tests; I'm just at my wits end.

Has anyone else experienced the same? Is there anything else I can do holistically, or is this a thing I need to go to the GP with? I just want rid of these headaches.

Edit: I forgot to mention that I have a nucleus 7.

I’m disabled through being deafened as a result of being severely premature and given ototoxic drugs.

All my life, I have been babied, infantilised and having no independence and now at 19 it’s ruining my life.
I feel trapped in my own home and i feel like my life is wasting away.
My parents didn’t even want to let me go to the gym because it would mean that I was driving at night, they didn’t even let me take the train to the city centre (15 mins away) until I had to for University, hell they didn’t even want me to go to Uni. They didn’t want me to get a car or drive on the motorway.

During my first year, I went into student accommodation (against everyone in my family’s wishes) and honestly it was the best thing i have ever done in my life, I experienced SO much that most people probably have already done, I went on nights out, I went clubbing, I went on midnight walks with my friends and I didn’t tell my parents what I did and it was so freeing.
But even though i was in uni, they still didn’t leave me alone. I was in my lecture and my mum BLEW UP my phone with texts and phone calls and i couldn’t answer right away (in the middle of my lecture!!!) so I waited until the break, my mum and my sisters were panicking when i rang them back! Turns out all my mum wanted was to know if i’d liked a coat she found in the shop!

Is there any need for that?!
I give my sister my Life360 location as a compromise instead of my parents having it and apparently my mum was ringing my sister up begging her for my location and thankfully my sister said No and that I was fine.

Now, i’m at home for the summer and i feel like i’m being suffocated and it upsets me greatly when i see my friends doing amazing things that I can’t do, they do solo-trips, marathons or just cool shit and i bring it up to my family the possibility of me doing something like that and the message i receive back from them is “It’s not you that i don’t trust, it’s other people”

I’m going to turn 20 soon and my biggest fear is that when I have grandkids of my own, I’m going to have nothing to tell them about my life. I’m so scared of having regrets. It makes me cry thinking about it because I want to do more, I want to live a fulfilling life and I’m not going to have time like I do as a young person and what kills me is that my parents grew up in the ‘50s and ‘60s having that independence and they tell me about it ALL of the time.

I don’t know if i’m being ungrateful but I wish I wasn’t disabled, I wish i was normal.

hi! I have a cochlear implant on my left side since I was 2 years old (implanted 2008) and my right ear (moderate-severe) unaided. (UK based with NHS services & take in consideration that I do not know my current audiologist as I have moved from adolescent to adult services and i’m not due to meet them until next year)

I got my first hearing aid when I was 15 and I wore it for 6 months, I gave up it because i struggled with bullying and people slamming books down next to me which led to me developing severe ringing in my ears whenever i wore the hearing aid

My implant centre has said to me that if and when i feel ready to try again, I am always welcome to and now at 19, i am struggling a lot more with only having one-sided aid due to the difference in my environment and not being in a structured school setting so having an hearing aid is back on the cards for me.

The only thing stopping me now is not knowing how to get used to the hearing aid properly and what to do to make my experience easier.
My problem is that I found that the cochlear implant overpowered the hearing aid and I was still heavily relying on the implant and everything just felt so imbalanced. If i wear the hearing aid on its own, I could make out more sounds but i still can’t make out speech, the only thing that’s clear enough for me is strong letter sounds (“b” “g” etc) and I don’t know how to get my brain to balance my ears out more
Also please note my cochlear implant is from Cochlear and the hearing aid I had was Phonak (most likely to get same brand again)

hello! 19F (UK) and i was first prescribed Montelukas in 2019 after a life-threatening asthma attack. We went into lockdown immediately after and my mental health plummeted and I had a mental health crisis that put me in A&E.
I still struggle with it to this day (stuck in the waiting lists to see anyone because i’ve been kicked out and then put back on over and over) and ive only ever had 1 telephone consultation with a woman that asked why i needed the mental health services.

Now fast forward to a couple of months ago, I arraigned an emergency appointment with my asthma nurse at my GP as my flare ups were getting worse and worse and a severe attack was imminent. She was appalled at the medication regime I was on (Ventolin, Montelukas and hay fever medication) and switched me over to Luforbec.

I then ran out of Montelukas and it took weeks for the pharmacy to give me it and i immediately noticed that my mood changed and while i do still struggle, it felt like I was somewhat functioning for the first time in years.

Now, i’m really concerned that I developed and have mental health problems that will follow me for the rest of my life as I have a long family history of it with both parents struggling with personality disorders and addictions and my sisters struggling with depression and anxiety.
I didn’t know that Montelukas had this effect as I was only a child when first prescribed.
Has anyone else had the same symptoms from it and how did you get over it

I passed in February and i’ve got my black box with Admiral and so far my score has been great but I’m so paranoid about making any mistakes due to it affecting my score and i’m constantly thinking about it until i get my next score.
I love driving but this is genuinely making it suck because it feels like i’ve got no wiggle room at all to make mistakes.
I feel like it’s such a shitty thing to put on new drivers/young people just because we can’t afford regular insurance without it.

hellooo, i have atopic eczema and i use dermol 500 as a soap substitute as i believe im allergic to regular soap (i come up in blotchy rashes) and i use clobetasol 0.05% cream to control flares along with an oat moisturiser daily

i’m usually able to control it decently well but with this heatwave it’s like my skin is losing moisture faster than my creams can keep up. i try to lather on every 30min to an hour but to no avail

It’s really frustrating as i want to wear shorts and t-shirts but i feel embarrassed with the flare up everywhere :/

I’ve always had distressing vivid dreams since I was a kid, to the point where I was diagnosed with a sleep disorder (the diagnosis is just that: a sleep disorder)

My dreams always feel so real because they mix with my memories but add either a fantastical element to it or something disturbing and i remember waking up and genuinely being confused if it was a memory or a dream

It feels like the last 6 years i have been hit with things happening to me in my life over and over which are quite upsetting and these vivid dreams has started to turn into nightmares that have become extremely graphic in nature and i have developed a weird fear of falling asleep so I stay up for as long as humanly possible.

Just wondering if anyone else has experienced this and how to get over it because i miss having a nice sleep with nice if not confusing dreams