r/CholinergicUrticaria

Has anyone tried Dr. Rajesh Shah / Life Force Homeopathy for urticaria or an autoimmune condition?
The treatment is quite expensive, so I’d like to know if people who have actually taken it found it effective and worth the cost.
Please share your honest experience—how long you took it, whether it helped, and roughly how much you spent. Even if it didn’t work, I’d appreciate hearing about it.

Hi guys,

How did you get rid of this thing? I am taking 4 anti h1 a day (let’s not say anything about mucosis dryness) and 300 mg Xolair every four weeks and I am still very much annoyed by it.

It used to be angiœdema mainly, with the occasional red plaques on autoinflammatory experiences.

But now that I am taking Xolair (and also, arguably, now that decades of political "leaders" have -successfully- changed France into Sahara) I have more issues with my UC than before.

It’s hell on earth. My allergologist will be pleased, as she was frowning an eye about my UC hurting and not really itching. Now the scenerey is complete, itching it is (too) and I think I have every distinct urticaria manifestation you can think of.

So. How did you get rid of this? Black magic rituals? What did it take for you to get your life back?

I am thinking expatriation, Scotland (I can’t go far up North as I have also huge health problems when it gets cold...).

Thanks for any help and advice.

Is the frequent release of histamine and activation of mast cells when we start to form hives damaging our bodies over time? I’d like to know the long term implications of this condition. M

Is there any way to make the rash less visible? Even if it still burns or itches, I just want to reduce it visually. Is there anything I can do to prevent it?

Hi,
Just two years ago, I developed this itching pruritis on my body parts. I thought it to be an allergic reaction. Main trigger was sweating, exercising, increased heart beat, Nightmares, spicy food. It is not necessarily a Cholinergic Symptoms but it related to it. I went to this back alley ripperdoc skin specialist, he used to give me intramuscular shot on my deltoid, depomedrol 60ml corticosteroid and it became my weekly thing to get a shot because there was no other way for me to be functional. I fucked up my immune system with the immunosuppressants. But the doctor diagnosis was Eczema. I went to another doctor we did food allergic panel blood test and it came out negative on all food as well. So no proper diagnosis, I started taking prednisolone 5mg almost everyday and it worked like a charm until my body started resisted to it so it no longer worked on me. I started studying the symptoms and possible causes, like how mast cells are shaped and how they react, Immunoglobulin E, FC epsilon receptor I and other things. Then got one of the strongest immunosuppressant shot in the hospital to stabilize my mast cells so they don't granulate and release histamine to sweating easily. Btw at this point my only trigger was sweating. Sweating = itching.
Then I started getting weekly IgE serum test every 2 week. So there was igE threshold, only at specific level it elevates then it causes me allergic reaction. And some food was increasing the IgE levels, So I avoided food that were increasing my igE levels, like soyabean, eggs among other things and igE serum started dropping, and I am fully functional, I can sweat, exercise, get as many nightmares I can, have a bear once a month, I smoke cigarette here and then, no allergies. Only setback is I have to stick to same meals everyday and no outside food and igE serum blood test every 14 days. I am also seeing a really good immunologist and I will be doing skin prick test too. I mean I think i maybe gotten lucky to find a trigger and a cure. And about food, there are influencer like Bryan Johnson who also eat same meals everyday, they strictly stick to their diet so I am not the only one here, I may possible be more healthier avoiding all the unhealthy restaurant and fast food.

I had problems with dry skin on my hands from birth.

Later, I developed CU (cholinergic urticaria). However, while writing this, I noticed that my CU also seems to appear on my hands and is more pronounced there — especially because my hands have been quite dry over the past few days, whereas they weren’t dry before.

Could these two things be connected? And could treating the dry skin significantly reduce the symptoms, at least visually?

I usually get dry hands only once or twice a year. My urticaria also occurs when my hands aren’t dry, but perhaps the dryness could be a sign of some immune response or something similar. I’m not sure.

Got my first episode of CU last night after a hot shower. The problem is I can’t break a sweat because I have an autoimmune disease that causes anhidrosis (inability to sweat). I overheat extremely easily, more than the average person and I assume this plays into it. So what is another natural way I can prevent these episodes?

i was sitting for 5 hours on a bus ride. when i got off i started walking. after 5 minutes it became too painful to walk. i look stupid as i try to itch my thighs every 2 steps whilst walking. i took a taxi home instead. i am 24. i shouldn’t be like this. i hate this so much. nobody knows the struggle.

and im not even sure if i have CU. i dont get hives, it just burns and itches so bad that it hurts when i walk. i had it for years now. i take antihistamines normally and they definitely help. i forgot to take them today and it was terrible. everywhere from my ankles to my wrists, itch and hurt.

im tired of this. its not fair

Has anyone here with cholinergic urticaria ever vaped or currently vapes?

I know how absolutely brutal this condition can be. It completely took over my life for years, and I genuinely wouldn’t wish it on anyone.

I’d pretty much accepted I’d have it forever. Then I quit vaping, and within a few weeks my symptoms completely disappeared. I’ve now been symptom-free ever since.

I’m not saying vaping is the cause of everyone’s CU, but the timing was so dramatic for me that I can’t ignore it.

I’m really curious—how many people here are current or former vapers? Has anyone else noticed any link?

I recently development cholorgenic urticaria with a troubled ability to sweat, I've been dealing with it for maybe around 7-8 months now, been trying different medicines and cutting foods, what I haven't tried is full scale intense sweat therapy because of the stinging pain, but I've seen people saying that their urticaria has not let up after even 14 years, seeing that number is genuinely making me deppresed, I'd be lying if I hadn't thought about leaving the Minecraft server because of this dumb condition, we are all in this together.

I’m lucky that my hives don’t hurt or itch at all anymore but I can’t sweat on my arms and legs - even after running for 45 minutes! How are you doing sweat therapy if you can’t work up a sweat to break through the hives?

Answer only if you tried out Rhapsido please!

You can comment if you want to be more specific.

I thought this would be a nice poll to reflect the success of that drug in this community :)

View Poll

In my case, I get episodes lasting 3-5 minutes triggered by exertion, anxiety, or sudden heat — with flushing, intense itching, and a pins-and-needles sensation, but no visible raised bumps. Just want to know if this still fits the cholinergic urticaria picture or if I should be looking elsewhere

so I had CU like 2 years go and I have been managing it via sauna, exercise and diet. when i got it, especially very bad. I would not sweat and I would overheat.

somethings made it better , some worse. the things that made it better was taking out tomato out of my diet. IDK why but it really messed me up the day of or next few days when i broke out.

i don’t think this is universal cause i’ve been on this sub a lot.. it seems there are different types of causes of CU, and so we get mixed results from solutions as something that helps me might not help you.

now.. i did a carnivore and keto diet. started strict carnivore.. just beef, salt. then added eggs. now i’m doing keto.. add some spices etc.

my sweating is back like I used to! and my CU is only active in a few spots and it seems to be getting less and less even there..

i also quit booze during this time, maybe that’s related as well. or maybe just all coincidence and I’m getting lucky and CU is leaving me.

before it’s all good and gravy, i want to point out that i now sweat like i used to. I used to excessively sweat. like switch shirt at the gym mid work out. Perhaps I have something wrong with me at the get go and CU was a progression of it. Some thyroid stuff. Idk. Just glad to sweat and worry less about over heating anymore.

Congrats cholinergic urticaria, you just overtake my tinnitus to be my #1 most hated part of myself today.

Do you really thought that coming out every fucking day for more than 10 years would really make me fall in love with you ?

Fuck you