r/PMDDSharing

Hey yall, just trying to see if anyone has been in a similar boat? I am 30yo- Started birth control for suspected PMDD/endometriosis/panic disorder that I believe is from hormones fluncuations+sleep disturbances (I have a 3yo and 1yo)

History: I have been on bc before from 14-21yrs old. I threw up every morning from it.
I stopped breastfeeding my second son and a month later developed and panic disorder and severe derealization, which I suspect is from hormones.
Trialed a few SSRIs to no avail.

So now- a year later- I start Nexstellis bc (natural estrogen/drospirenone) and could only tolerate the first pack. A week into the second pack I quit due to visual snow/dizziness/off feeling, which I suspect estrogen intolerance. I also had really terrible mood swings, almost left my baby daddy and was crying alot. I never cry lol.

Anyways, gave it about 5 days off bc and then started Slynd. Same drospirenone (1mg more), but no estrogen. Hopeful again because its like the Nexstellis, so maybe the bad side effects will go away and the good ones will stay (no severe bloat, painful ovulation, etc).
Im 5 days in and I am SO BLOATED! I dont care that I am peeing alot (used to it), but holy crap I was not expecting this bloat!! I also am more anxious/verge of panic attack.
Idk whether or not I should continue, its still quite early, but I dont know if I can stand this TBH. I HATE feeling bloated and being soooo full after like two bites of food. Please let me know if anyone has similar experiences? Does it get better????

Every month I get severe panic attacks!!! I also have been dx with Dysautonomia and possible MCAS and PMDD/PME. And I am on zero meds.

I finally tried the Allegra and Pepcid. Pepcid was not a go for me as it caused me horrible migraines! And I am already a migraine sufferer so that was a no.

But the ALLEGRA 60mg once in the morning has really helped me!!! First thing that has actually helped me and gave me relief. I’m on day 1 of my period and I began taking it 3 days before where I would feel severe sadness and lots of crying and panic and omg it’s truly working! I will continue talking it until my period is over or at least 3 days in bc usually that’s when I have severe symptoms and I will come back to update. 🙏💕

First time sharing here 👋🏻. I just joined the group a few days ago and I want to say how much I appreciate everyone’s advice and honesty. I was told I have PMDD about 3 years ago (now 39), but didn’t understand really what that meant until recently. I could go on and on about my story, but right now I just want to share that I finally realized (today) why basically half of the month (for years… probably since I was about 13), I couldn’t find the energy, motivation, want, determination to get ready for the day. Meaning shower, blow dry hair, put on makeup, not work from my bed. It was PMDD the whole time.
I will be starting to bleed today and today I woke up feeling like a human again. My brain turned on and I could plan out in my head what I needed to do today. I showered, washed and dried my hair, and put on a bit of natural looking makeup…I don’t have any plans or anywhere to go…but this feels…like me. I can look in the mirror and say this is you and you are happy with yourself. But just yesterday and the 9 days before that, I hated myself, had suicidal thoughts, extreme fatigue in my body that felt like all the cells in my body just ran a marathon.
At this point in my life I can finally understand why it is so hard for me to have consistency in anything I did. Two weeks of the month I am Human and the other two weeks I am a monster with no will to do anything. And the only reason I feel like I can post something today is because I have the energy to think and write. I am grateful to be back to human today. Gotta take the wins when we can, right?

heads up to anyone with PMDD, depression, anxiety, OCD symptoms:

MAGNESIUM GLYCINATE/BIGLYCINATE has the opposite effect in some people, causing anxiety, panic, rumination, existential dread, and other unpleasant symptoms.

There’s something about how the brain processes the glycine that effects glutamate, which causes these symptoms.

For those of us with PMDD, this can mimic and intensify luteal symptoms- essentially making everything worse.

This paradoxical effect is apparently more common in Neurodivergent folks.

I see these supplements being highly recommended on PMDD subs and forums, and i hope this reaches those that need it.

The amount of rage I feel is not normal nor healthy. No matter what I do, it won’t go away. I don’t know what to do with it. I’m pretty sure it’s gonna cause me a heart attack one day. It’s THAT intense. Does anyone relate?
I tried gym, music, journaling, walking, talking, staying quiet, sleeping, medication, movies, breathing… you name it. Nothing.
It has nowhere to go but inward. Like you won’t tell how mas I am by looking at me, but my blood would be boilinggg inside. And I feel its effects diseasing my body.
This can’t last forever. It’s Me vs. PMDD.
If anyone has a different method to deal with the rage, please share.

Do you feel more rage when the full moon is on its way? I think I do😵‍💫😵‍💫