u/pandabears3

My primary is willing to sign my disability paper work to protect my job until I get the help I need.

Anything in particular your doctors wrote that got you approved?

Can this be causing my low blood pressure?

There’s also this pattern I’ve noticed that I get flares of low blood pressure as soon as my period is over? And the worst part is that I really feel it. I feel super tired and sleepy but I can’t sleep because of chest pain and feeling like I keep waking up gasping for air or like I’m gna die bc I wake up and feel like I wasn’t breathing while sleeping. Idk how to really explain it but it’s so scary! And my low bp usually gets to 70s/50s 80s/60s and my normal is usually 90s/60s or 100/70s .

I have dysautonomia and now I wonder if my actual issue is the low ferritin. Just found out about it yesterday.

I also deal with hormonal migraines and recently migraines with aura which scare me so much!

And a lot of bruising on my legs.

Hello everyone. For a year now I have experienced lots of bruising on my legs and calves. Also have been feeling very bad! Fatigued, joint pain, hair falling out like crazy, brittle nails, heart palpitations, feeling faint by standing up.

Can the bruising be caused from low ferritin even if my iron is normal?

I’m seeing my PCP tomorrow for hematology referral. But just have so many bad experiences with doctors gaslighting me that I don’t trust them and don’t want to be brushed off again .

Hello everyone. For a year now I have experienced lots of bruising on my legs and calves. Also have been feeling very bad! Fatigued, joint pain, hair falling out like crazy, brittle nails, heart palpitations, feeling faint by standing up.

Can the bruising be caused from low ferritin even if my iron is normal?

I’m seeing my PCP tomorrow for hematology referral. But just have so many bad experiences with doctors gaslighting me that I don’t trust them and don’t want to be brushed off again . I was brushed off for blood sugar issues “reactive hypoglycemia” just bc my A1C is perfect, I’m thin, I’m young, and “look healthy”. They still don’t know how to help me but at least I know how to manage it better. I also have dysautonomia.

Hello everyone. For a year now I have experienced lots of bruising on my legs and calves. Also have been feeling very bad! Fatigued, joint pain, hair falling out like crazy, brittle nails, heart palpitations, feeling faint by standing up.

Can the bruising be caused from low ferritin even if my iron is normal?

I’m seeing my PCP tomorrow for hematology referral. But just have so many bad experiences with doctors gaslighting me that I don’t trust them and don’t want to be brushed off again . I was brushed off for blood sugar issues “reactive hypoglycemia” just bc my A1C is perfect, I’m thin, I’m young, and “look healthy”. They still don’t know how to help me but at least I know how to manage it better. I also have dysautonomia.

Does anybody else get random bruising on legs as well?

How do you guys cope on that time of the month? I feel like these days are the worst for me as a person that also deals with anxiety and suspect PMDD.

Anything you guys do differently on these days. I feel like this is when all my symptoms amplify!

Hi everyone.

I was bed ridden all February, March, and some of April.

Electrophysiologist did not want to give me meds like ivabradine, betas. Etc bc he said he didn’t want to “mess anything up in my body” and thought my body could heal on its own.

I was unable to shower without my heart rate reaching 180s and not even laying flat would help that the ambulance was coming for me every other day. I couldn’t even nap in the day bc if I did and I tried sit up my HR again would just sky rocket to 160s and above and felt like I was dying. Standing up would cause to me almost faint if I didn’t lay flat immediately. I was unable to do anything but lay flat and the longer I laid flat the worse and worse I got. I was unable to do ANYTHING!! It was severe!!!!! But I wanted to let you guys know that on month 4 and my body is doing so much better!!!!!

I think the main thing that helped me which I understand not a lot can do was drop all my responsibilities. I quit my job. I asked for help with my child. Like drop offs and pick ups. I SLOWED my life down. I felt like I have always been on the go 24/7 and always always under immense stress. Stress really is a huge POTS trigger on top of viral illnesses for me .

The next thing I did was a lot of calming hypnosis from YouTube. To calm my nervous system. A lot of deep breathing exercises. A lot of praying and bible study.

Then focused on clean eating! Mainly KETO diet.

Drank a lot of tea! Chamomile tea during episodes or flares where my heart rate was spiking. Especially mornings since they are the worst!

Then I started doing my 1 mile walks. I have flared a couple times during the walks but the best thing I had to do was remain calm. To try to train my brain that we are okay.

On top of all that lots and lots of electrolytes. I was wearing compression socks at first daily. Now I only wear them or just put them in my purse if I will be going to the mall for longer walks etc.

I am able to shower sitting down now. My heart rate still gets elevated but the highest I’ve seen is 130 and the lowest 110.

I just wanted to share some positivity with you guys. I’ve had some days where I feel great and some not so great days but I understand that is normal.

Hi everyone. What are the things for you that made you realize you were neurodivergent? Were you always this way or it began in adulthood?

I know being neurodivergent is very common with POTS. Trying to see something……

Anybody else with this issue?

Hi everyone! Does anybody else suffer with what I think is acid reflux after meals. That then triggers a POTS episode?

Electrolytes also giving me horrible acid reflux. And brand you guys recommend?

Hi anybody else deal with this? My whole chest is tender to touch. Been like this for 7 months now. It intensifies by using my arms or just doing daily tasks. I’m unable to drive. The chest pain causes my heart rate to spike as well on top of the POTS.

Tried to go on a walk and I was feeling the soreness feeling on my chest and went anyway and of course halfway I felt my chest muscles or idk what it is tense up and I got an adrenaline dump and high heart rate

I have already consulted primary and specialists and have done tests and they can’t figure out why.

How do you guys cope with the flares after meals?

I hate it so bad!!! Currently having an episode and it causes me so much anxiety especially when I’m alone like right now.

I am currently laying down in an upright position. HR went from 130s to 90s thank god but how long do you guys usually have to do this for after a meal to then be able to continue your day? Because after this I get the strong wave of sleepiness and fatigue. 😴