r/fpies

My baby is almost 11 months old and has a whole laundry list of trigger foods (I think we’re up to 9). I’ve been reading about how an imbalance in the gut is linked to FPIES and have been curious if my son’s gut issue could have been caused bc he was born via cesarean delivery and he didn’t get all the good bacteria from his mamma.

So I want to run a Reddit test — drop a comment if your baby has FPIES and was also born via c-section. I’m super curious.

Maybe a silly question but if your baby had FPIES reaction to sweet potato is it 100% surety they will be allergic to regular potatoes also. Only once her dietitionist suggest to try white potato but I am scared. As I feel her dietitionsit is just reading the high and low FPIES list from internet.

We believe baby girl has FPIES to oats. Her older five year old brother has confirmed FPIES with triggers of egg and cashews.

For parents whose baby has FPIES to a grain, if they reacted to another grain (rice, quinoa, wheat, etc) did they react the first time they had it?

Just trying to sort out what foods we can say are "clear" though we know it can take multiple exposures before a reaction occurs. Just wondering since they might be linked would she react to the first exposure of the new grain.

Is there anyone on here who’s baby was diagnosed with a milk protein/dairy allergy, and you reintroduced dairy when they got a bit older as trial? If so how old were they? Did they grow out of it? Did they have symptoms when you gave it to them?

I gave my baby a sweet potato fry with ranch dressing on it a couple of hours ago. My brain somehow forgot that ranch has eggs in it. So far no vomiting. I have my fingers crossed that she won’t react, but this is our first possible exposure to any of her trigger foods since she was diagnosed in March.

For those of you who have had exposures at dinner time, does your baby wake in the night to vomit? We have only had past exposures during the day, and she would usually start to vomit after her nap.

TLDR: LO is refusing solids after FPIES reaction. How long did it take for your LO to get back to normal after an FPIES reaction? When should I be concerned that LO isn’t taking any solids? Is there anything you felt helped LO get back into solids?

We started giving LO solids early, at the advice of LO’s pediatrician. LO was at higher risk for allergies due to family history and eczema. LO never really loved solids but they ate.

At about 5.5 months old, LO had their first FPIES reaction to egg. LO repeatedly threw up ~4 hours after consuming eggs and couldn’t keep anything else down (including my breast milk). LO was very lethargic when throwing up. We brought LO to the hospital. They were checked out and eventually seemed back to normal. At the time, we were unsure if this was a reaction to egg or just a virus. The ER doctor (fairly) couldn’t diagnose FPIES in any event. We ultimately convinced ourselves it was likely a virus (LO had had eggs before with no reaction, etc etc).

After this reaction, LO started refusing food (a bit). LO would still eat a little, but mostly only using BLW. LO would gnaw and suck on food they could hold.

We saw LO’s allergist at about 7 months old. We advised LO’s allergist of the incident. She couldn’t say whether or not it was FPIES with certainty. I advised the allergist of LO’s new disinterest in eating and she said she sees this in her patients. She conducted a prick test and LO reacted to egg. The allergist recommended we start the egg ladder and see how it goes.

The day after seeing the allergist, I gave LO a baked muffin containing egg (that I made, and contained all foods safe for LO). LO had the same reaction 4-5 hours later - throwing up and very lethargic. Due to this reaction, we were able to confirm it was FPIES at the allergist advised us avoid egg completely.

Since LO’s second reaction, they are effectively refusing food altogether. No purées. No spoon feeding. No BLW.

LO is now almost 8 months old and EBF. I offer solid food twice a day. I have tried different types of food. Different temperatures. Different textures. I have tried feeding LO in different locations - different rooms, chairs (high chair vs bumbo vs activity center), even houses. I am trying to keep it super low pressure (so that neither of us breakdown… again), but LO is basically not consuming anything. I usually leave a variety of foods that LO can grab on the table in front of them. I try to keep LO in a good mood while we’re sitting together (by signing, talking, reading). LO might put something to their mouth, but they really don’t get any substance. Even sucking on the food has mostly stopped. If I try to force anything, LO loses it (and there isn’t much coming back from it).

I have read that, for most babies, it will just click one day. When did that day come for you? How long did it take after your LO’s FPIES reaction until they liked food again? Did you do anything in particular to help?

LO’s pediatrician initially advised that LO should be having two iron packed meals a day but we are only no where near that. Should I be concerned? We have another appointment with the allergist in a few weeks and will readdress these concerns then. I’m mostly looking for your personal anecdotes about when and how things got better.

My daughter is 6.5 months old, breastfed.

We gave her peanuts once (last Sunday) - nothing. The next day after we gave it to her again - she had redness around her mouth which disappeared alone. We still took her to the allergist that did the allergy test where you stab them with the allergen and nothing showed up. (I’m sorry I don’t know how it’s called). Around 20 hours later she vommited, but was ok.

Then we stopped for a few days and she also got Rota virus vaccine on Wednesday.

Today we gave her peanuts again and this time nothing happened, so we also gave her an egg and a tomato which she ate a lot of times before.

About 3-4 hours after she ate the peanuts (and after she nursed) she threw up. She was fine, we were a bit worried. Then about 2.5 hours later she nursed again and threw up again, a lot. And then about 20 minutes later she threw up again… now she’s sleeping but she looked fine.

Do you think it’s FPIES? Of course I will go to the doctor but I wanted to hear from people with experience if it sounds like it at all.

She’s not a baby that spits/throws up at all, so that is why it’s kind of alarming to us. She also didn’t vomit since the vaccine, only today after the peanuts.

Thanks!

What was the age of your child’s first reaction?