r/pep

▲ 2 r/pep

Side effects after taking Biktarvy outside of the 72h window (TW)

On the first of August I was celebrating my bday and got drugged and gang-assaulted.
After that I was so down I couldnt even move, my parents came to pick me up to go to the hospital etc together. She explained when it happened (Saturday) and they gave us an appointment for tuesday, when we went they gave us a seperate appt for the medication aspect for wednesday. When we arrived there they told us the 72hour limit to take pep is over (because they made us wait another day) and it wont be effective anymore. My mom asked her pharmacist friend what he’d do and he said if it was his daughter he’d still buy it, so she did and paid out of pocket (Biktarvy).
Since I’ve been taking it everything is going downhill. I got sick (respiratory system), my skin is awful, I keep getting small pimple like bumps everywhere, I have no energy or appetite, but the worst is my teeth/ mouth area.
Suddenly my teeth hurt and my gums are receding, red and inflamed, it hurts so bad I cant even use my water flosser. I feel like I’m watching my teeth deteriorate in front of my eyes.
It was 3 men who had their way with me for hours and I couldnt do anything, I had wounds in my private area, so I was really counting on this preventing a possible infection. But since the window passed and I’m getting bad sideeffects I’m thinking of stopping the treatment, at the same time all of my symptoms could be bc of a possible hiv infection so maybe continuing to take it could help in some way? I’m so lost and confused so any tips or personal opinions are appreciated. Thank you for reading.

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u/SpiritualFrancesca — 2 days ago
▲ 3 r/pep

Test today, feeling nervous

Welp I finished pep yesterday and today’s the big day! I tested on the 21st day and was negative. I am super nervous

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u/Top-Custard-2302 — 2 days ago
▲ 2 r/pep

prep after pep

when should i start prep after pep? currently on pep right now (started around 62 hour mark) and i’m seeing different things online about when i can start prep. at mistr, they’re saying two weeks but i’ve seen many people say to start right after. i’m on 200 mg discovy and 50 mg tivicay for pep if that helps.

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u/thesedouble239 — 2 days ago
▲ 2 r/pep

Exposición de alto riesgo e inicié PEP

AYUDA!
Hola, vengo aquí porque la verdad tengo miedo, la ansiedad me está ganando y necesito ayuda, comentarios, testimonios que me puedan tranquilizar mientras espero.

Hace 18 días inicié el tratamiento de profilaxis post exposición (PEP), tuve intimidad con un chico, la exposición fue sexo anal receptivo , claramente no utilizamos preservativo, y era de madrugada, en cuanto amaneció fuimos a hacer pruebas, yo me había hecho una hace poco y no había tenido más relaciones por lo cual sabía que estaba bien así que él se hizo la prueba y salió reactivo a VIH, la verdad entre en pánico, sentí que había perdido todo pero me acordé del PEP y fui de inmediato a mi clínica, aproximadamente entre las 14 y 16 h después de la exposición recibí el tratamiento de pep que en mi caso es emtrifovir (y tivicay (dolutegravir) que es un régimen de tres fármacos, lo he estado consumiendo todos los días a la misma hora con mucho cuidado y me estoy cuidando de cualquier cosa, nada de alcohol.

Según lo que he leído lo inicié en un tiempo favorable que está dentro de las primeras 24h, y que las probabilidad de que falle son extremadamente bajas pero aún así tengo demasiado miedo.

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u/No_Bite_4790 — 3 days ago
▲ 1 r/pep

Help

So I did it with a hooker, Blowjob and Anal, Im the insertive one, she said she's clean but im anxious, its been 16 hours since the encounter, should I get PEP?

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u/BigSituation9980 — 3 days ago
▲ 1 r/pep

On pep

Had unprotected sex with a woman from Fiji with unkown hiv status and I don’t know them at all I’m in New Zealand and Fiji has an hiv epidemic right now so I started to fear the worst I’ve started pep 55 hours and 20 minutes after possible exposure I was deemed very low risk and hiv has a very low presence in my country but I would rather be safe than sorry I know there are other more common stis that I should be more worried about but I have just an ultra fear of contracting HIV I’m feeling super happy to be on PEP now I would of gotten it a full 30 hours earlier but my whole town has no PEP on hand somehow not even my hospital unless they were lying and wanted me to get infected to I had to wait for some pep to be ordered in from a pharmac supplier in nz I’m under the 72 hour window but would of rather had pep before 36-48 hours but feeling hopeful I didn’t qualify for the 3 drug regime and it was going to cost 1800 and I didn’t have that so I got given the two drug regime but when I plug the names into chat gpt it thinks I’ve got the 3 drug one but regardless feeling a lot better than I was last night

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u/tulcz — 3 days ago
▲ 1 r/pep

Is this low risk and worth pep

A friend (Male) had received an unprotected BJ from a female of unknown status, that has admitted to having threesomes In the past and licking women’s private parts. Not sure if someone related to an industry.

engaged in condom vaginal intercourse. they then took the condom off, received unprotected BJ. then the girl put the same condom back on the penis and continued vaginal sex. Then took condom off and ejaculated into the persons mouth. Not sure if from a distance or if tongue touched while it happened.

is this considered low risk? is it worth the potential severe side effects of PEP?

Edit: Main concern is taking condom off and putting it back on Then continuing with vaginal intercourse.

Edit 2: On Day 4 of PEP, if it is stopped. Is there still a chance for long term effects. They ask as started receiving itchiness and red spots on body, tingling sensations all over, and aching on side of neck.

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u/Thetruthdetector107 — 4 days ago
▲ 1 r/pep

Sous PEP après 47h : Symptomes HIV ou effet secondaire traitement pep

Bonjour,

Suite à un rapport à risque anal non protégé (je ne pensai pas que cela m'arriverait un jour mais avec la dépression) avec une personne à risque (refus de faire le test et pratique à risque assez régulière), j'ai commencé le Biktarvy mais seulement 47h après et je regrette vraiment d'avoir attendu autant de temps.

Je stresse beaucoup et après 12 jours de traitement j'ai des effets secondaires dont un qui revient souvent comme des suées importantes qui viennent et disparaissent avec le front très chaud mais peu ou pas de fièvre. J'ai de temps en temps des nausées aussi et des douleurs musculaires.

Est-ce-que cela pourrait être les symptômes de primo infection du HIV . Est ce qu 'il y a un interet de faire un test 14 jours après le rapport à risque sachant que j'en ai fait un tout de suite après qui est négatif.

Est-ce-que d'autre personne ont ressenti une fatigue assez forte avec ce traitement ?

Merci d'avance et désolé de vous partager mon stress.

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u/mediatheques — 4 days ago
▲ 1 r/pep

Hiv pep

2 days back I had sex with sexworker without protection and I was so stressed and found about pep hiv , I went to hospital and took 1 st dose within 24 hours and also I tested the sex worker with hiv and 2 and found she is negative,so should I continue to take pep and am i safe ?

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u/Odd-Mortgage6862 — 4 days ago
▲ 1 r/pep

condom with vaseline

i used vaseline on a latex condom... the condom didnt break .. it was all inatct... there was no leakage no breakage as checked by me post act... will you treat it as intact condom or a compromised one as people say vaseline breaks down latex

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u/Content_Layer_419 — 4 days ago
▲ 1 r/pep

Missed 5 days of Biktarvy during PEP and I'm Panicking. Please help with advice.

Hi all - I really could use some advice. I had one episode of unprotected vaginal sex. No condom, and he did not ejaculate inside me. I had tested negative after being with him about a year ago, but I don't know his current status.

I started Biktarvy for PEP on August 4, about 67 hours after the exposure. I took 4 pills (Aug 4–7), then accidentally missed 7 consecutive days (Aug 8–14).

I realized what happened and took my next pill today, August 15.

I'm really nervous and honestly panicking because I know PEP is supposed to be taken every day for 28 days.

  • Did I seriously compromise the PEP by missing 7 days this early on?
  • Should I just continue taking one pill every day from here, or does missing 5 consecutive days mean I need to do something different/restart or extend the course?

The clinic is closed until Monday, so I'm trying to figure out what I should do in the meantime.

I'm really scared that I messed this up and I might have gotten HIV.

Has anyone experienced a similar interruption with PEP and what did you do? Please help and thank you in advance!

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u/WishboneAccording643 — 5 days ago
▲ 3 r/pep

Am i going to be okay?

Hi. I just wanted to ask since this has been bothering me ever since. I just finished my pep in which i took 30 doses since the doctor also said it’s okay to complete the 30 pills. I got 4th gen test a day after pep completion which is 31 days post exposure and it was nonreactive. I started having muscle or bone pain at day 20 while on pep i noticed my soles ache including ny gastrocnemius muscles for both feet when walking. My heels for both sides also ache especially when touching it. The next few days the bones on my palms on right hand including my wrists also ache especially on right arm. The pain on palms and wrists come and goes and only lasts for 40 seconds to minute. And then other random parts of my body aches but only lasts for seconds and then goes away. Is this a sign of pep failure? Am i seroconverting? I dont have fever it’s just that muscle and joint pain. Hoping for a response please help me.

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u/Fancy_Program820 — 5 days ago
▲ 1 r/pep

PEP FOLLOW UP TESTING CONFUSION

I had a completed my pep on 24 june

First test done on 16 july negative

Then a 4th gen lab test on 5 august ( 6 weeks post pep) negative

Now I am confuse for final testing dates

guidelines says to 3 months confirmatory test

But what 3 months?

3 months from exposure

Or

3 months from pep complition

Please somebody explain

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u/Flaky-Mind1906 — 7 days ago
▲ 1 r/pep

Scared in Thailand

Hi everyone,

I had an encounter at a massage parlor that turned into vaginal intercourse, after we had finished i had realized the condom had broke.

I washed my self with some soap that night, and i immediately the next morning went and got prescribed the PEP Acriptega and took my first dose today around 12hrs after the intercourse.

I fly home to Australia in 14 days and will get my blood tested and my first round of STD checks.

Any advice would be much appreciated as I feel like this is going to take over my mind for the next 28days or atleast the next 14 till I get home.

Thank you in advance

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u/MaoriStomper — 6 days ago
▲ 0 r/pep

Potential pep failure.

Hello

I’ve started my pep dosage on the 23rd of July. I took my first pill within 24 hours. Besides the first two days where I experienced vivid dreams and tiredness I’ve experienced 0 side effects. I have a slightly sore throat but I experience that every time I give oral sex.

Yesterday out of nowhere I got hit extremely hard. My throat feels extremely rough and it’s hard to breath. I have a fever and I can feel it throughout my entire body. I have a splitting headache that makes it hard to move around. I feel so much weakness and fatigue throughout my body. It could be herpes or syphilis but I don’t see or feel any blisters or sores anywhere on my body.

I was given Biktarvy and I’ve taken it around 9pm-11pm everyday. I took it once around 8pm on Monday because I was tired and didn’t want to wake up but I didn’t end up feeling horrible until later on in the night. So it’s been around 3 weeks since my exposure and I’m suddenly experiencing so much harsh effects on my body. I am close to being bedridden. From what I’ve seen, Biktarvy has 0 reported cases of seroconversion if taken correctly as pep, and Biktarvy is far stronger than pep, so either the medicine wasn’t strong enough for whatever reason, or I caught an extremely rare strain.

I know that side effects aren’t rare for taking Biktarvy but to go from almost symptomless to feeling extremely ill in under a few hours is incredibly weird.

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u/Emotional_Variety772 — 8 days ago
▲ 2 r/pep

Any females on PEP or have taken PEP (Truvada + Isentress 36 hours)

I 39 F, had an incident that required me to start PEP (Truvada + Isentress). No pharmacies had Isentress so I couldn’t start until 36-38 hours after when I could obtain it.

Without getting into too many details, I’ll say it was unprotected vaginal for <30 seconds with no ejaculation that I’m aware of. He tried to insert anally but stopped. He stated his status is negative and that he gets tested regularly, but I don’t know him. He actually asked me about whether I had any STDs before I had the chance to ask him. He seemed nice and caring. He said at first he gets tested for work, but then later said he has a girlfriend and is in an open relationship and that’s why he gets tested. I don’t know what to think.

I’ve read the studies about timing with taking PEP and I still don’t have a clear understanding of whether or not taking it when I did will work or if it will be as effective.

What are my chances here?

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u/Hopeful_Research6817 — 8 days ago
▲ 3 r/pep

Is PCR qualitative testing mandatory for pep users? My doctor is asking me to do that

I am not sure if my insurance covers this yet.

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u/Jumpy_Ad_5435 — 10 days ago
▲ 1 r/pep

How effective is pep?

I am seeing information that it is effective < 72 hours after exposure. So how effective is it if taken <24 hr and let's say 48hr. At less than 24hrs is it 100% effective? Etc

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u/PersimmonOk433 — 8 days ago
▲ 1 r/pep

Biktarvy side effect after 2 week of pep completion

Hi team

It's been 2 weeks since I completed the pep course but I still have left side abdominal pain with diarrhea

this is not getting normal with time.

What should I do?

has it created any long term injury to the kidney or liver?

i am really worried now.

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u/Glum_Reindeer_8382 — 7 days ago
▲ 4 r/pep

28 days of Biktarvy completed, negative on day 29 — what’s next?

Hi everyone in the PEP community,

I understand how terrifying it can be to constantly wonder whether you have HIV or not. Today, August 10, I finally finished my PEP treatment after completing 28 days of Biktarvy. I’m from Mexico, and it was a little difficult for me to get access to the medication.

Today was day 29, and I took a rapid HIV test. The test came back negative for HIV-1 and HIV-2 antibodies. I understand that this is not a conclusive or confirmatory test, but I have a few questions:

Is it a good sign that this test came back negative?

How can I manage the anxiety during this waiting period until the 90-day follow-up?

I’ll probably share more details and updates about my experience and, hopefully, good test results as time goes on. For now, I wanted to give you a summary of my situation.

PEP

-I started PEP about 54 hours after the exposure. I wanted to get an HIV test beforehand to make sure I wasn’t already positive, and unfortunately, the exposure happened over the weekend when the place where PEP was available was closed.

-My medication was Biktarvy, and I completed all 28 days.

I did not miss a single dose. The longest I was late taking a pill was about 20 minutes.

My partner / exposure

-My partner later tested positive, with a viral load of around 500 copies/mL. I didn’t know he was HIV-positive until he was tested when I sought PEP.

-During anal sex, the condom broke. I was the insertive partner. There was no blood and no ejaculation. I’m not sure exactly how long the condom had been broken, but I estimate it may have been around 3–4 minutes.

-Once we realized the condom had broken, I took a shower and urinated.

Symptoms I experienced (some of which I still have)

-Gas / flatulence

-Acid reflux

-Very vivid dreams, and even some mild hallucination-like experiences (such as seeing shadows)

-Anxiety

-Fatigue

-Depression

I really hope everyone here is doing well. If you have gone through something similar, I would really appreciate hearing your experiences and maybe getting a little reassurance or hope. I’ve seen so many stories of people who went through PEP and ultimately tested negative, and I’m trying to hold on to those stories right now.

This whole experience has felt like a maze.

Thank you so much for reading, and I hope everyone has a great day.

This is actually my first time on Reddit, so I’d also love to make some friends here. If anyone wants to share their own experiences with anxiety while waiting for their results, I’m more than happy to listen advices. ❤️

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u/Ohmega_14 — 10 days ago