I have PGAD with severely delayed orgasm (1 to 2 hours or more) postpartum 3.5 months. I just injected trizepatide for the first time a few minutes ago. Anyone else have experience with GLP-1 and PGAD? I want to be so hopeful after my tarlov cyst surgery failed. If it helped you how long did it take?
I think I have always had an underlying clitoral hypersensitivity issue since puberty. I had a lot of orgasms and they were very easy and good. Sometimes there was urgency that led to me needing to masterbate in a bathroom at an inopportune time but for the most part I was unbothered. I could have a couple orgasms and go on with my day.
At age 35 I could orgasm 5-10 minutes manually clitorally and be done. About a year after my second c-section, 2nd boy ( no breastfeeding) I notice orgasm was taking a little longer at age 38. Also vibrators which I hardly used stopped working by age 39. Also if I had an orgasm I would have a need for more later. So I would try to wait until later in the day to orgasm so I didn't have to be in for the day. If I had enough orgasms it would clear the sensations for the next day. So I developed an every other day pattern of enough O's so I could have some normal days too.
For my third and final pregnancy ( another little boy c-section no breastfeeding) the every other day pattern continued, but by third trimester it was so bad I'd needed 6 to 10 orgasms to clear the sensations for the next day. And by 7 months I couldn't orgasm without nipple stimulation from my husband- it took too long. The day before my 38 week c section I couldnt climax for the first time in my life....and for 18 days after despite still having the urges/sensations. Then orgasm came back but it required my husband's participation every time and I'd flare with sensations after. If I don't stimulate a lot whether I can climax or not I have the sensations/urges build all day.
I have normal MRI, CT, Electromyography ( EDX/NCS) testing. Normal QST, delayed bcr and abnormal dermatones on s1 and s2 led me to having a 7.8 mm Tarlov cyst removed from spine. That did nothing. I reject the PGAD framework because PGAD is just an umbrella for a million different kinds of pelvic problems. I've seen specialist after specialist. Urogyn, sex med and 3 pelvic floor PTs.
Does anyone have any ideas ?! This is agony. I live constantly feeling like I need to O and it takes hours and requires nipple stimulation from my husband still 🙏 I had to hire a nanny and we've spent 30k so far. I just want my life back.
I always had a super high sex drive. Between my 2nd and 3rd pregnancy my orgasm latency increased and I developed an every other day pattern of needing a lot of orgasms to be satisfied...if I didn't satify the urge it stayed. During my third pregnancy this pattern continued but my orgasm latency grew so long & I had sensations and urges constantly every other day if I didn't stimulate the day before. By 7 months pregnant I needed my husband to stimulate my nipples every time to orgasm. The day before my c section I couldn't orgasm and for 3 weeks after. This is the first time ever! Orgasms came back but latency grew again and still need nipple stim 3.5 months postpartum. I have constant sensations of pleasure and arousal but can't reliably orgasm and when I do it's only with nipple stimulation and takes 1 or 2 hours or more...please help me figure this out. I've been to specialists but no one seems to understand it. 🙏🙏
Also: Went down PGAD route and it was a dead end with specialists. Even did Tarlov cyst surgery on S2 and it didn't work. Couldn't orgasm at all during my period but strangely July 23-25 my latency went back to semi normal and I could orgasm in 10-30 mins. First postpartum period was July 12 and second started Aug 10. No breastfeeding also.
I am a 40 year old female ( 5'5. 150 pounds) with two previous pregnancies ( failed inductions turned urgent c-sections with epidural anesthesia). One was when I was 22 and the other was at age 37. My husband and I decided to try for one more baby when I was 39 and he was delivered by planned c-section with spinal. No complications. Mild polyhydramnios and I went from 5'5 and 140 pounds to nearly 190. I gained a lot of weight sitting because I had low ferritin (later corrected) and I felt very sick most of my pregnancy.
Here is where it gets weird. I always had mild PGAD for as long as I can remember. Between 2nd and 3rd pregnancy it became more pronounced where if I had one orgasm in a day I would need more. It followed an alternating day pattern. Orgasm started to take slightly longer. I thought this was related to perimenopause. Also vibrators which i rarely used didn't work for me anymore. During pregnancy 3 I would need 6-10 orgasms in a day every other day to clear the need for the next day. By month 7 this was so hard and taking so long my husband had to provide nipple stimulation while I manually stimulated my clitoris. The first time I ever failed to climax was the day before my c section at 38 weeks. My c section was moved up because of this distressing issue.
Post C-section has become catastrophic. I delivered April 28 and lost all capability to orgasm until May 15. My first orgasm was weird and many over the next 3 weeks felt strange. Orgasm timing started out semi normal just a bit longer but latency grew. On June 6 I was able to have 4 orgasms and then after June 7 orgasms started to fail again. I had orgasms June 13, 19th, 22nd, and 24-July 4 but all took 1-2 hours of manual stim plus husband nipple stim. I did neurogenital testing with Dr. Irwin Goldstein on June 30th which produced an abnormal dematone test, a normal QST, and a delayed BCR test. I had a lumbar amd pelvic MRI and they found a 7.8mm tarlov cyst on left S2. On July 10 I had it excised and imbricated by Dr. Choll Kim. The surgery note says there was scarring and adhesions to the epidurus. Dr. Kim said the surgery went well and that my nerves looked healthy and capable of recovery. I continued not being able to orgasm 8 day after until July 18 whej it took 2.5 hours of stimulation, then July 21 it took 1 hour. On July 23-25 I had a return of near normal sexual function where orgasms felt normal and all were completed in under a half hour. The last day I had 4. Then on the 26th it started taking longer again - 45 mins. Then on the 27th it took 45 minutes and my second one took 2 hours and the third failed. PGAD still present and had been feeling nerve sensations since before Tarlov surgery. Orgasm on the 30th took an hour and 15. Orgasm on August 2nd took 2.5 hours after an earlier failed attempt. All the days in between were either days I failed after multiple attempts or refractory days where I'd stimulated enough.
This problem is absolutely killing me. My husband works at home and provides nipple stim for all my orgasms. I still have PGAD which makes the situation very depressing. I take wellbutrin 150XL and pregablin 100 mg per day divided and a small dose of clonazapam .5. We hired a nanny because my full time job is finding a solution because PGAD with anorgasmia is so distressing. I am 3.5 weeks post op and wonder if tarlov cyst had anything to do with this problem at all. My life is shattered and I can't enjoy playing with my baby or toddler, I am in agony. I need the ability to orgasm to come back so I can take care of these sensations. I have seen 3 pelvic floor physical therapists who don't think my pelvic floor is particularly hypertonic , a urogyn, multiple gyns and sexual medicine in San Diego. I was told I had low testosterone of 13 and perscribed a pea size amount of 1% T gel daily. I was given oxytocin lozenges. I was percribed cabergoline even though I am not breastfeeding and haven't tried it yet along with a topical estrogen/testosterone compound to apply daily to my clitoris and vestibule I haven't tried. Also vaginal diazapam I haven't tried.
I have never had orgasm issues, postpartum depression, have plenty of support, a loving husband and a nanny. I don't know if its related to tarlov cyst or if its hormonal or if its going to recover.
I need help this has ruined my life. Thank you.
Sorry for the typos in the title I couldn't edit them.
I had mild PGAD that got much much worse with my 3rd pregnancy. Even before this pregnancy but after my 2nd I had an every other day pattern of PGAD and refractory days where I didn't need anything. But in pregnancy I was needing 7 to 10 orgasms a day that were taking forever. By 7 mo this it got so difficult my husband had to provide nipple stimulation for me to orgasm. The day before my C section on April 28th my second orgasm of the day didn't work which was the first time I'd ever not been able to climax. This went on for nearly 3 weeks postpartum and was horrible..I them got orgasms back but progressively they took longer and I needed nipple stimulation still. Fast forward I'd lose sexual function for a few days and then it would come back. I still had the PGAD so I was losing it. My orgasms would take 1 to 3 hours when I could have them.
I did some research and got MRIs and sent them to Dr. Choll Kim in San Diego who is part of the sexual med/ spine program with the top PGAD experts. I had the Tarlov Cyst surgery on left S2 after testing.
I am 16 days post op and my orgasms came back 8 days post and my time to orgasm has now lowered back to anywhere from 15-30 minutes but still with nipple stimulation. All along I had full sensation and build I just got stuck right before the climax.
I am hoping this is from the surgery and will continue to improve. My PGAD is still there but it seems like as long as I am able to orgasm and get solid sleep it's not as bad the next day. My period came back in conjuction with the surgery at 10.5 weeks postpartum. Wondering if the return of orgasm is hormonal or from the Tarlov cyst surgery. It appears its from the surgery. I have been told the Tarlov cyst surgery takes time to work.
Has anyone out there had it? Would love to hear experiences.
Big thank you to the doctor ( Dr. Choll Kim) for getting me in on an emergency basis 3 days after we discussed the results of my testing. I was not doing well.
I am 7 weeks postpartum and orgasm came back for a few weeks and then vanished again. I had one on Saturday after an hour and 45 minutes of stimulation...but now wednesday and still not able. I am so utterly stressed out by this because its all I had for relief. Orgasm on Saturday caused a major flare and pelvic physical therapy made it worse. Seeing Dr. Goldstein on the 30th.
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I just feel so alone because most people don't have this difficulty. I can build right to climax with full sensation but can't orgasm. Anyone else get this?
40 year old female. I probably had signs of PGAD all my life...but very mild. Occasionally slipping into the bathroom to masterbate at work or parties. Had first c section at age 22 and no issue orgasming after. Between 2nd pregnancy and 3rd I noticed increased time to orgasm. Occasionally I noticed if I had an orgasm I'd need to stay home the rest of the day as the urge to have more would be too strong.
During the second and third trimester of my third pregnancy I developed an extreme need for orgasms every other day. I'd need like 6 to 10 just to clear the arousal for the next day. They took longer and longer to achieve nearing an hour and sometimes longer. After 32 weeks I needed my husband to perform nipple stimulation every time. It was horrible. Lost the ability day before my 38 week c-section. Orgasm ability came back at 2.5 weeks postpartum and I had about 40 ( was testing it a lot) but time to orgasm stretched longer and longer. As of last Tuesday I couldn't orgasm all week. Yesterday it took 1 hour and 45 minutes on and off. It gave me a severe flare and stupidly I tried again and after 1.5 hours NOTHING.
I am almost 7 weeks postpartum, so scared, crying all the time. Did I screw up my body forever?? I build arousal and get right to climax and can't cross over no matter how much mental imagery, fantasy, or even porn. Sensation is normal and MRI's of lumbar spine and pelvis are normla, normal hormones etc. Not breastfeeding, no SSRIs. Please help I'm so devastated and uncomfortable because I still have genital arousal.
I had PGAD start to mildly develop in my second pregnancy ( I have had all c-sections).
Then it started raging in my 3rd pregnancy in the third trimester especially. It got to the point I couldn't orgasm alone- I needed my husband for nipple stimulation.
The day before my c-section I couldnt climax on my second orgasm even though I tried all day and got really close.
Now 10 days postpartum I can't orgasm at all. I've tried everyday since day 2 postpartum.
I am so anxious and scared I'm throwing up bc I have no release but all the sensation when I try. I never anticipated this could happen. I thought the end of my pregnancy meant the resolution of the worst symptoms.
My c-section pain is nearly gone, I'm not breastfeeding etc.
I have the best husband in the world and my kids are so precious to me. I feel like I have this beautiful life and then this happens and makes me spiral to a very dark place. I can't sleep without an anxiety pill, I wake up with panic attacks, and my husband and also my Dad are mostly helping with the kids. I have never had postpartum depression, this is 100% situational.
If this happened to anyone after kids it would be so helpful to not feel so alone. The sensation is still all there, I just can't climax now and its driving me crazy. Do you think this is permanent or maybe hormone driven ?? It didnt happen in my last pregnancies but I'm 40 now.
I developed severe pgad in my third trimester, previously I was hypersensitive but this is like nothing I have experienced. I was on a cycle where if I had 5 to 7 orgasms one day the next day I wouldn't feel the need for any. It's like neurologically I reset which helped me rest. As my pregnancy progressed it took longer to have the orgasms and I eventually couldn't do it on my own so I tried to move to just a couple per night and it backfired and I have it constantly now.
Here are the worst parts.
My mental health is in a spiral. I have never had postpartum depression or this level of anxiety but I am getting blood pressure spikes and calling mental health hotlines. I can't risk being labeled as crazy and be separated from my husband bc he is the only way I can find relief.
I'm in so much arousal, distress and pain. I don't know how to make it through the next 9 days until my c section. I'm so scared I'm going to lose my mind from physical exhaustion, arousal, and insomnia. I have a prescription from my family medicine doctor for Ativan...its not recommended in pregnancy but the OBGYN will find no other ways for me to cope so it's my only option as of this week...and now I am scared my baby will be born dependent on benzos. They don't weigh the well-being of the mother or factor me into any decision-making. Of course I want my baby to be healthy and protected but is it good for him to be absorbing all this stress, high heart rate, insomnia, and temporary bp spikes? I feel like mh survival depends on the small dose of ativan I need to cope.
Sorry just needed to vent. I am so so so stressed. This is the hardest time of my life. I feel so traumatized by this and can't believe there is nothing this obgyn practice will do to ease my suffering. Third and very wanted pregnancy too. Would never go through with another ... I feel so trapped in an uncomfortable body I just want to escape. I was such a happy person before this hit.
Thank you for listening if you read this far.
Update: right after I posted this I got approved for a 38 week c-section...so 2 days from now. Thank you guys so much for the support. At least the owner of my OBGYN practice takes this disorder seriously. I am so shocked how dismissive everyone else was.