r/PGADsupport

Hi, this is my first time posting here but I’ve kinda had a look around before.

I started a new job around 2 months ago (my first real job tbh lol) and I’m a bar tender at a restaurant which is honestly great for me as I can just get a drink at any time so I don’t get dehydrated, and my crotch is almost always out of sight of anyone else aside from maybe a co-worker if they are also behind the bar. But the issue is that the more I’ve been working the longer my shifts have been getting, e.g. when I first started it was mainly 5 hours sometimes I’d even get a 3 hour lunch shift which was sooooooo easy but now I’m getting more 7-8 hours sometimes shifts sometimes longer which causes issues for me as my hyperspermia causes me to need to wear condoms to work, there might be a solution that cuts off my circulation less but it’s the best thing I could think of to just use a condom and a cotton pad to keep it in place and dry. As my shifts have gotten longer I’ve needed to start going to the toilet to change out the condoms multiple times a shift, enough where I’m using up like a quarter of my hourly wage every hour because of the price. Also I am only changing condoms when they get to the stage I’m worried they will pull themselves off from the weight or it will cause an issue. Basically what I’m looking for is anyone with a cheaper solution that’s not gonna make it look like I’ve wet myself or just any kind of help or support.

TLDR: condoms are expensive but I need a way to not deal with the issues while at work

I've seen quite a lot of people mentioned Doctor Goldstein but I'm not American and haven't seen him, NHS mostly useless

I think a lot of us have read that medical journal thing where 8 women had surgery on the pudendal dorsal nerve to destroy it and was successful. but there's no further information somehow?

but has anybody who has spoken to Dr Goldstein, has he mentioned this or has anybody asked him about it?

like who is working on this if that study is correct... and then gone because the two surgeons retired? why is that lead not being followed? was the study not legit?

it seems like Dr Goldstein is the main person looking into this, is he following this? is anybody else working on this for us? or nobody? even when some have had this caused by medicine...

and is doctor Goldstein helping people with any success or just charging?. is he doing research still? making progress?

thanks

Does anyone ever get aroused heavily when you wake up? For some reason, I get extremely aroused in the morning. Not so much at night but in the morning. It’s almost like a throbbing feeling and it’s annoying. Does anyone else have this problem, if so, what are your symptoms. I’m hoping I don’t have pgad. I’m scared to talk to anyone about it.

At the age of 12 (im 34 now) I was diagnosed with interstitial cystitis. Ive tried all kinds of treatments to no avail, botox injections, medications, bladder cocktails etc.

My IC doesnt present like normal IC does. Im constantly aware of my bladder and how much or how little urine is in it. Theres a constant pain in my bladder and it burns every time I urinate. As the urine exits the pain rises and the cycle continues. I also have overactive bladder so even if my bladder is barely full I have these sudden strong urges to urinate and if I try to hold it, I leak urine.

Also, 2 years ago in Feb of 2024 I woke up just like any other day only this time I was strongly aroused for no reason and even with masturbation and orgasm I got zero relief. And to this day ive still had zero relief.

I got an appt at a different gynecologist, my 3rd one thus far, but the soonest they had was 6 months from now.

I also am a mother of 4 kids, my youngest is 2 months old. My divorce is almost finalized, and im living with my mother again for the millionth time. Now you may ask, if ur going through such hell physically, why so many kids?

Well when ur being abused and depressed and desperate for love, ull do anything to keep/earn "love" from that person no matter the cost to you.

Im trying to apply for.disability but as you know it takes a really long time and u may or may not get approved.

Bc of my physical problems im living a literal hell on earth.

And one of the worst parts is if u act too happy in a moment people dont take u seriously. If u act the way u feel, people say things like, "u gotta keep moving/keep on truckin" etc. Or go silent and dont do or say anything or act like they dont want to be around u.

I dont know how much longer I can live like this.

My doctor prescribed me 10mg of amitriptyline and I want to ask if anyone has a good experience with this medication and how long did it take until it had a good response??

Did you have any side effects? and was it necessary to take a higher dose (25mg or 50mg)??

thank you

original post was written back in june 19. the sensations started around june 15 and only subsided by june 20. it came back yesterday (28th).

"so, im asking here because i can't afford a doctor right now and i'm also trying to avoid my mom being a bit nosy if i ever visit one (not so good rship so i dont like telling her things about my health) so pls tell me if its something i need to see someone for or not :')

anyway, i had my period over the weekend and just finished yesterday. i was bored by day 2 night time (monday), and decided to be Not bored by whipping out my ol' buddy the vibrator. don't judge, but i just used it over my pants and was wearing a pad as well. didn't reach climax so i tried again hours later. nothing. next day, i also tried it. nope. next day, nothing. so i was like, okay body is definitely just not in the mood then lol

but then i started feeling the arousal kind of sensation around the vaginal opening area(?) the entire day on wednesday. even without stimulation from anything. i've felt it days prior, during my attempts, but it went away, so an entire day made me a bit "uhhh...??". its the first time i've felt something like this over the years i've jacked off and i decided okay lets back off from tryna get some Me Time, and figured that maybe i just over did it? like i contracted my pelvic muscles too much from tryna achieve (a failed) climax too often but nothing was happening?

yesterday and as i am writing this, i still feel it. i wonder if its happening because i'm suddenly KEENLY aware of it happening. when i wake up from sleep, its not there. when i'm focused on something that requires my full attention, i don't notice it. only when i truly pay it any mind.

is it something physical or psychosomatic/mental? did the pad do something to irritate the nerves or whatever? i did a sort of "push" movement to trigger my orgasm (unsuccessfully multiple times) and that also gave my pelvic area some sorta pressure sensation digging into me. now that one is gone thankfully.

granted ive done this a couple of times while wearing them without issue so idk what happened...

thank you to anyone who can gimme advice and/or calm me from overthinking things TwT"

ive tried jerking off to see if it'll subside after that. i thought it did but it didnt, so now im just at a loss and am worried.

i hope i didnt fuck myself up just cuz i was bored ughh...

any insight is appreciated :')

edit:

what's up gamers, hope you're doing okay. I'm trialing a microdose of tirzepatide for PGAD and I'm not sure yet if it's helping. I'll continue to monitor.

I also currently take 25mg Zoloft. I've been on a few different SSRIs in my life, and my PCP suggested maybe switching to Lexapro or a different one to see if the sexual side effects get any better. I'm willing to try, but I'm honestly a bit terrified. my nervous system doesn't function on its own really at all. super cool and fun.

I absolutely cannot take SNRIs - duloxetine sent me to the ER 3 times. I lost 30 lbs in 2 months. was vomiting constantly. my body hates any increased norepinephrine.

has anyone had success with their PGAD symptoms by switching antidepressants? thanks much!

I don't know if it's from anxiety or not, but whenever I get really bad flares my legs feel really weak as if they're falling asleep or I'm having a hypoglycemic episode. Actually, recently my legs just feel like they're trying to fall asleep but can't??? Does anyone else get that sensation?? Sometimes the sensation my legs get will last for hours.

Hi everyone,

I apologize if this seems like I'm rambling but I'm emotionally and mentally exhausted with this now.

Firstly, I'm so glad I found this group today because reading some of the posts so far has made me finally feel seen and heard. I don't feel so much like a freak anymore and now I know I have a safe place to talk about this as I've already been laughed at before when I've tried to tell someone.

I haven't been diagnosed yet as I'm still too embarrassed to contact my GP but I am entirely convinced I have PGAD.

I'm in my early 40's, in general good health, don't drink or smoke and have been celibate for over 10 years.

This condition really has snuck up on me gradually but over the last couple of months has become unbearable.

For some reason I am fine during the day or when I am sitting up normally. But at night time when I am trying to sleep lying on my side the symptoms start and get too intense to the point of being painful if I don't try to relieve it. Even if I do try to relieve it, the symptoms start again maybe a couple of hours later. I haven't had a full nights unbroken sleep in what seems like forever. I only get a couple of hours at a time if I sleep lying on my back.

I'm confused as to why it only happens when I'm on my side. I do have lower back pain if I sit too long on uncomfortable seating such as public transport etc so I don't know if it is a nerve issue maybe?

I'm really struggling as I have been sexually assaulted in the past and this is really triggering me every night now. It feels like I'm being made to do things and feels things I don't want to, like I'm not in control of my own body again.

I don't know what to do anymore, I spend all day worrying now about going to bed at night.

I'm UK based so I don't know if there is any medicine I can buy without having to embarrass myself at the doctor's or if there are any exercises I can do. Also curious if my PCOS is in any way contributing to this.

So sorry for the rant but I appreciate you taking the time to read this ❤️

I feel filthy. Dirty, disgusting and unlovable. Once again I relapsed and cut myself after a flare up. I don't think I'll ever get better. This body is a cage of flesh and bones. I wish I was never born at all. I just want to end it all...

I wasn't well, but I had peace I had hope, normal things Thought if I got the help I need It could fix everything I trusted medicine to save me, feels like it killed me With tremors on the bed, I can't forget Now I live with PTSD and pray that there's an ending 'Cause I don't wanna die inside my head So, tell me, where do you run when you're at your limit? [...]

Song: Limit - Citizen Soldier.

Wanted to share it as it describes my experience with PTSD and PGAD, especially the part about the medicine...

Hi all.

My pgad started in April following intercourse. As the arousal wouldn't go away, I ended up having a panic attack the next morning. Since then my symptoms drove me crazy to the point where I returned to my home country to get some tests done faster. Suicidal thoughts really scared me. My MRI showed two tarlov cysts. One of them is on S1 and is 4mm. My Psysiatrist says thats probably pressing down the nerves and causing my symptoms. TENS machine tends to work and my symptoms have gotten much better with more windows of low symptoms and occasionally no symptoms at all. I was also diagnosed with OCD so I started setraline. My question is...ive seen a lot of success stories which is good but none of them mention an MRI. Has anyone had any positive stories to share with tarlov cysts and PGAD or does anyone know anything that may help?

Thank you.

Just recently got prescribed caplyta. Has anyone had a good experience also has it increased sex drive. I really dont wanna take something that's going to kill it.