▲ 9 r/POTSRootCause+2 crossposts

Ferritin 25 Need non POTS anecdotes!

I see my cardio soon and they are trying to Dx me with POTS. I would love some anecdotes with normal iron and HGB with ferritin around 25 or higher with similar symptoms that recovered from iron supplementation without needing POTs Tx

Symptoms:

Low Bp (possibly due to 40 pound weight loss)
Air hunger
Lightheaded/dizzy
Nocturnal adrenaline dumps
Increased anxiety
Skin burning sensation (worse when anxious)
Sensitive to meds
Higher resting HR
High HR spikes after shower or getting up in morning after laying down

I’m F/36 120lbs

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u/AdWooden2052 — 11 days ago
▲ 4 r/Thiamine+1 crossposts

Magnesium sensitivity ???

Ive had night time HR spikes for the past 5 years. I never catch on a HR monitor or sleep test. So I got an outa ring to see if it could help me track.

Well I woke up one night with a HR spike and went to ER. HR 178 (sinus) My magnesium was low and potassium really low.

They gave me a mag drip and I reacted horribly to it. (The whole next day my HR was up and down and I had night sweats) I initially didn’t relate it to the magnesium.

Knowing my mag was low I decided to take mag glycinate. And my anxiety was off the charts with a paradox reaction. Unbearable restlessness. So I stopped and it went away.

However it came back. And now I’m am anxious all day. Not mentally but physically. My body feels extremely uncomfortable.

Since all this has started my HR has been elevated and my dr thinks I have pots so I’ve been doing lots of electrolytes and they do contain magnesium.

He says I just have anxiety but I did NOT have any of this feeling until I started messing with my magnesium and I feel like my body has been ruined.

Even with all the supplementing my mag has stayed on the lower level. I’m thinking possible my stores are low.

Has anyone experience this? Can it be from the magnesium I’m consuming?? I’ve read low thiamine can cause magnesium sensitivity but my dr won’t check it.

This anxiety won’t lift no matter what I do. Again it’s morn physical like my skin crawling and restlessness vs mental anxiety.

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u/AdWooden2052 — 20 days ago

Relapse

I feel so defeated. I was literally thinking last month how I felt completely healed then a really stressful even happened and I feel back at square one. This started in 2021 and gradually got better.

My body feels so heavy and sluggish especially my head neck and shoulders. My jaw feels like cement. Vague nausea and feeling very unbalanced and dizzy.

I have prism glasses that were a godsend that aren’t even touching it.

I don’t even know how I healed. Any guidance on a relapse?

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u/AdWooden2052 — 2 months ago

Can anyone relate?

For past 5 years I will wake up with high heart rate

Typically goes…

Wakes up confused

Then boom high heart rate

Remain calm until it subsides or tried vagal maneuver

Sometimes after get trembly until it fully calms down.

I don’t notice and gasping and husband says I snore but not sure how much or how loud. I don’t think it’s that bad

The other night I woke up impending doom feeling and went to ER because my watch said 178bpm. Everything was normal at ER and fortunately I was wearing a heart monitor during my sleep. It was sinus tachycardia.

I have been very stressed about this lately so of course I’m experiencing it more. Twice last night it hit me but HR no higher than 140. These don’t feel like a typical panic attack because nothing helps calming it down other than time.

I have lingual tonsil hypertrophy and mallampati 4 which are characteristics of SA. I also have reflux.

I had an at home test over a year ago that didn’t reveal anything but I also didn’t have an episode.

I’ve been testing sugar levels during this time and they are normal.

Did anyone else have these symptoms? Again this is only happening during sleep.

Primary has sent referrals for cardiology and sleep.

Edit to add: I have Oura ring that hasn’t detected any breathing issues (but it also only clocked my highest HR at 120) so it could be missing any disturbances since it doesn’t continuously monitor.

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u/AdWooden2052 — 2 months ago

Normal?

I’ve had this going to n for a while and suspected SVT. I had one the other night that sent me to hospital and my potassium and magnesium were low. The next day my resting rate was 90-100 and I had horrific anxiety. Then last night kept waking up with high heart rate. Is this normal?

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u/AdWooden2052 — 2 months ago

Prayers for healing and peace during trials

I need prayer for healing. Having high heart rate spikes in my sleep. Currently on a monitor and went to ER last night.

Prayers to feel peace and understand it. I know God is with me and I’ve been praying hard but when my body is physically in a panic state it’s hard to feel “peace” and gives me a fear of death.

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u/AdWooden2052 — 2 months ago

Prayers for healing and peace during trials

I need prayer for healing. Having high heart rate spikes in my sleep. Currently on a monitor and went to ER last night.

Prayers to feel peace and understand it. I know God is with me and I’ve been praying hard but when my body is physically in a panic state it’s hard to feel “peace” and gives me a fear of death.

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u/AdWooden2052 — 2 months ago
▲ 1 r/SVTHeart+1 crossposts

Does this sound like SVT during sleep

Want to preface by stating I’ve had multiple EKG, I’m currently on my second monitor (CAM), and I’ve had an echo. Had a home sleep study that showed nothing.

One 2 week monitor showed “SVT 115 BPM for 5 beats” once while I was asleep but I never woke up

For about 5 years I’ve intermittently without any apparent trigger will wake up confused with an extremely fast HR. Does not feel like a pounding but very fast like a hummingbird. If I try to stand up during these episodes at night I am extremely lightheaded. It goes confusion, intense heartbeat and numbness, and sometimes nausea. My limbs also feel numb sometimes. It will stop and I can go back to sleep.

Once while pregnant it happened and I went to ER and nothing was found. I was dismissed as “You probably beat up too fast” when I never even sat up during the event

I would try to catch on my Apple Watch but it’s so irritating on wrist and these happen so infrequently it’s hard to catch. So recently I decided to get an Oura ring

I googled how to stop a fast heartbeat once and learned about beating down. Did that once and it IMMEDIATELY went away.

The other night I awoke with INTENSE pending doom and checked my watch to see 160 and then it cause my to panic because I have never felt that awful get in my life (I’ve had panic attacks before and this did not touch it) by time EMD showed up I was normal. But lingering anxiety that made me not want to sleep. I have a hiatal hernia so I was too scared doing any straining at the time would make it worse so I didn’t bear down like I have previously.

Today twice while sitting I felt like I could pass out and my heart rate was 140 both times. This was while I was awake

Any one else have these symptoms that led to your Dx?

Again majority of these strange symptoms and the worse of it happens when I’m asleep and especially naps. During the day it feels more like a spike of panic but not sure now if maybe I am having SVT I really thought maybe sleep apnea but I don’t have exhaustion next day.

My primary suggested a kardia device in the meantime so waiting for delivery.

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u/AdWooden2052 — 2 months ago

Marriage

Please pray over my marriage. I think my husband wants a divorce. This has been a tough year with my health and neglect on intimacy and I think it has affected our marriage. He went from smiling and happy last week buying me gifts to very cold and shutting me out the past two days saying he’s not happy and unwilling to do therapy. I know whatever happens is God’s will. I just fear the loneliness and being a single mom. This has caused a lot of anxiety and despair. I don’t have a village. Also the thought of navigating health and financial issues alone is overwhelming. I love my husband so much and praying long lasting healing over my marriage.

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u/AdWooden2052 — 3 months ago

Magnesium supplements?

Any good alternatives to a pill or gummy. The pills I find trigger spasms because of their size and gummies have citric acid that aggravates Gerd

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u/AdWooden2052 — 3 months ago

Trigger warning!!!!

I guess because I have searched HH so much, fb decided to show some random person on my feed that I do not follow. This is the stuff that makes “accepting” this condition so hard.

u/AdWooden2052 — 3 months ago

Spasms?

Are esophageal spasms related to HH? I had a schatzki ring and it was dilated but it still feels like food sits in my chest with a tight feeling. Dr said this was spasms. No relief after dilation.

2 days after my EGD I had severe spasm that felt like they were rolling from my throat down and went away with lidocaine from an Unrelated ENT procedure.

This feels different though. Like intense pressure in my chest a few minutes after eating that last.

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u/AdWooden2052 — 3 months ago

Spasms?

Are esophageal spasms related to HH? I had a schatzki ring and it was dilated but it still feels like food sits in my chest with a tight feeling. Dr said this was spasms. No relief after dilation.

2 days after my EGD I had severe spasm that felt like they were rolling from my throat down and went away with lidocaine from an Unrelated ENT procedure.

This feels different though. Like intense pressure in my chest a few minutes after eating that last.

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u/AdWooden2052 — 3 months ago

Fody Foods?

Has anyone used this site? I’m not on a specific diet but wondering if these foods would be helpful for hernia and GERD

u/AdWooden2052 — 4 months ago

Back pain/muscle tension

Does anyone have pain under sternum that wraps around back? I have no typical reflux symptoms and would get this every now and then but since my scope I’ve had it every day. It’s very uncomfortable and just feels like my muscles are super tense and I can’t relax them. Like a tight belt wrapped around under my breasts.

If so what helps? I weaned off a PPI and my endoscope showed no inflammation from reflux. Wondering i need to go back on PPI.

Currently on famotidine twice a day that doesn’t relieve it

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u/AdWooden2052 — 4 months ago

Prayers please.

I’ve had a recent diagnosis thats not deadly by any means but causing me a lot of discomfort and anxiety.

It’s put a really dark cloud above my head and I just feel so numb to any type of emotion. I just go through the motions daily without really living.

Right before this I felt like my prayer life and closeness to God was getting better. As I’ve been struggling mentally since my son was born. He is now 2.

I just feel sort of lost and need some prayers please

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u/AdWooden2052 — 4 months ago

Just got diagnosed and left with so many questions.

My hernia is small. But now I feel like I’m afraid to move or lift my toddler.

I was too loopy to remember questions to ask

I had a schatski ring that was dilated and 1-2 cm hernia

Will I ever be able to do Pilates? I’m worried any movement will just keep opening a hole in my diaphragm.

I was hoping to get off PPI. Has anyone had success doing this with

I have been restricting my diet so much just thinking I had LPR. Sleep on a wedge. Do not eat dinner for 3-4 hours before bed. Was taking PPI that didn’t touch symptoms so I’ve been weaning and now on famotidine. Lost 30lbs (at a very healthy weight)

I feel like I will never get to have a splurge on food again. I don’t mind being restrictive and eating healthy. But would love a slice of pizza or a fried chicken salad here and there.

I started having trouble swallowing and went on a soft food diet. I’m still afraid to eat due to throat tightening symptoms.

I’m also frustrated because I only had throat symptoms until I started the PPi and everything went down hill from there. It caused depression and hair loss so I’d really like to not be on it forever

ETA: I’ve avoided alcohol 7 months and honestly don’t care to have any but is a glass of wine ever in my future?

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u/AdWooden2052 — 4 months ago