Exercise Induced Anaphylaxis & EpiPen questions
Hi all,
Saw a new allergist today and explained what I thought was heat urticaria but he believes is exercise-induced anaphylaxis. Exercise (even extremely moderate, like taking a walk in my neighborhood) results in hives and if I persist, stomach cramping, diarrhea, and vomiting. The only way to control is so far is a daily antihistamine. I'm pretty good about taking those, but if I forget, it's a bad situation. He's prescribed me epipens.
For those who carry epipens, where do you keep them? I am not typically a bag/purse person. If I'm out in my neighborhood, I often just have my keys and my phone shoved in my pockets. I'm concerned about how to train this ADHD forgetful habit-resistant brain to carry it with me when I'm out and about.
I do think it's gotten worse--has that happened to anyone else? It just to be just if I really exerted myself. Now it's pretty much any movement.
I've also avoided stone fruit for years because I had an incident where I ate fresh mango and had muscle tremors and vomited. Now I'm wondering whether that was actually an allergy or whether that was EIA because it was hot that day and I was doing a lot of physical exertion. I'm getting allergy tested next week.
I also have asthma (lifelong) but I only carry an inhaler when I am doing exercise.
I've slightly suspected MCAS in the last year or two. I get contact dermatitis for basically plant matter that touches me (dead or alive!), I have enormous reactions to any bug bites (mosquito bites are often bigger than a quarter on me), I have a lot of food sensitivities, IBS, heat urticaria/EIA, etc. How did you get an MCAS diagnosis? I'm worried doctors will think I'm fishing for a dx when I'm really not (I've been dealing with all of this on my own for 15+ years, this is the first allergist I'm seeing.)