u/Dexterislit

How common is it to experience chronic respiratory issues ie chest pressure, burning sensation and some congestion with MCAS? It feels like asthma, with some mild wheezing upon deep breaths. I’ve seen a respirologist that ruled out asthma and I was on a trial of inhalers at one point that never helped.

I also have chronic sometimes severe epigastric pain. I have a small hiatal hernia that numerous doctors have told me isn’t the cause for my symptoms and had multiple trials of PPI meds that didn’t help. I’m on Cromolyn, Famotidine, Bilastine and was on Singular but discontinued and am currently weaning off of Ketotifen under doctor’s supervision. Any suggestions would be appreciated.

I’m in my late 50’s, only child, have grown kids of my own, divorced. I’ve been chronically ill for almost 16 months, bedridden 90% of my day. My father passed away suddenly in 2018.

My mother cannot handle the stress of my illness and the anxiety it causes her. She cut me out of her life, both physically and emotionally and we have not spoken or seen each other since November 2025. As a mother, I can’t comprehend how a parent could turn their back on a child, while being ill. I have begged for her love and affection and she has said she cannot be there for me emotionally or physically and is unable to see me. (We live 5 minutes from each other). I’m coming to terms with this reality. She was never a nurturing person and always put her needs first. I’m struggling with the reality of having to grieve the loss of one parent (they were divorced, she is remarried) through death and feeling like I’m grieving the loss of the other parent whom is very much alive and only a few minutes away. Why do we constantly seek that ‘miracle’ of the parent realizing that they could do better when deep down we know that that will never happen. I have never felt so alone or rejected as I do now while being ill. I have my amazing two children who have been by my side, but having a parent choosing to cut you out is so hard to come to terms with. I needed to vent. This platform has made it a bit easier to deal with everything but it really sneaks up on you, and hits you like a brick wall at times.

PS this is not a mother who can’t bear to see her child suffer or in pain situation, as she lacks empathy for most humans in general.

I am almost 60 years old, an only child and had a good relationship with my mother until last November 2025 when she decided she couldn’t deal with the stress and anxiety of the chronic illness that has become my life since January 2025.

She is married and even though she is older, and other than typical age related aches and pains, she is well ie no illnesses or conditions that keep her from doing the things she enjoys, walking, seeing friends, dining out, driving.

I was diagnosed with a chronic illness and have been mostly bedridden for over one year. I have been hospitalized 4 times in 5 months. My mother did not visit or call any of those times. The last time we spoke was on the phone in November at which time she yelled at me and hung up.

She then proceeded to go away for 6 months during the winter and has now returned for good. I reached out to her numerous times by email over the last few months and most of my emails were ignored. The last one was a couple of weeks ago wherein I expressed how hurt I am for her to completely disengage from my life, especially during what has been the most terrifying time of my life being ill every day and not knowing when or if I will get better.

I am also a mother of two loving children whom have stood by my side during this illness, and I know that I could never turn my back on either of them if they were suffering.

I am divorced and live alone and my daughter has been staying with me for the last few months following one of my hospitalizations.

How does one process these feelings and the reality of the situation. My mother and I were always close and shared everything. I never would have imagined our relationship would become no contact. This is something I never chose but then again neither was my illness. I have never received an explanation from her or apology for just stopping all communication except to say she hopes I feel better and she is unable to see me as she isn’t doing well physically or emotionally.

I truly empathize that as parents age and they become limited in mobility and mentally, I can’t condone just cutting a child out because their illness is too stressful. My heart is literally broken and I’m trying to come to terms with it.

Does anyone live here or know anything about this building, property management, insight??

Has anyone tried or been prescribed as part of Lyme disease treatment Oral Liquid Silver (up to 1 tsp 3 x/day) for its microbial properties?

I thought binders are supposed to make you feel better? I have been taking Biotoxin charcoal based binder for a month or so (started at half capsule mixed in water) and just increased to whole capsule a couple of days ago. Every time I increase, I feel worse ie my symptoms flare up (I have Lyme, bartonella, borrelia & MCAS) I tried Toxaprevent initially a couple of months ago and the flares were worse. I know everyone reacts differently, but aren’t binders supposed to help and actually make you feel better? I am not even at the stage where I can retry herbal or antibiotic treatment again and I’m working with my healthcare provider to get my body ready for treatment. ???

Has anyone taken Milk Thistle on its own for MCAS symptoms? The same question for NAC? Benefits?