u/Funny-Rain-3930

My husband was diagnosed 4 years ago when his lungs filled out with fluid. After the hospital, everything was fine up until two months ago. He now has pitting edema in his legs and fluid buildup in his stomach.

He's been on beta blockers and torasemide 10mg once a day and the next day two pills in the morning and afternoon, and then the next day one pill and so on. These are his only symptoms. Blood work shows that everything is fine, including the liver and kidneys.

Why is this happening now? Isn't this a very low dose of the water pills? Can it resolve or this means things are getting bad? Did someone find a way to live with this? I'm incredibly worried and frankly panicking. I just want him around for a long long time.

EDIT: He was with his cardiologist one month ago. She said that his heart is the same as before, no change. I'm starting to doubt her.

EDIT2: During these 4 years after the hospital stay, he's never been on a low sodium diet, eating all kinds of crap. He was relying on the water pills, which at the beginning was 10mg a day. Now with this episode, he is on this new regimen where one day he is on 10, the next day 10x2. He doesn't listen to me. I don't know where we are at and if that could be the culprit, or if he is getting worse.

I'm perfectly fine and I'm grateful for it. But I can't shake that feeling that my first big relapse is expecting me. Maybe tomorrow, maybe in a year, 5 years?... But is out there, waiting.

I've only had two optic neuritis in the left eye and double vision for 4 days that went away on its own, so I don't know how a big relapse feels. I wanted to share that I'm scared of it, since I try to act strong for my family and friends. But I'm not. I'm scared of the future.

Why me?

Does anyone has edema in the legs, feet and stomach?

My partner was fine a few months ago, but suddenly his stomachs started becoming huge. So much so that he couldn't sleep. After eating a lot of bread one night, his stomach became huge. Around two-three hours passed in which he passed gasses and after that things calmed down.

I figured it could be celiac disease and we stopped gluten a few days ago. However, when he ate vegetables, his stomach bloated again, although not as bad as when he ate bread.

What bothers me is the edema in the legs and stomach. It's not much, but it's there - it sometimes disappears I think, though I'm not sure.

The skin on his hands is very dry and has small cut-like wounds. He also has red pimples on the legs.

Did anyone have symptoms like these?