My bf has seizures. What should I do while he’s having a seizure?
I’m looking for advice because I’m really concerned about my boyfriend’s seizures.
I’m not sure when they first started, but I remember the second time we ever met up (around late September 2025), he suddenly started speaking gibberish, had a blank stare, and his body became stiff. It lasted about 4 minutes. When it was over, he had no memory of it.
He’s even been in a car accident before because he had a seizure while driving.
This would happen 2–3 times almost every day I was with him, which was about 3–5 days a week. Now I stay with him everyday to make sure nothing bad happens to him while he’s having a seizure. We officially started dating in late November, and the seizures were still happening. Some days he would have 1–3 seizures a day. Sometimes he could still move parts of his body during them, and other times he would become completely stiff.
One day about 2 months ago I woke up to a loud boom sound and found him on the floor having a seizure. I was worried he had hit his head, but afterward he didn’t remember anything and refused to go to the doctor. He doesn’t have insurance.
He has always told me not to get scared, not to call anyone, don’t call an ambulance, and that it happens when he drinks alcohol or when he’s stressed or doesn’t get enough sleep. I’ve encouraged him many times to see a neurologist, but he refuses because he doesn’t have health insurance.
About two weeks ago, he had the longest seizure I’ve witnessed. We were sleeping, and it lasted around 8 minutes. This one looked different from the others. He still made strange vocal noises, but this time he had saliva/foam coming from his mouth, he became stiff, threw his arms into the air, shook his entire body, urinated on himself, he had a blank stare, it sounded like he couldn’t breathe properly and afterward he had absolutely no memory of what happened and his breathing was very heavy for like ten minutes after. I turned him on his right side and gave him space. When he regained awareness, he complained that his right side and chest were hurting, but he still refused medical care. Last night it happened again and lasted about 9 minutes.
My questions are:
What type of seizure does this sound like?
Is it normal for someone to have seizures this frequently and not seek treatment?
What should I do while he’s having a seizure? How can I best support him? I have no idea what I’m doing.
At what point should I call 911, even if he tells me not to?
How dangerous is it for seizures to last 8–9 minutes?
I’m really worried because this seems serious, and I don’t know what I can do to help him.