Hazel and her big snoof

Hazel and her big snoof

She’s not thrilled with putting it on but has no issue when it’s on for her walks. This muzzle is worth the money. She can fully pant in it and smell and I can give her treats.

Someone called her a Hannibal Lector puppy the other day and I loved it!

u/Georginarothko — 2 days ago

Crab & Langostino Rangoon - anyone remember?

Does anyone remember these? Maybe around 2009 ish? I didn't like them the first few times I tried them but then I loved them and bought them on every haul. This is the one product I'm always wishing they would bring back.

What products do you miss>

u/Georginarothko — 15 days ago

What can you discern from my apartment?

Spoiler is that the adorable dog in photos passed away last summer (and forever missed; she was the most precious pup)

u/Georginarothko — 2 months ago
▲ 77 r/toastme

Been through hell

In the last 5 years I lost everyone I love and then my job. And I went through all this shit alone.

When my mom died in 2022, I painted her entire condo including ceiling, all on my own. I folded, packed and donated all her clothes and shoes( a bittersweet labor of love). Then I sold her condo. I have two sisters. One I don’t have a relationship and the other has been my best friend since birth.

When my mom died, I held my sister’s hand and said “we are so lucky to have each other” I remember feeling so sad but so grateful for our close relationship. We were all we had now, having lost our father twenty years ago.

Months after my beautiful mom died, my beautiful sister was diagnosed with bulbar onset ALS. The first week of that diagnosis, I cried and slept on my couch, terrified of what I knew was to come. I knew she only had at best two years left. Watching her lose every faculty and get closer to death each day was the most extraordinary pain I’ve ever experienced. She passed away a year and half after diagnosis. While at her side in the hospital, I called my friend and wept as I said over and over again that I was all alone now.

I painted her entire condo including the ceiling, all on my own. I folded and packed and donated all her clothes and shoes. I sold her condo while our heinous older sister harassed me for a year because my beloved sister left everything to me just as I would have left everything to her. It was my honor to take care of my mom along with my sister but I had to take care of my sister, prepare her green burial and mourn her all on my own

A year after my sister died, I got laid off. Then three weeks later my soul dog died.

My heart is forever changed as is my life and I’ve been unemployed for a year now. Everyday I get up and shower and get dressed and do errands and try to be positive but some days it’s just too hard. I sleep a lot now and I know that’s depression.

I’m so grateful for my life but so angry at so many people that have not been there for me as my life feels so isolated now.

Tell your loved ones that you love them everyday; even when they are gone, it will never feel like enough.

u/Georginarothko — 2 months ago

ALS

Jenny's diagnosis and all the misinformation about ALS is causing me so much pain (no one's fault, not blaming anyone).

So I want to educate folks on ALS, specifically bulbar onset.

Limb onset has a longer life; some folks can live many years with it and some can live much shorter. Bulbar onset is always horribly fast. A person would be so lucky to get past two years. My sister died 1.5 years from diagnosis.

There is no treatment. There are drugs that can be prescribed to "prolong life" but there is no proof that it actually does more then maybe an extra few months. People with Bulbar have a horrible and embarrassing time with too much saliva due to the tongue not working. They can be prescribed different drugs to help that but they don't really help. Getting a feeding tube right away might extend ones life by a few months. I was told all these things by an ALS neurologist while caring for my sister. She choose to not have a feeding tube because the first year she was able to enjoy food. Eventually, I was beyond terrified that she would choke to death. She lost half her body weight near the end because she could not get enough nutrition. But I am grateful that they told me a feeding tube would not have extended her life beyond a month or so. Enjoying food is one life's pleasures and I am glad that she was able to be comforted by food for a while.

A few months into her diagnosis and she could no longer be understood and had to use text to talk (this was so heartbreaking as my beautiful sister was so gregarious and a loved conversing with even strangers).

Six months before she passed, she complained of being very tired. Soon she could no longer go to appointments. It was just me and her. We only had each other. She lived in a tiny condo and I in an apartment in a big city. I would help her get to appointments by picking her up and taking her home via uber ( I don't drive, nor have a car). Soon, she didn't even have the strength to climb into a car; soon she could barely walk to the bathroom. I hope no one has to ever feel the terror I felt every day knowing that I won't be able to take care of her when she can no longer move. I was working with the als association on getting her a wheelchair etc. but she died before we even got it.

What I learned is utterly heartbreaking and that's why I want people to know: Als patients are usually cared for by family in a one's family home. Being a caregiver is the hardest job but most do it because they can not afford private nurse care.

She couldn't live with me as I lived on the 2nd floor and her condo was beyond tiny but two weeks before she died, I moved in with my big dog. I knew she would have to leave the condo and go somewhere she can be safe and cared for. Assisted living and nursing homes can not and will not take ALS patients. With the help of a senior broker I learned that there are private homes that are accredited to take patients with ALS or other things like Parkinson's. These homes cost upwards of $15K a month. Sometimes the lowest they can be is just under $10K a month but not in big cities. In my city it is $15 to $18K A MONTH. If you have Medicare you may be able to get into one of these places but have to wait until a bed opens up but if you are paying with cash, you can get a room. My sister and I had some inheritance money so it could pay for her to be there for a year or so but when the money runs out, if you're on Medicare, it will kick in but you will probably be moved to a shared room.

I had to tell my sister all this and it was so horrible. I had to tell her that she wouldn't be able to take her dog with her. One day she could not even get off the couch to use the restroom; that is when I moved in. Then she got covid and went to the hospital and never came home. I gave her covid and I still feel guilty about that. The muscles in her eyes stopped working while in the hospital and she could not keep them open and when I asked the neurologist why he told me told me it was the disease progressing and she had days to live.

At this point she and I were communicating via paper and pen in the hospital and I had to help her hold the pen to write notes to me. She wrote "so, is this the end?" and I cried as I told her it was. A few days later she was gone. But I slept in the hospital room with her and was at her beside when she took her last breath. I remember thinking I couldn't watch her take her last breath as I had watched my mom's last breaths only two years earlier. As painful as those memories are, I am grateful I could be present.

Please don't criticize Jenny and sumit for making a GFM. I made one when I was caring for my sister. You don't have to give but please don't judge. I constantly think about the extreme sorrow and fear my sister had to live with for a year and a half and I have PTSD from watching her die a little every day. Not all soulmates are romantic and she was absolutely my soulmate.

Please don't say anything rude to me. I am just educating so people can better understand what she and her family are facing.

A year after my sister died my non profit laid me off ( I hate those fuckers for doing that to me as I have no family to lean on now) and then two weeks later my precious dog died. But I try to live everyday grateful for life.

ALS research needs to be better funded but guess who ripped all government money from that? I pray that a cure or real treatment comes one day.

reddit.com
u/Georginarothko — 3 months ago

I apologize, but I can't remember her name? There was one presumed victim that LE said she likely died from exposure to the weather.

And is the same woman who made phone calls for help? And is she included in his admission of guilt?

I have loosely followed this so can't remember her name.

reddit.com
u/Georginarothko — 4 months ago