u/Grumpy_bonsai23

Looking for nutritionists that help balance vitamins and minerals. Would want them to be able to order blood work, and to know about optimal levels and what supplements to prescribe.

Was taking 500 mg for migraines for 2 years and it stopped working. Keep trying to increase dose and it works for a little bit but then stops working again. Wondering if I have to keep increasing it. I’ve read on Reddit that some people are on 1000 mg for migraines/mental health and feel ok. Others on here say it’s unsafe and you shouldn’t go past 800 mg or less. Online says it’s even less that’s safe. I’m considering asking my neurologist.

Anyone know the correct answer? I don’t want to increase it if it will put my health at risk. Would love to hear from people who are on higher doses long term, and medical professionals who know the answer.

Even tiny amounts hurt. Really need to find a way to take it for chronic migraines, mthfr mutations and slow comt.

Any suggestions?

Looking for stories of people who have recovered or gotten significant better from both mutations. How did you get better/ what were your symptoms? I need hope! My life would change so much if I could finally get this under control.

Also looking to hear what people are taking/what has helped even if you’re not 100% better.

I’ve known I had homozygous mthfr for a while. I got tested because I had fibromyalgia, depression, anxiety, obsessive thoughts/rumination and hypothyroidism. Initially took methyl folate and felt terrible. This was a while back before I knew I had slow comt and had reddit/ chat gpt so had no idea that none methyl b vitamins even existed.

For ten years my health has been going downhill. It feels like every year or couple of years it’s something new. I started having chronic migraines about 5 years ago. Magnesium helped to get rid of them. I had no idea until recently how important it is for both mutations. It also helped chill me out so much mentally. Depression, anxiety and rumination are a lot better. It’s really nice to see that it’s all connected and not random.

My b12 started to get low about 6 months ago and I supplemented with methyl b12. My migraines came back. I had to stop the methylb12. That’s when I started doing more research and discovered the slow comt. It explained so much!

I’m currently experimenting with all the supplements I’m supposed to take for both mutations. The most important thing is to get my migraines under control. I’m currently taking a very low dose of b2 r5p. It makes me feel a bit brain foggy but I’m going to keep at it. I haven’t had a headache since I started (even through its supposed to take longer to work for that I know). But hopefully I’m on the right track.

Is this a normal initial reaction? I’m starting out with a very low dose and still feel it.

I have slow comt and homozygous mthfr mutation.

Thanks! Really need recommendations.

Been dealing with migraines for 5 months after taking methyl b12. I stopped taking it about 3 months ago but the migraines haven’t stopped. I’m pretty sure I’ve been dealing with overmethylation. I have homozygous mthfr and slow comt.

I started low dose niacin and I think it may be working. Is it safe to take every day until my headaches go away?

It’s hard finding low dose niacin and I read rapid release is the best option for over methylation. Not sure if this is true or not.

There’s a lot of tablets and I think capsules are rapid release?

Would appreciate recommendations. Thanks!

I’m a 40 year old woman and I haven’t been diagnosed but pretty sure I have adhd. I definitely have the high sensitivity trait. Ever since I was a little girl I struggled finding comfortable shoes. Over the last few years it seems that my sensitivities have increased, or shoe quality has gone down. I pretty much only try comfort shoe brands.

I used to be able to find comfortable shoes after trying a few different pairs. But now no shoe is comfortable enough. I end up kept old shoes that are falling apart. I think what makes it worse is that everything is online now. Before I could go into a shoe store and try as many shoes as I wanted so i would eventually find ones that were comfortable.

Not sure what to do. I have read that perimenopause can make adhd worse so wondering if that could be behind an increase in these sensory changes.

Any tips? Not sure if getting suggestions for brands would help bc not sure if all adhd/highly sensitive people find the same shoes comfortable.

Anyone have good experiences? Thanks.