Undiagnosed illness

​

• Neck pain, headaches and migraines

Anterior pelvic tilt appeared after walking

Numbness in the hands and cramps in the legs

Dizziness

Tinnitus

Heart palpitations

Blurred vision

Weight loss

Loss of appetite

Numbness waking me up during sleep

Inability to walk

Back pain (improved after several months of rest)

• Nausea. Frequent vomiting

• Numbness in both arms and both legs

• Tingling

Severe and constant pain in the legs

Burning sensation/pain in the legs/arms

Weakness in the arms and legs

Muscle stiffness

• Muscle fasciculations

Feeling of sleeping on cotton

Extreme fatigue

Fatigue when chewing

Blurry vision when tired

Unable to climb stairs or lift from chair when tired

Pain and weakness improves with rest

RECENT SYMPTOMS

Neck pain after tired

Loss of voice

Shortness of breath

Falling backward

Gastro intestinale/allergy symptoms:

Lost weight/loss of appetite

Allergy to odors, perfume, chemical products >> migraine

Allergy to liquid soap, chemical products >> eczema

Allergy to eye makeup \_ cream >> swelling of the eyes

Swelling of the face, including the lips

Allergy to chalk, dust > Sneezing \_ fever \_ runny nose

Allergy to foods >> Soft stools / nocturnal diarrhea

\+ sweating + heart palpitations

Reaction to medications (even at half dose)>>

Fever, vomiting + diarrhea+ pain

reddit.com
u/Jaded_Smoke_5338 — 9 days ago

Undiagnosed illness

​

• Neck pain, headaches and migraines

Anterior pelvic tilt appeared after walking

Numbness in the hands and cramps in the legs

Dizziness

Tinnitus

Heart palpitations

Blurred vision

Weight loss

Loss of appetite

Numbness waking me up during sleep

Inability to walk

Back pain (improved after several months of rest)

• Nausea. Frequent vomiting

• Numbness in both arms and both legs

• Tingling

Severe and constant pain in the legs

Burning sensation/pain in the legs/arms

Weakness in the arms and legs

Muscle stiffness

• Muscle fasciculations

Feeling of sleeping on cotton

Extreme fatigue

Fatigue when chewing

Blurry vision when tired

Unable to climb stairs or lift from chair when tired

Pain and weakness improves with rest

RECENT SYMPTOMS

Neck pain after tired

Loss of voice

Shortness of breath

Falling backward

Gastro intestinale/allergy symptoms:

Lost weight/loss of appetite

Allergy to odors, perfume, chemical products >> migraine

Allergy to liquid soap, chemical products >> eczema

Allergy to eye makeup _ cream >> swelling of the eyes

Swelling of the face, including the lips

Allergy to chalk, dust > Sneezing _ fever _ runny nose

Allergy to foods >> Soft stools / nocturnal diarrhea

+ sweating + heart palpitations

Reaction to medications (even at half dose)>>

Fever, vomiting + diarrhea+ pain

reddit.com
u/Jaded_Smoke_5338 — 9 days ago

Asking about a symptom!

Does b12 deficiency causes intenese muscle weakness and pain in both legs and arms that get worse with minimum effort or walking ?and improves after you rest for hours or days?

reddit.com
u/Jaded_Smoke_5338 — 12 days ago

Question

Myasthenia gravis cause breathing symptoms

So is it a respiratory problem as if you go to the pneumologist you will find something wrong in RFT or is it just tightness and nothing shows up ?

reddit.com
u/Jaded_Smoke_5338 — 12 days ago

doctors and family blaming my illness for not being married

So I've been chronically sick since 2014 started with daily headache and migraines and gi issues and then developed neurological symptoms that progressed over time

I've been seeing doctors and each time i tell them my symptoms the first thing they ask is why I'm not married and they say I'm not sick and it's all in my head it's depression

And no my family are convinced that it's all because im single

My tests are abnormal emg (myelopathy ) Homocysteine 30 and Ferritin 6 and they dismissed all these tests because my mri is normal <only one doctor gave me b12 injection >

I was having a very healthy life before my health decline in 2024 i was eating healthy workout dancing do medication yoga and i had good social circle going out all the time and having fun and enjoying life

Now i don't know what to do if left without diagnosis !

reddit.com
u/Jaded_Smoke_5338 — 12 days ago
▲ 5 r/MCAS

I need help

I went to a pneumologist for my allergy symptoms and he referred me to an internist and he told me that my nervous system is dysregulated and that i need to do a breathing 3 times a day in order to heal 😐

Ps my symptoms are migraine and intense gastrointestinal issues and facial swelling and i react to food ,medication and chemical odors / products and bee products and dust

reddit.com
u/Jaded_Smoke_5338 — 18 days ago

Update

Vitamin b 12 was 300 and Ferritin was 6 then i started taking iron pills and Vitamin b12 injection for a month and half now and my b12 is > 1000 and Ferritin 40 . Isn't ferritin supposed to be lower instead of raising ?

reddit.com
u/Jaded_Smoke_5338 — 19 days ago

Confused

So i went to hematologist today and she told me that b12 = 350 is not deficient and he is not to blame for my neurological symptoms. I asked why my Homocysteine is high 30 then and she said it is because you have inflammation.mind you all my blood test for inflammation are negative.so she proposed to re test my b12 and said if it's not low she will confirm I don't have deficiency

Ps: i have been taking injection for a month and half now so logically it's going to be high i don't understand her logic

reddit.com
u/Jaded_Smoke_5338 — 20 days ago

Neurological symptoms

Female 38 . Been mostly bedridden for a year one .been diagnosed one month earlier with vitamin b 12 deficiency after years of seeing doctors. I started injection but seems to get worse .my symptoms started more than 10 years ago and just kept worsening.

Objectif finding :

Compression without myelopathy

H pylori and chronic gastritis

Homocysteine 30

Ferritin 6

Hemoglobin 11.3

ENMG/PES interpreted as showing:

Pyramidal syndrome.

Central corticospinal pathway dysfunction.

Posterior column pathway abnormalities.

A myelopathy-like pattern.

No evidence of peripheral neuropathy.

No evidence of myopathy.

No evidence of chronic polyradiculoneuropathy on the studies you posted.

Emg doc conclusion :Electrophysiological findings suggest a dorsolumbar myelopathy involving the anterior and posterior spinal cord columns, of an axonal-demyelinating nature (with bilateral involvement of the anterior and posterior cord pathways). Correlation with biological/laboratory data is recommended (degenerative myelopathy or myelopathy secondary to another etiology?).

My symptoms :

IBS since childhood

2014:

3 wisdom teeth removal

Constant headaches and frequent migraines

2015:

Healthy diet and IBS cured

Neck pain, headaches, and migraines

March 2016:

Anal fissure surgery

09/2016:

Leg pain

2017:

Anterior pelvic tilt started after walking

Allergy to chemicals

Hand numbness and leg cramps Vertigo

• One year vegan or vegetarian diet

•....

Tinnitus

Heart palpitations Blurry vision

Food intolerance?

Medication intolerance?

Up to 2023:

Walking distance reduced

Stopped working out

• Loss of appetite

Weight loss

2023:

Eye allergies and facial swelling

Numbness that woke me up from sleep

2025:

Unable to walk

• Back pain (relief after months of rest)

Nausea

Frequent vomiting and stomach illness

• Numbness in both arms and both legs Tingling

Severe constant leg pain

Severe burning sensation

next to the leg pain

• Arm and leg weakness

Muscle stiffness

Muscle twitching

Feeling like sleeping on cotton Extreme fatigue

Recent symptoms:

Neck feels tired and painful after walking

Loss of voice

Shortness of breath

Falling backwards

reddit.com
u/Jaded_Smoke_5338 — 1 month ago

Neurological symptoms

Female 38 . Been mostly bedridden for a year one .been diagnosed one month earlier with vitamin b 12 deficiency after years of seeing doctors. I started injection but seems to get worse .my symptoms started more than 10 years ago and just kept worsening.

Objectif finding :

Compression without myelopathy

H pylori and chronic gastritis

Homocysteine 30

Ferritin 6

Hemoglobin 11.3

ENMG/PES interpreted as showing:

Pyramidal syndrome.

Central corticospinal pathway dysfunction.

Posterior column pathway abnormalities.

A myelopathy-like pattern.

No evidence of peripheral neuropathy.

No evidence of myopathy.

No evidence of chronic polyradiculoneuropathy on the studies you posted.

Emg doc conclusion :Electrophysiological findings suggest a dorsolumbar myelopathy involving the anterior and posterior spinal cord columns, of an axonal-demyelinating nature (with bilateral involvement of the anterior and posterior cord pathways). Correlation with biological/laboratory data is recommended (degenerative myelopathy or myelopathy secondary to another etiology?).

My symptoms :

IBS since childhood

2014:

3 wisdom teeth removal

Constant headaches and frequent migraines

2015:

Healthy diet and IBS cured

Neck pain, headaches, and migraines

March 2016:

Anal fissure surgery

09/2016:

Leg pain

2017:

Anterior pelvic tilt started after walking

Allergy to chemicals

Hand numbness and leg cramps Vertigo

• One year vegan or vegetarian diet

•....

Tinnitus

Heart palpitations Blurry vision

Food intolerance?

Medication intolerance?

Up to 2023:

Walking distance reduced

Stopped working out

• Loss of appetite

Weight loss

2023:

Eye allergies and facial swelling

Numbness that woke me up from sleep

2025:

Unable to walk

• Back pain (relief after months of rest)

Nausea

Frequent vomiting and stomach illness

• Numbness in both arms and both legs Tingling

Severe constant leg pain

Severe burning sensation

next to the leg pain

• Arm and leg weakness

Muscle stiffness

Muscle twitching

Feeling like sleeping on cotton Extreme fatigue

Recent symptoms:

Neck feels tired and painful after walking

Loss of voice

Shortness of breath

Falling backwards

reddit.com
u/Jaded_Smoke_5338 — 1 month ago
▲ 5 r/B12_Deficiency+1 crossposts

Neurological symptoms

Female 38 . Been mostly bedridden for a year one .been diagnosed one month earlier with vitamin b 12 deficiency after years of seeing doctors. I started injection but seems to get worse .my symptoms started more than 10 years ago and just kept worsening.

Objectif finding :

Compression without myelopathy

H pylori and chronic gastritis

Homocysteine 30

Ferritin 6

Hemoglobin 11.3

ENMG/PES interpreted as showing:

Pyramidal syndrome.

Central corticospinal pathway dysfunction.

Posterior column pathway abnormalities.

A myelopathy-like pattern.

No evidence of peripheral neuropathy.

No evidence of myopathy.

No evidence of chronic polyradiculoneuropathy on the studies you posted.

Emg doc conclusion :Electrophysiological findings suggest a dorsolumbar myelopathy involving the anterior and posterior spinal cord columns, of an axonal-demyelinating nature (with bilateral involvement of the anterior and posterior cord pathways). Correlation with biological/laboratory data is recommended (degenerative myelopathy or myelopathy secondary to another etiology?).

My symptoms :

IBS since childhood

2014:

3 wisdom teeth removal

Constant headaches and frequent migraines

2015:

Healthy diet and IBS cured

Neck pain, headaches, and migraines

March 2016:

Anal fissure surgery

09/2016:

Leg pain

2017:

Anterior pelvic tilt started after walking

Allergy to chemicals

Hand numbness and leg cramps Vertigo

• One year vegan or vegetarian diet

•....

Tinnitus

Heart palpitations Blurry vision

Food intolerance?

Medication intolerance?

Up to 2023:

Walking distance reduced

Stopped working out

• Loss of appetite

Weight loss

2023:

Eye allergies and facial swelling

Numbness that woke me up from sleep

2025:

Unable to walk

• Back pain (relief after months of rest)

Nausea

Frequent vomiting and stomach illness

• Numbness in both arms and both legs Tingling

Severe constant leg pain

Severe burning sensation

next to the leg pain

• Arm and leg weakness

Muscle stiffness

Muscle twitching

Feeling like sleeping on cotton Extreme fatigue

Recent symptoms:

Neck feels tired and painful after walking

Loss of voice

Shortness of breath

Falling backwards

reddit.com
u/Jaded_Smoke_5338 — 1 month ago