u/LuxInTenebrisLove

The new data dashboard is out with the latest update. It looks promising. I can see many places that will likely be improved as we go along. It's a great first start at giving us better access to our symptoms, vitals, and meds logs.

Some notes from my experience so far:

1. I keep having to click load more for symptoms and other factors. It looks like the default is showing 5 symptoms/factors first and adding some more with each click of "show more." I feel like the default symptoms Visible starts with is more than 5 and it would be nice if it showed at least that many symptoms initially, and then showed more with each click of "load more" than it is currently. It took a while to load, and seemed a bit finicky. When it wouldn't load, I would visit another part of the dashboard, go back and then things seemed to load.
2. The graphing feature is neat! However, it only shows those first 5 symptoms to select from and I do not yet see a way to find and show other symptoms. There is no "load more" in this section.
3. The dashboard needs a computer to display everything. Maybe if we set our mobile browser to "desktop view" we can look at the dashboard from our phones? Otherwise I navigated to the dashboard by copying the link, opening my email app and drafting an email to myself. From my laptop, I opened my email and clicked on the link. I had first tried to just type the url into my desktop browser, but there were too many letters, and I made mistakes when I tried, so then email was the way I got it to work.

Bravo, Visible! Thanks for adding this feature!

ETA this screenshot of google play app update screen

https://preview.redd.it/uy5k4dw5cysh1.jpg?width=1080&format=pjpg&auto=webp&s=46a567da635469c9536841bb214e6b7c6543d674

The stabilty score layout now has unreadably small fonts. The messaging to the team has low contrast between the text and bubble backgound color of me message and the trends tab!!! As you scroll the graphs keep changing quickly, which is terrible for me who has migraine sensistivity from flashing visual stimulus, and then there's a thing green line around the screen which is an unwelcome light sourse, another migraine trigger.

Do they do any testing with usera before they roll out their changes?

This was a terrible thing to wake up to this morning. Checking visible from bed is the first thing I do in the morning, when I still need my room dim and haven't reached for my glasses.

eta - the thin green line disappeared, so I dont know what I was seeing

Hi, all! Samsung Health used to give a measurement of 'time that blood ox was below 90% during sleep'. One of their updates this year removed it.

Does anyone have a fitness tracker that records this sleep metric?

I find this data point sensitive to illness and medication changes and have been using it as one of the metrics I keep in a spreadsheet for trending purposes. My workaround is that I uninstalled the Samsung Health update and side loaded an older version of the app. But now I think it's time to move to another fitness tracker.

Thank you for your time if you're willing to share. Would love to hear both which trackers measure this and which do not! Thanks again!!

A few months ago I got fed up with Samsung Health updates that broke the functions I was using and installed an older APK where I could still get overnight blood ox average, low point, and time below 90%.

The app on the watch itself seems to be newer. The colors changed recently and look like what I'm seeing in images of the newer update.

I'm thinking about updating to a newer version on my phone. If you're using an older APK, which one did you choose and why?

I've watched the recent walk through videos, and I've been reading posts in the in-app Community tab. The Community tab seems to be low traffic and the app developers sound a bit overwhelmed right now so I'm going to ask some questions here and hope it gets to people with experience on this topic.

I'm on day 24 of the 30-day calibration phase. The walkthrough videos show a daily planner, and some of the posts in the Community tab show images of a graph with heart rate through the day. I cannot find either of these in my app. Does anyone know if I'll be able to see these once the calibration period is over?

Also, I have suspicion that the app is not receiving regular heart rate data from my watch. My energy budget ring almost never moves. And twice now, I've look at the app while I've been active and the ring will have turned orange and show I've used half my budget, but later in the day, the ring is back to almost whole again as if I didn't use any energy earlier in the day. I also have never received any warning notifications about heart rate (while at the same time I'm getting notifications from Visible). Is anyone else with a Samsung Watch experiencing this?

Last question: The walkthrough app begins and the narrator says "Chapter 4." Where is the video with chapters 1-3?

After two years of asking Visible for a better trends section of the app, I'm giving up and I'm going to hire a freelancer to make one for me. I've probably spent 20 hours on and off trying to work with my CSV data. I tried the template that was shared on the Facebook group. I don't have the skills or software and I don't have enough available concentration to learn what I need.

Has anyone hired a freelancer to make them a data dashboard for their Visible data? I'm asking in case there's a freelancer out there who has done this before and I can go to them.

If I hire someone, I'll share how it went.

(I'm not able to answer questions about the Trends tab and what it needs, nor about what I have already tried.)

Just putting this out there in case anyone else is having trouble with their Withings smart scale.

A few weeks ago, my scale stopped syncing with my Withings app, but I didn't notice until a couple days ago. The Air Quality button also stopped working. Today I had time to do some tech support and finally got it back to syncing - although I lost a couple weeks of data, but it's not the end of the world.

I tried all the things!! All the support articles I could find, etc. etc. etc. I'm not saying all the steps below are necessary, just that this is the order of events that finally led to reconnection for me:

1. Took out scale's batteries and reinstalled after a couple minutes

2. Cleared cache and data of Withings app, and uninstalled

3. Restarted my phone and reinstalled the Withings app.

4. Logged into the app, reconnected to my network. Then in the setup was a popup to connect to Samsung Health (which had not shown up in my tech support efforts previous to this).

5. The Withings app required me to Allow All to the data read/write permissions with Samsung Health, I couldn't pick and choose like I normally do because there was no way to move forward without allowing all. (I tried many ways)

6. Took a weight measurement, which did not show a signal failure like it had been doing, which was something like this: 📶X next to the weight measurement

7. Fumed in the 2 minutes it took for the measurement to finally show up in my Withings App (what is this soviet russia?) (an old joke)

8. Checked the Air Quality button and it is working again!

So I hope this helped anyone who had this problem recently after Health updates. And if not, I hope I didn't waste too much of your time.

15-20 years ago I watched a documentary about volcanos. I remember it focused in part on erruptions in the Phillipines and what conditions caused a particular erruption to be so devastating to people living near the volcano.

They discussed well known volcanic activity - explosions, ash clouds and the ash fall that comes later, lava flows. Ash clouds and fall are a slow moving disatster. Lava, even when flowing quickly is slower enough that people usually have time to flee. They described how super heated ash and rock can flow down the mountainside at very high speeds that people cannot outrun, and vehicles may not be able to outrun either.

They called the phenomenon "pyroplastic" and even explained what was meant by "plastic"...that the flow was not a liquid like lava, it was composed of ash and rock (solid matter) and gas but together it flowed like a liquid. It didn't act like a solid or gas, but was plastic meaning flexible and changable.

A couple years ago I started reading about pyroClastic flows. Apparently the word was first used in the 1860s. But for me pyroPlastic was a newer term that this documentary was explaining. I cannot find a single use of "pyroplastic" anywhere, just the offputting pyroclastic with a C. The etymology of that word is pyro- fire and -clast broken. And try as I might to get it, in this context "broken flow" just doesn't make as much sense as "plastic flow."

Also, my husband was with me watching the documentary and he remembers it as pyroplastic too.

I just finished Ripley and every time Dickie's ring is on the screen, it looks to me faintly gold with a reddish stone. It's such a prominent piece of the story, I though maybe the filmakers colorized that on purpose. But I looked very closely and I think it is just greyscale.

And now that I think about it, when I was little I often perceived color in B&W tv shows and movies.

Does anyone else have a brain that adds color?

Asking the hive mind since I have so far been unsuccessful finding a local restaurant that serves it. Thanks for your help!

Background: Surgically implanted vagus nerve stimulators have been FDA approved to treat epilepsy and depression for more than 20 years. Even though they have been proven to treat those conditions, the mechanism of action as to HOW they do that isn't well understood. There's some compelling evidence that VNS somehow reduces hidden inflammation in the body and that reduction in inflammation may be the cause of improvement. Inflammation of the brain and body is a concern with Long Covid.

Question: I am wondering if anyone here has received an implanted vagus nerve stimulator for epilepsy or depression and found that it helped your long covid symptoms too? Or conversely, it did nothing or made things worse?

(There's a newish book called "The Great Nerve" that deals with this subject, for anyone looking for more information)

We we got home in the evening yesterday, our tap water tasted strongly of chlorine. Before we noticed, a sip for me and a swallow for a family member gave us stomach pain for an hour.

Never experienced this in 14 years in the city.

Anyone else? Anyone with insight here?

For me, I always leave a building before using a totem or the Scepter of Return. If feels so rude to cause a noisy implosion of air (what I imagine happens when something instantly disappears) inside a home or business!

I've been sick for a while. Maybe it's a post viral illness brought on by COVID, maybe it's POTS, there've been several other culprits considered by my medical team. In the last six months, it looks like I may be developing some kind of MCAS reactions in my skin. My dermatologist said the rash was a histamine reaction and I have mild dermatographia, so I have that much for official diagnosis at the moment. Currently we're investigating neurology issues. But there aren't any answers and I'm a bit adrift.

Anyway, when you look back to when you were new to MCAS, what do you wish you had known?

This is my third move since the beginning of my symptoms. I was miserable but functional for the first. I had a collapse midway through the second, and basically sat under a blanket on the couch and weakly directed where things should go. Even the movers were very concerned. This move, I have been very scared that I might push myself too hard and permanently injure myself. Whether its unreasonable or not, I also feared a heart attack.

I have been mostly good about not pushing to injury. Its hard to have to rely on my AuADHD family to do a majority of packing, cleaning, unpacking, organizing. They really just dont have a strong skill set for this kind of project. And there are some dysfunctional family dynamics too. So I can make detailed plans spanning days or weeks so no one is overwhelmed by too much labor, but I can't rely on them to follow through, even with many discussions ahead of time where I ask in so many ways "Does this look like something you could do? How can I change the plans to make it easier, better for you? How would you plan this? Oh, it looks good to you and you agree this is a good plan that you are willing to do these things?" But they can't, so even though the bulk of the move happened, the old apartment still has so much left to pack, clean and move.

The pains have mostly been joint pain in my knees, achilles tendon stiffness, and general pain when Im really unwell. I try not to bend down and stand up too often, but its hard to avoid. I haven't passed out, but if I stand too long, I run out of breath, my speech slurs and heavy brain fog comes on.

Today, I stretched my neck, felt a small pop/ click and had mild shooting pain on one side from my neck down to the elbow. I mentioned to my husband it happened and said something like "isn't it annoying when this happens and you have this kind of pain?" And he told me he has never had this kind of pain! For real, this has happened occassionally all my life and I thought it was normal. Now I'm wondering if I have hypermobility issues under my POTS!

The move continues, I am trying so hard to be kind to my body and work within my ability and energy. I hope we can live nicely in our new apartment, but worry that because I'm the mom, everything will continue to fall on me, but because i cannot do much, things will be cluttered and disorganized for a long time to come. They have not stepped up, even though I've stopped doing everything.