Severe EPI and chronic pancreatitis at 22F. Low pancreatic elastase. Extremely worried

I am a 22 year old girl, I have been dealing with chronic pancreatitis and chronic cholecystitis and bile sludge for past 4.5 years. It all started when I was 17. I am also depressed and have been depressed for past 10 years. Only recently my depression eased and i have been able to get my health into my hands and start working on it.

My pancreatic elastase stool test came back at 90.

I get diarrhoea without creon. I have been put on 50,000-75,000 creon per meal. My stool looks very stiff and weird and lumpy despite coming out as sausage.

Ultrasound shows diffused pancreas changes, mild bile sludge, gallbladder kink. The pancreas is normal size, shape, borders, but is patchy increased echogenicity, while the overall structure and granular texture are preserved.

I am extremely worried about my future and wellbeing. My skin is very dry, my eyes are dry and i feel like i am malnourished and lack lipids/fats, lack all vitamins despite being normal weight. I have been gradually losing weight, might be related to eating less too, but i am scared it’s pancreatitis.

For the past 4 years i have been having constant pain in the back and stomach, right where my pancreas is. Pain is about 3-4/10, it is noticeable. it doesn’t disrupt my sleep or distract me from work/study. I also feel burning sensations/weird discomfort in the same area.

I never had acute pancreatitis. Even when i had flare ups and was in severe pain, i never had elevated amylase or lipase. I have never drank alcohol or smoked in my life. I have gotten flare up about once in a year, by flare ups i mean a lot of pain and mild fever, amylase/lipase was never elevated even with testing multiple times.

I am very afraid to get diabetes, getting more malnourished and i am afraid to lose life quality and living a normal life.

I have only one pancreas and it’s scary to think about how my pancreas cells will not recover. I have 50-60 years to live, i’m so young i have my entire life ahead.

I assume my pancreatitis started with missing meals, i have adhd and autism so it’s very difficult to feed myself and eat at time. I don’t have any appetite and all i want to eat is junk food, which I can’t eat. Any food with a bit of higher fat sends me into pain. Tbh i didn’t have particularly unhealthy diet, but rather skipping meals, never eating breakfast/lunch and eating more in the evening.

I have been working with gastroenterologist, celiac disease ruled out, no helicobacter, no lactose intolerance. Upper endscopy was clear. Currently waiting parasite testing results. Blood tests look normal except mild anemia, protein levels are lowish.
Pee has 1.5 ketones.

I feel very fatigued and weak.

Currently taking creon 50-75K per meal, duspatalin(mebeverin 200mgx2), ursofalk 500mg, lactobacteria supplements, iron IV infusions venofer. Height 5’9, weight 128 lbs.

What should i do? I feel so lonely and lost and very worried. What should i work on? What should i tell my gastroenterologist?

reddit.com
u/Maximum-Chemistry-27 — 12 hours ago

Severe EPI and chronic pancreatitis at 22F. Low pancreatic elastase. Extremely worried

I am a 22 year old girl, I have been dealing with chronic pancreatitis and chronic cholecystitis and bile sludge for past 4.5 years. It all started when I was 17. I am also depressed and have been depressed for past 10 years. Only recently my depression eased and i have been able to get my health into my hands and start working on it.

My pancreatic elastase stool test came back at 90.

I get diarrhoea without creon. I have been put on 50,000-75,000 creon per meal. My stool looks very stiff and weird and lumpy despite coming out as sausage.

Ultrasound shows diffused pancreas changes, mild bile sludge, gallbladder kink. The pancreas is normal size, shape, borders, but is patchy increased echogenicity, while the overall structure and granular texture are preserved.

I am extremely worried about my future and wellbeing. My skin is very dry, my eyes are dry and i feel like i am malnourished and lack lipids/fats, lack all vitamins despite being normal weight. I have been gradually losing weight, might be related to eating less too, but i am scared it’s pancreatitis.

For the past 4 years i have been having constant pain in the back and stomach, right where my pancreas is. Pain is about 3-4/10, it is noticeable. it doesn’t disrupt my sleep or distract me from work/study. I also feel burning sensations/weird discomfort in the same area.

I never had acute pancreatitis. Even when i had flare ups and was in severe pain, i never had elevated amylase or lipase. I have never drank alcohol or smoked in my life. I have gotten flare up about once in a year, by flare ups i mean a lot of pain and mild fever, my blood tests didn’t show any inflammation and amylase/lipase was perfect despite testing multiple times.

I am very afraid to get diabetes, getting more malnourished and i am afraid to lose life quality and living a normal life.

I have only one pancreas and it’s scary to think about how my pancreas cells will not recover. I have 50-60 years to live, i’m so young i have my entire life ahead.

I assume my pancreatitis started with missing meals, i have adhd and autism so it’s very difficult to feed myself and eat at time. I don’t have any appetite and all i want to eat is junk food, which I can’t eat. Any food with a bit of higher fat sends me into pain. Tbh i didn’t have particularly unhealthy diet, but rather skipping meals, never eating breakfast/lunch and eating more in the evening.

I have been working with gastroenterologist, celiac disease ruled out, no helicobacter, no lactose intolerance. Upper endscopy was clear. Currently waiting parasite testing results. Blood tests look normal except mild anemia, protein levels are lowish.
Pee has 1.5 ketones.

I feel very fatigued and weak.

Currently taking creon 50-75K per meal, duspatalin(mebeverin 200mgx2), ursofalk 500mg, lactobacteria supplements, iron IV infusions venofer. Height 5’9, weight 128 lbs.

What should i do? I feel so lonely and lost and very worried. What should i work on? What should i tell my gastroenterologist?

reddit.com
u/Maximum-Chemistry-27 — 12 hours ago

Severe EPI and chronic pancreatitis at 22F. Extremely worried

I am a 22 year old girl, I have been dealing with chronic pancreatitis and chronic cholecystitis and bile sludge for past 4.5 years. It all started when I was 17. I am also depressed and have been depressed for past 10 years. Only recently my depression eased and i have been able to get my health into my hands and start working on it.

My pancreatic elastase stool test came back at 90.

I get diarrhoea without creon. I have been put on 50,000-75,000 creon per meal. My poop looks very stiff and weird and lumpy despite coming out as sausage.

Ultrasound shows diffused pancreas changes, mild bile sludge, gallbladder kink and shape deformity. The pancreas is normal size, shape, borders, but is patchy increased echogenicity, while the overall structure and granular texture are preserved.

I am extremely worried about my future and wellbeing. My skin is very dry, my eyes are dry and i feel like i am malnourished and lack lipids/fats, lack all vitamins despite being normal weight. I have been gradually losing weight, might be related to eating less too, but i am scared it’s pancreatitis.

For the past 4 years i have been having constant pain in the back and stomach, right where my pancreas is. Pain is about 3-4/10, it is noticeable. it doesn’t disrupt my sleep or distract me from work/study. I also feel burning sensations/weird discomfort in the same area.

I never had acute pancreatitis. Even when i had flare ups and was in severe pain, i never had elevated amylase or lipase. I have never drank alcohol or smoked in my life. I have gotten flare up about once in a year, by flare ups i mean a lot of pain and mild fever, my blood tests didn’t show any inflammation and amylase/lipase was perfect despite testing multiple times.

I am very afraid to get diabetes, getting more malnourished and i am afraid to lose life quality and living a normal life.

I have only one pancreas and it’s scary to think about how my pancreas cells will not recover. I have 50-60 years to live, i’m so young i have my entire life ahead.

I assume my pancreatitis started with missing meals, i have adhd and autism so it’s very difficult to feed myself and eat at time. I don’t have any appetite and all i want to eat is junk food, which I can’t eat. Any food with a bit of higher fat sends me into pain. Tbh i didn’t have particularly unhealthy diet, but rather skipping meals, never eating breakfast/lunch and eating more in the evening.

I have been working with gastroenterologist, celiac disease ruled out, no helicobacter, no lactose intolerance. Upper endscopy was clear. Currently waiting parasite testing results. Blood tests look normal except mild anemia, protein levels are lowish.
Pee has 1.5 ketones.

I feel very fatigued and weak.

Currently taking creon 50-75K per meal, duspatalin(mebeverin 200mgx2), ursofalk 500mg, lactobacteria supplements, iron IV infusions venofer.

What should i do? I feel so lonely and lost and very worried. What should i work on? What should i tell my gastroenterologist?

What has been your experience?

reddit.com
u/Maximum-Chemistry-27 — 12 hours ago

I 22F completely lost ability orgasm or feel any sexual pleasure after 3 weeks on antidepressants duloxetine(SNRI) 30 mg. Could this be permanent?

I 22F am taking duloxetine(SNRI) 30 mg for about 3 weeks and i have completely lost ability to orgasm or enjoy sex with my partner. It’s not like i am not attracted to him or don’t want to get intimate, i really want to, just during sex i have fully lost the ability to feel anything, any pleasure and I can’t orgasm at all.

I have been diagnosed with depression, anxiety recently, i have adhd. I do not take any adhd medication, unfortunately anything else than stratterra is banned in my country.

I am very concerned about loss of sexual function. A lot of people online say they have never been able to regain full sexual feeling and the strength of orgasming even after stopping antidepressants. I am worried about being permanent or never fully getting it back and my orgasms being weak.

Is it permanent? What has been your experience?

reddit.com

I 22F completely lost ability orgasm after antidepressants. Could this be permanent?

I 22F am taking duloxetine(SNRI) 30 mg for about 3 weeks and i have completely lost ability to orgasm or enjoy sex with my partner. It’s not like i am not attracted to him or don’t want to get intimate, i really want to, just during sex i have fully lost the ability to feel anything, any pleasure and I can’t orgasm at all.

I have been diagnosed with depression, anxiety recently, i have adhd. I do not take any adhd medication, unfortunately anything else than stratterra is banned in my country, all the stimulants, doctor said she’ll prescribe me atomoxetine later.

I am very concerned about loss of sexual function. A lot of people online say they have never been able to regain full sexual feeling and the strength of orgasming even after stopping antidepressants. I am worried about being permanent or never fully getting it back and my orgasms being weak.

Is it permanent?

reddit.com

I 22F completely lost ability orgasm or feel any sexual pleasure after 3 weeks on antidepressants duloxetine(SNRI) 30 mg. Could this be permanent?

I 22F am taking duloxetine(SNRI) 30 mg for about 3 weeks and i have completely lost ability to orgasm or enjoy sex with my partner. It’s not like i am not attracted to him or don’t want to get intimate, i really want to, just during sex i have fully lost the ability to feel anything, any pleasure and I can’t orgasm at all.

I have been diagnosed with depression, anxiety recently, i have adhd. I do not take any adhd medication, unfortunately anything else than stratterra is banned in my country.

I am very concerned about loss of sexual function. A lot of people online say they have never been able to regain full sexual feeling and the strength of orgasming even after stopping antidepressants. I am worried about being permanent or never fully getting it back and my orgasms being weak.

Is it permanent?

reddit.com

I 22F completely lost ability orgasm or feel any sexual pleasure after 3 weeks on antidepressants duloxetine(SNRI) 30 mg. Could this be permanent?

I 22F am taking duloxetine(SNRI) 30 mg for about 3 weeks and i have completely lost ability to orgasm or enjoy sex with my partner. It’s not like i am not attracted to him or don’t want to get intimate, i really want to, just during sex i have fully lost the ability to feel anything, any pleasure and I can’t orgasm at all.

I have been diagnosed with depression, anxiety recently, i have adhd. I do not take any adhd medication, unfortunately anything else than stratterra is banned in my country.

I am very concerned about loss of sexual function. A lot of people online say they have never been able to regain full sexual feeling and the strength of orgasming even after stopping antidepressants. I am worried about being permanent or never fully getting it back and my orgasms being weak.

Is it permanent?

reddit.com

I completely lost ability orgasm after 3 weeks on antidepressants. Is it permanent?

I 22F completely lost ability orgasm or feel any sexual pleasure after 3 weeks on duloxetine(SNRI) 30 mg. Could this be permanent?

I 22F am taking duloxetine(SNRI) 30 mg for about 3 weeks and i have completely lost ability to orgasm or enjoy sex with my partner. It’s not like i am not attracted to him or don’t want to get intimate, i really want to, just during sex i have fully lost the ability to feel anything, any pleasure and I can’t orgasm at all.

I have been diagnosed with depression, anxiety recently, i have adhd. I do not take any adhd medication, unfortunately anything else than stratterra is banned in my country, all the stimulants, doctor said she’ll prescribe me atomoxetine later.

I am very concerned about loss of sexual function. A lot of people online say they have never been able to regain full sexual feeling and the strength of orgasming even after stopping antidepressants. I am worried about being permanent or never fully getting it back and my orgasms being weak.

Is it permanent?

reddit.com

I 22F completely lost ability orgasm or feel any sexual pleasure after 3 weeks on duloxetine(SNRI) 30 mg. Could this be permanent?

I 22F am taking duloxetine(SNRI) 30 mg for about 3 weeks and i have completely lost ability to orgasm or enjoy sex with my partner. It’s not like i am not attracted to him or don’t want to get intimate, i really want to, just during sex i have fully lost the ability to feel anything, any pleasure and I can’t orgasm at all.

I have been diagnosed with depression, anxiety recently, i have adhd. I do not take any adhd medication, unfortunately anything else than stratterra is banned in my country.

I am very concerned about loss of sexual function. A lot of people online say they have never been able to regain full sexual feeling and the strength of orgasming even after stopping antidepressants. I am worried about being permanent or never fully getting it back and my orgasms being weak.

Is it permanent?

reddit.com
▲ 12 r/AskDocs

I 22F completely lost ability orgasm or feel any sexual pleasure after 3 weeks on duloxetine(SNRI) 30 mg. Could this be permanent?

I 22F completely lost ability orgasm or feel any sexual pleasure after 3 weeks on duloxetine(SNRI) 30 mg. Could this be permanent?

I 22F am taking duloxetine(SNRI) 30 mg for about 3 weeks and i have completely lost ability to orgasm or enjoy sex with my partner. It’s not like i am not attracted to him or don’t want to get intimate, i really want to, just during sex i have fully lost the ability to feel anything, any pleasure and I can’t orgasm at all.

I have been diagnosed with depression, anxiety recently, i have adhd. I do not take any adhd medication, unfortunately anything else than stratterra is banned in my country.

I am very concerned about loss of sexual function. A lot of people online say they have never been able to regain full sexual feeling and the strength of orgasming even after stopping antidepressants. I am worried about being permanent or never fully getting it back and my orgasms being weak.

Is it permanent?

reddit.com

Same vein for all 10 IV iron infusions? Need advice 22F

I 22F was prescribed 100mg venofer 10 iron infusions, 1000mg total dose, 3 times a week over 3.5 weeks. My haemoglobin is 90 and doctor decided to go with IV iron infusions first because I have some GI issues and have issues with absorption(chronic pancreatitis, celiac).

Now the issues has been with my veins, i have only one good vein on my forearm, so on right arm under elbow. Veins on my left arm are very deep and usually have been unsuccessful for any IV attempts all of my life.
Can i keep using the same vein each session? I’m worried about wearing out a single vein that many sticks so close together and I’ve read iron can stain the skin if it leaks. I am extremely scared of iron staining.
I have gotten 6 iron infusions on the same vein over 2 weeks already.

What should I do?

reddit.com
u/Maximum-Chemistry-27 — 8 days ago
▲ 5 r/Anemic

Same vein for all 10 IV iron infusions? Need advice 22F

I 22F was prescribed 100mg venofer 10 iron infusions, 1000mg total dose, 3 times a week over 3.5 weeks. My haemoglobin is 90 and doctor decided to go with IV iron infusions first because I have some GI issues and have issues with absorption(chronic pancreatitis, celiac).

Now the issues has been with my veins, i have only one good vein on my forearm, so on right arm under elbow. Veins on my left arm are very deep and usually have been unsuccessful for any IV attempts all of my life.
Can i keep using the same vein each session? I’m worried about wearing out a single vein that many sticks so close together and I’ve read iron can stain the skin if it leaks. I am extremely scared of iron staining.
I have gotten 6 iron infusions on the same vein over 2 weeks already.

What should I do?

reddit.com
u/Maximum-Chemistry-27 — 8 days ago

Same vein for all 10 IV iron infusions? Need advice 22F

I 22F was prescribed 100mg venofer 10 iron infusions, 1000mg total dose, 3 times a week over 3.5 weeks. My haemoglobin is 90 and doctor decided to go with IV iron infusions first because I have some GI issues and have issues with absorption(chronic pancreatitis, celiac).

Now the issues has been with my veins, i have only one good vein on my forearm, so on right arm under elbow. Veins on my left arm are very deep and usually have been unsuccessful for any IV attempts all of my life.
Can i keep using the same vein each session? I’m worried about wearing out a single vein that many sticks so close together and I’ve read iron can stain the skin if it leaks. I am extremely scared of iron staining.
I have gotten 6 iron infusions on the same vein over 2 weeks already.

What should I do?

reddit.com
u/Maximum-Chemistry-27 — 8 days ago

Same vein for all 10 IV iron infusions? Need advice 22F

I 22F was prescribed 100mg venofer 10 iron infusions, 1000mg total dose, 3 times a week over 3.5 weeks. My haemoglobin is 90 and doctor decided to go with IV iron infusions first because I have some GI issues and have issues with absorption(chronic pancreatitis, celiac).

Now the issues has been with my veins, i have only one good vein on my forearm, so on right arm under elbow. Veins on my left arm are very deep and usually have been unsuccessful for any IV attempts all of my life.
Can i keep using the same vein each session? I’m worried about wearing out a single vein that many sticks so close together and I’ve read iron can stain the skin if it leaks. I am extremely scared of iron staining.
I have gotten 6 iron infusions on the same vein over 2 weeks already.

What should I do?

reddit.com
u/Maximum-Chemistry-27 — 8 days ago