New doctor finally gave me an actual Long COVID treatment plan… has anyone tried something similar?
After almost five years of bouncing between specialists, I finally found a doctor who actually diagnosed me with Long COVID instead of telling me, “Everything looks normal.”
For context, I’ve seen cardiology, pulmonology, neurology, GI, etc. Most of my standard testing has been reassuring, but I still deal with fatigue, PEM, brain fog, air hunger, chest tightness, migraines/visual symptoms, and the usual roller coaster that so many of us know.
This doctor has an MD/DO (not a chiropractor or naturopath), accepts insurance, and also had Long COVID herself. She ordered some testing that most of my previous doctors never did, including a spike protein blood test, and based on everything she put together, her working diagnosis is Long COVID with ongoing immune dysregulation/inflammation.
Her plan is:
-Continue methylene blue (already started)
-Consider Thymosin Alpha-1
-Consider BPC-157
-Start bovine colostrum (Cowboy Colostrum) for gut healing
-Daily iron to get ferritin above 70
-One Brazil nut daily (my reverse T3 was high relative to T3)
-Avoid sesame (confirmed allergy)
-Recheck symptoms in 6 weeks and repeat labs in 3 months
I’m not posting because I think this is the answer. Honestly, after five years, I’ve learned nobody has all the answers. But this is the first doctor who’s actually given me a cohesive plan instead of another referral, and that alone feels like progress.
I'm reaching out to y'all because I'm curious if:
-anyone here tried Thymosin Alpha-1?
-BPC-157?
-colostrum?
-methylene blue?
-treating your Long COVID improve your cholesterol or other inflammatory markers?
-anything in this plan that you’d personally question or wish you’d known beforehand?
I’m planning to give this an honest shot, but before I dive in I’d love to hear from people who’ve actually been down a similar road.
Thanks in advance!