▲ 152 r/LongCovid+1 crossposts

New doctor finally gave me an actual Long COVID treatment plan… has anyone tried something similar?

After almost five years of bouncing between specialists, I finally found a doctor who actually diagnosed me with Long COVID instead of telling me, “Everything looks normal.”

For context, I’ve seen cardiology, pulmonology, neurology, GI, etc. Most of my standard testing has been reassuring, but I still deal with fatigue, PEM, brain fog, air hunger, chest tightness, migraines/visual symptoms, and the usual roller coaster that so many of us know.

This doctor has an MD/DO (not a chiropractor or naturopath), accepts insurance, and also had Long COVID herself. She ordered some testing that most of my previous doctors never did, including a spike protein blood test, and based on everything she put together, her working diagnosis is Long COVID with ongoing immune dysregulation/inflammation.

Her plan is:
-Continue methylene blue (already started)
-Consider Thymosin Alpha-1
-Consider BPC-157
-Start bovine colostrum (Cowboy Colostrum) for gut healing
-Daily iron to get ferritin above 70
-One Brazil nut daily (my reverse T3 was high relative to T3)
-Avoid sesame (confirmed allergy)
-Recheck symptoms in 6 weeks and repeat labs in 3 months

I’m not posting because I think this is the answer. Honestly, after five years, I’ve learned nobody has all the answers. But this is the first doctor who’s actually given me a cohesive plan instead of another referral, and that alone feels like progress.

I'm reaching out to y'all because I'm curious if:
-anyone here tried Thymosin Alpha-1?
-BPC-157?
-colostrum?
-methylene blue?
-treating your Long COVID improve your cholesterol or other inflammatory markers?
-anything in this plan that you’d personally question or wish you’d known beforehand?

I’m planning to give this an honest shot, but before I dive in I’d love to hear from people who’ve actually been down a similar road.

Thanks in advance!

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u/Medium_Manager_7635 — 7 days ago

SARS COV 2 AB, TOTAL SPIKE SEMI QN - Test Results

After years and years of being passed from specialist to specialist, I finally started seeing a doctor who looks at health a little more holistically. At my first appointment, we spent 45 minutes going over my symptoms and health history, and at the end she said: "My dear, I think you have something called Long COVID." I laughed because I already knew that, but it was so validating to hear.

She ordered a pretty extensive workup. Most of the labs came back surprisingly normal (to my dismay):
-ANA negative
-ESR 2
-Rheumatoid factor negative
-Normal immunoglobulins (IgG, IgA, IgM)
-Normal thyroid panel (TSH 1.17, Free T4 1.4, T3 96, Reverse T3 18)
-Normal cortisol
-Normal CBC and CMP
-Normal histamine
-Negative HLA-DQ2/DQ8 (celiac genes)
-Normal zinc and iodine

The one result my provider seemed particularly interested in was:
SARS-CoV-2 Spike Antibody (Semi-Quantitative): 920.8
Reference range: <0.8 = negative

She mentioned a theory about some Long COVID patients struggling to clear spike proteins. After talking with ChatGPT, they said even though this number is 1000% higher than the reference range, all this really shows is that my body has been exposed to the virus and has developed antibodies.

I’m trying to understand whether this number is actually unusual in the Long COVID world. I know it confirms I’ve been exposed to COVID/vaccination, but I’m not sure how clinically meaningful the actual value of 920.8 is.

For those who have had similar testing:
-Have you had your spike antibodies checked?
-If so, what were your levels?
-Have any of your doctors used antibody levels to guide treatment or support a Long COVID diagnosis?
-Has anyone heard the “persistent spike protein” explanation from their provider?

I’m not looking for medical advice, just curious how others in the LC community interpret this result and whether it’s considered high, typical, or not very meaningful.

u/Medium_Manager_7635 — 15 days ago

Green, right?

My eyes are blue, and my husband's are hazel. She was born with blue, but she's 9 now, and they've been this color for the last 5 or so years. I always say green... What do y'all think?

u/Medium_Manager_7635 — 24 days ago

Specific Late 90s/Early 2000s Cloud Pattern?

I’m trying to remember a bedding brand (or possibly a specific sheet collection) that was popular with tween girls around in the late 90s/early 2000s.

The sheets had a light blue sky background with repeating puffy white clouds all over them. There were some gray lowlights in the clouds. The clouds were pretty uniform in shape, not realistic sky photography. It was very much that late ’90s/Y2K tween aesthetic.

I remember it being trendy enough that the cloud pattern felt iconic. Multiple friends had the sheets, and I associate it with the same era as Limited Too, Delia’s, inflatable furniture, butterfly clips, etc.

This is driving me absolutely insane because I can picture the sheets perfectly, but I can’t remember a single other detail and no search results are showing up on Google Images. 😅

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u/Medium_Manager_7635 — 25 days ago

Tween Bedding Brand - Light Blue Sheets with Puffy White Clouds

I’m trying to remember a bedding brand (or possibly a specific sheet collection) that was popular with tween girls around in the late 90s/early 2000s.

The sheets had a light blue sky background with repeating puffy white clouds all over them. There were some gray lowlights in the clouds. The clouds were pretty uniform in shape, not realistic sky photography. It was very much that late ’90s/Y2K tween aesthetic.

I remember it being trendy enough that the cloud pattern felt iconic. Multiple friends had the sheets, and I associate it with the same era as Limited Too, Delia’s, inflatable furniture, butterfly clips, etc.

This is driving me absolutely insane because I can picture the sheets perfectly, but I can’t remember a single other detail and no search results are showing up on Google Images. 😅

reddit.com
u/Medium_Manager_7635 — 25 days ago

[TOMT] [90s/2000s Pattern] Tween Bedding Brand - Light Blue Sheets with Puffy White Clouds

I’m trying to remember a bedding brand (or possibly a specific sheet collection) that was popular with tween girls around in the late 90s/early 2000s.

The sheets had a light blue sky background with repeating puffy white clouds all over them. There were some gray lowlights in the clouds. The clouds were pretty uniform in shape, not realistic sky photography. It was very much that late ’90s/Y2K tween aesthetic.

I remember it being trendy enough that the cloud pattern felt iconic. Multiple friends had the sheets, and I associate it with the same era as Limited Too, Delia’s, inflatable furniture, butterfly clips, etc.

This is driving me absolutely insane because I can picture the sheets perfectly, but I can’t remember a single other detail and no search results are showing up on Google Images. 😅

reddit.com
u/Medium_Manager_7635 — 25 days ago

Most Efficient Way to Donate Clothing?

I gained weight after the birth of my second and have 5+ trashbags of all types of women's clothing that no longer fit. It is in good condition, and some pieces are from brands like Madewell, Free People, Abercrombie, etc. My goal is to keep these clothes in use for as long as possible. Having them end up in a landfill is an absolute last resort.

I've considered giving them away through Buy Nothing/Facebook groups, donating to a women's shelter, donating to Goodwill or another thrift store. What I can't figure out is which option is most likely to result in the clothes actually being worn and used, rather than discarded or shipped elsewhere.

For those of you who are knowledgeable about textile waste and donation systems, what has been the most effective route in your experience? Are there organizations or approaches that tend to maximize reuse?
I'd especially love to hear from anyone who has worked in thrift stores, shelters, textile recycling, or related fields. My biggest concern is all the tshirts I'ce accumulated over the last 20 years. Who's going to want those?? 😩

I appreciate your help and expertise so much!! 🤍

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u/Medium_Manager_7635 — 1 month ago

In my 'Oh, How the Mighty Have Fallen' Era ✌🏼

Quick summary of my story:
-Had a baby in Sept. 2021
-Got COVID and my booster vaccine on the same day in Dec. 2021 (mild case)
-Symptoms reached a peak in June 2022 and remained there for a year (most notably high HR, PEM, SOB)
-Throughout it all, I continued to teach and be a mom to young kids
-Summer 2022: extensive testing by cardiologist, neurologist, pulmnologist, and more. Spent thousands. No problems found.
-By approx Dec. 2023, I'd learned how to manage my symptoms well enough that I could live a somewhat normal life just slowed way down
-Present: Right back to square one. Even 15 minutes of moderate activity will send me straight to my bed for a two hour nap. Went on a walk the other day and felt like I was going to pass out. This started maybe a month ago, and I've slowly been getting worse.

Super curious to know if anyone else is on a similar timeline or has a similar trend occur. This last few months have been extra busy for me, but mostly just due to attending my kids' activities.

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u/Medium_Manager_7635 — 1 month ago

[TOMT] Instagram Teacher Influencer from Mid/Late 2010s?

I was BIG into tge LTK culture in the mid/late 2010s, and I'm trying to remember the name of a Instagram fashion/lifestyle influencer from the mid-late 2010s. She was a teacher at one point and used to post a lot of outfit mirror selfies in her classroom, usually in front of her bookshelves.

She had short blonde hair (kind of a bob), had a couple kids, and her style was very boho/modest-ish. She wore a LOT of long maxi skirts with tied up graphic/basic tees. I remember following her mostly for teacher outfits/style content.

I think she eventually quit teaching and moved, maybe to Florida? She wasn’t a huge influencer like Dede Raad level, but definitely big enough to do content full time eventually.

This has been driving me insane for over an hour 😭

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u/Medium_Manager_7635 — 1 month ago
▲ 18 r/tattoos+1 crossposts

Advice Needed: Fine Line Bracelet Possible?

I’ve been thinking about getting a really delicate bracelet tattoo for my daughters and wanted opinions from people who actually know tattoos 😅

The idea is a super thin dotted/beaded bracelet with tiny September + November birthstones worked into it. I want it to look more like subtle jewelry than an obvious tattoo.

My main question is whether tiny “realistic” gemstone details are actually doable at that size, especially long term. I know fresh tattoos and healed tattoos are very different.

Would something like this age okay, or would the stones/details blur together? And do dotted lines tend to hold up better than very thin continuous lines?

I’m trying really hard to keep it soft/simple and not accidentally cross into Pinterest infinity-symbol territory lol

u/Medium_Manager_7635 — 2 months ago