u/PolicyLow6723

Hi everyone,
My baby turned 10 months old today. Two days ago, he had a nasogastric (NG) feeding tube placed because he wasn’t drinking enough formula and wasn’t gaining weight.
He has a genetic condition that is associated with poor appetite, and he also has cow’s milk protein allergy, so he drinks a hypoallergenic formula, which he has always strongly disliked. His milk intake became far too low despite our best efforts, although he was still eating purées reasonably well.
The first day after the NG tube was placed, we only offered formula. He drank a small amount by bottle, as he usually does, and the rest was given through the tube.
Today, we restarted solids. His first meal (rice cereal with fruit purée) went really well. He accepted the spoon, swallowed normally, and barely gagged.
However, at lunch everything changed. He started gagging repeatedly and eventually vomited, so we stopped the meal. At dinner, he gagged again and would keep the food in his mouth without swallowing. After a while, he would simply let it fall out of his mouth instead of swallowing it.
I’m wondering if this is something other parents have experienced after NG tube placement. I assume his throat is probably still irritated and he’s getting used to the foreign sensation, since it’s only been two days, but I’d really appreciate hearing your experiences.
Did your babies gag more or have trouble swallowing solids during the first few days? How long did it take for them to adjust? Is there anything that helped make eating more comfortable while they adapted to the tube?
The whole reason we agreed to the NG tube was because he wasn’t gaining enough weight from poor formula intake. But now I’m worried that if he stops eating solids as well, it will be counterproductive. At 10 months old, a significant portion of his nutrition should already be coming from solids, so I’m hoping this is just a temporary adjustment period.
Any advice or experiences would mean a lot. Thank you.

Hi everyone,
My baby turned 10 months old today. Two days ago, he had a nasogastric (NG) feeding tube placed because he wasn’t drinking enough formula and wasn’t gaining weight.
He has a genetic condition that is associated with poor appetite, and he also has cow’s milk protein allergy, so he drinks a hypoallergenic formula, which he has always strongly disliked. His milk intake became far too low despite our best efforts, although he was still eating purées reasonably well.
The first day after the NG tube was placed, we only offered formula. He drank a small amount by bottle, as he usually does, and the rest was given through the tube.
Today, we restarted solids. His first meal (rice cereal with fruit purée) went really well. He accepted the spoon, swallowed normally, and barely gagged.
However, at lunch everything changed. He started gagging repeatedly and eventually vomited, so we stopped the meal. At dinner, he gagged again and would keep the food in his mouth without swallowing. After a while, he would simply let it fall out of his mouth instead of swallowing it.
I’m wondering if this is something other parents have experienced after NG tube placement. I assume his throat is probably still irritated and he’s getting used to the foreign sensation, since it’s only been two days, but I’d really appreciate hearing your experiences.
Did your babies gag more or have trouble swallowing solids during the first few days? How long did it take for them to adjust? Is there anything that helped make eating more comfortable while they adapted to the tube?
The whole reason we agreed to the NG tube was because he wasn’t gaining enough weight from poor formula intake. But now I’m worried that if he stops eating solids as well, it will be counterproductive. At 10 months old, a significant portion of his nutrition should already be coming from solids, so I’m hoping this is just a temporary adjustment period.
Any advice or experiences would mean a lot. Thank you.

My baby is 8 months old and was recently diagnosed with a genetic condition that is associated with hypotonia, ASD, and global developmental delay. Despite the diagnosis, he is actually doing quite well. He sits independently, plays, engages with people, vocalizes, and eats normally.

We do have some challenges: he is not crawling yet and only says a few simple “bu” “pu” “ma” and vocals. However, he can army crawl/drag himself to reach toys and will roll across the room to get where he wants to go.

Several people have recommended that I look into the Doman Method and enroll in their program, which involves a home-based intervention plan with physical therapy and other activities for 6–12 months. However, when I started researching it, I found very conflicting opinions.

Some parents swear by it and claim their children made extraordinary progress, sharing impressive before-and-after stories and videos. Others say it is expensive, lacks scientific evidence, and is essentially a scam.

I would really appreciate hearing from parents or caregivers who have actually used the Doman Method with children who have developmental delays, disabilities, genetic syndromes, hypotonia, autism, or other special needs. Most of the information I find online focuses on neurotypical children using Doman techniques to learn reading or math early, but that is not my situation.

One of the reasons I’m considering it is that I came across a mother on Facebook whose child has microlissencephaly. When she first started sharing his story, he was around 4 years old, had a feeding tube, no head control, no trunk control, and very limited interaction with his environment. About two years later, she was posting videos of him eating by himself, sitting independently, smiling, watching TV, moving himself across the floor, and generally appearing much more engaged and thriving. She attributes these improvements almost entirely to the Doman Method, which is what made me start looking into it more seriously.

If you have personal experience with the program, I would love to hear:
What condition your child has
How old they were when you started
Whether you felt the program helped
What improvements you saw (if any)
Whether you felt the cost and time commitment were worth it

Thank you so much for sharing your experiences. I’m just trying to make the best decisions for my son and would appreciate honest feedback, both positive and negative. ❤️

My baby is 8 months old and was recently diagnosed with a genetic condition that is associated with hypotonia, ASD, and global developmental delay. Despite the diagnosis, he is actually doing quite well. He sits independently, plays, engages with people, vocalizes, and eats normally.

We do have some challenges: he is not crawling yet and only says a few simple “bu” “pu” “ma” and vocals. However, he can army crawl/drag himself to reach toys and will roll across the room to get where he wants to go.

Several people have recommended that I look into the Doman Method and enroll in their program, which involves a home-based intervention plan with physical therapy and other activities for 6–12 months. However, when I started researching it, I found very conflicting opinions.

Some parents swear by it and claim their children made extraordinary progress, sharing impressive before-and-after stories and videos. Others say it is expensive, lacks scientific evidence, and is essentially a scam.

I would really appreciate hearing from parents or caregivers who have actually used the Doman Method with children who have developmental delays, disabilities, genetic syndromes, hypotonia, autism, or other special needs. Most of the information I find online focuses on neurotypical children using Doman techniques to learn reading or math early, but that is not my situation.

One of the reasons I’m considering it is that I came across a mother on Facebook whose child has microlissencephaly. When she first started sharing his story, he was around 4 years old, had a feeding tube, no head control, no trunk control, and very limited interaction with his environment. About two years later, she was posting videos of him eating by himself, sitting independently, smiling, watching TV, moving himself across the floor, and generally appearing much more engaged and thriving. She attributes these improvements almost entirely to the Doman Method, which is what made me start looking into it more seriously.

If you have personal experience with the program, I would love to hear:
What condition your child has
How old they were when you started
Whether you felt the program helped
What improvements you saw (if any)
Whether you felt the cost and time commitment were worth it

Thank you so much for sharing your experiences. I’m just trying to make the best decisions for my son and would appreciate honest feedback, both positive and negative. ❤️

I’m a 31-year-old woman and my first pregnancy was completely “normal”. My baby was born mostly healthy but small, however at 2 months old doctors became concerned about his small head circumference and developmental signs. After genetic testing, he was diagnosed with an unbalanced translocation.

Because of that, they also tested me, and I found out that I carry a balanced 2:7 translocation. This was a complete shock to me because I had never had fertility problems, miscarriages, or any indication that something like this could happen.

During our first genetic counseling appointment, the geneticist talked to us about two possible paths for future pregnancies:

1. IVF with embryo genetic testing (PGT)

2. Conceiving naturally and then doing chorionic villus sampling (CVS) early in pregnancy to determine whether the baby inherited normal/balanced or unbalanced genetic material, and then deciding whether to continue the pregnancy.

I would really like to hear from people who chose the second path — conceiving naturally and then testing with CVS or amniocentesis — especially if you had success and eventually had healthy children.

I live in a developing country where IVF is not very advanced, and realistically I would need to travel abroad for treatment. The costs are extremely high compared to what families like ours can afford. Middle income families like mine make at most 25.000 a year between both working partners. I have private insurance but it doesn’t cover IVF.

What makes this emotionally difficult is my son, he’s 8 months old, and beautiful. Thanks to god his condition is not extremely severe (mostly developmental), and he is deeply loved, but I still worry constantly about his future and other pregnancies.

I would really love to give him siblings so he can have family and companionship throughout life since I won’t live forever to take care of him.

If anyone has gone through something similar — especially balanced translocations, natural conception after diagnosis, CVS testing, or the emotional side of making these decisions — I would be very grateful to hear your experience.