u/PookieTheMfBaby

1 year, five years, better than last year, better than last month.

I've noticed a lot of people say how epilepsy has stopped them from accomplishing their dreams, but what have you accomplished since the diagnosis?

Join us on Zoom as we talk epilepsy and what ever else may come up. Everyone has epilepsy so come listen or join the conversation with your camera on or off. 12pm PST

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

Have you ever sent text or pictures unintentionally, because you were postictal or having a seizure?

My kids are my biggest critics, sometimes (often) they make me think about things from other’s POV, and wonder does anyone see it how they see it. Anyhow, my son watched the podcast while I was LIVE this morning, we spoke (LIVE) about how we’re gonna talk about cults on Wednesday, that’s when he said “I kind of checked out your subreddit, you could totally seem like and could be seen as a cult leader, watch How To Become A Cult Leader on Netflix, you have an influential personality.” I laughed it off, but made me think, what does everyone here might think, quick question for those who have joined the Zoom meets or watched the podcast, do I seem like a cult leader?

If phantom smells is an aura, and an aura is a seizure, I just had a seizure, right? Smelt like someone stepped in dog poop, It lasted at least 90 minutes, does that mean that I was having a cluster of auras?

Do you get the phantom smells? Do they ever progress to TCs or focal seizures? I get the phantom smells semi-often, I've smelt burning rubber, garbage, fruity smells, even BBQ, but right now it smells like someone stepped in dog poop. It's horrendous, it won't go away and it isn't like I can run from it so, just annoyed waiting for it to go away, I'd rather the burning rubber smell. For now I guess I'll smoke some good flower and hope for the best, but how are your phantom smells, what scents have you smelt? Is there anything that you do to end it? Someone said it's an aura, as I'm eating oreos, the smell is being masked as long as the oreos are near my nose 😆 hopeless

Have you ever experienced aphasia without having a seizure? It's usually post-seizure, what about no seizure aphasia, possible?

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

Have you ever experienced aphasia without having a seizure? It's usually post-seizure, what about no seizure aphasia, possible?

For those who have seizures upon waking up, does sleeping in help avoid the morning seizures?

What surprised you most about your AED side effects? I can't think of any right now so, I'm asking you.

Join us on Zoom as we talk epilepsy and what ever else may come up. Everyone has epilepsy so come listen or join the conversation with your camera on or off. 12pm PST

I already feel like my life is a big joke at times, and I like joking around, so, I'd like to see Johnny Knoxville, the funny part would be waiting for me to come out and then Johnny Knoxville comes out, someone yells out "I thought Pookie was black" 😆