Does anyone here feel better when they’re standing/moving? I feel like my pressure is worse when I’m sitting and driving but if I’m up walking it’s less? Is this normal? Also, not sure about the laying flat part as my bed is always on incline even before I was diagnosed. But I can say laying on my left side is the only way I don’t feel pulsating and throbbing in my head.
Just wondering what others experience. 😀
I’m not sure if this is a symptom of the IIH or the Diamox— but does anyone have pain across their upper back? like I feel like I have the constant need to stretch my trap muscle area. it’s a horrible feeling. anyone have tips or recommendations for some relief?
that and my hearing loss are really my only complaints with this whole new diagnosis and it’s so uncomfortable 😅
So I was diagnosed a month ago through a CT scan (ER visit) and then an MRI - both confirmed the IIH. I’ve been on Diamox sincs the CT scan per my PCP recommendation. I’ve also lost a bout 20lbs. Diamox is no joke 😅.
My question is, does every get a LP- like is it used for diagnosing or something else? I’m just curious after reading other posts. also, what is a bloodpatch??
Im managing well with my IIH with 250x2 Diamox- except during my menstrual cycle where it feels a little heavier or during a storm….BUT I do not have papilladema or anything wrong with my eyes according to the ophthalmologist. I’m just not sure what the treatments look like?
any insight or experience would be helpful, to ease my anxiety.
edit to add: I show empty cella (?) and flattened pituitary gland In my scans which is why they stuck IIH on the diagnosis.
newly diagnosed with IIH after getting a CT scan during ER visit. I’ve had horrible pulsate tinnitus, and a pressure behind my eyes for months. They ophthalmologist did an exam in January and said everything looked fine yet here we are.
Question anyone else in perimenopause during this time?? I know it’s so controversial on why this happens. I just feel like hormones definitely play a role. I hate taking medication’s.- and trying to figure out which way to go to “cure” this- wondering if I started HRT to balance my hormones if that would help. Anyone have luck with this? is it only the Diamox medication that helps people? obviously yes I know weightloss helps too. just trying to see all the angles and understand it more.TIA