u/Similar_Nectarine_58

Hey guys
I’ve been working with a Gi doc for months now and she’s getting so tired of me because I’m a nervous wreck. I’m very hesitant to try meds. I’d be tired of me too but I’ve literally lost 15 lbs since this started
Basically my main symptom is I completely lost my hunger and I feel like I have to literally force food down my throat every meal.. it’s extremely distressing and Its been 4 months now. I would say anxiety is almost a symptom at this point cause I get these waves of almost impending doom and then it’ll lift for a while

I’ve been taking ppis again I only took them for about a month last time but it didn’t seem to do anything except make me have undigested food in my poop.
She also did a sibo test which I guess came back positive for Hydrogen( I’m really not convinced I have sibo) but she prescribed both nortriptylline and antibiotics.

I guess my questions are:
Has anyone else presented like this?
Has anyone taking nortrip or Ami and been able to successfully wean off? (I also get frequent migraines so I’m hoping it will help with this too)
What were your experiences on Ami/ nort
Would you guys take the antibiotic for the “sib” I really don’t have any other symptoms that are sibo like so idk

I’m genuinely so over this sickness.. I never thought I’d have to force feed myself every day but here I am.
I’m also getting a gastric empty study done tomorrow.

Hey guys I’ve been dealing with a weird loss of appetite and weight loss for several months now as well as some gi discomfort.
I’ve been diagnosed with mild gastritis (which my gi doc does not seem to be convinced that’s what’s causing this.
As well as I had a positive hydrogen sibo test… my gi is also skeptical about this as am I. Only because I don’t have many of the “normal symptoms”

I don’t physically bloat much but it is just hard as hell to eat most days like I’m literally forcing the food down every meal. It’s exhausting.

I guess my question is do you think it would be worth it to still try the rifaximin prescribed even if it’s a potential false positive?
Has anyone felt worse after the antibiotics or realized that maybe it wasn’t sibo all along? I just started on a ppi again to try to attack the potential gastritis component (I know that ppis can cause sibo but I’m trying to cover all my bases here because I’m basically starving to death)

Please guys any help is appreciated

Has any one ever successfully tapered off ami or nor without getting severe rebound headaches . If so what was your tapering schedule?

Has ami at 10mg caused you guys significant increased heart rate ?

Hey guys I’ve recently attributed my random bouts of insomnia to ubrelvy and now my neuro wants to put me on nurtec as preventative.

Can I hear some stories of insomnia with these drugs?

I can fall asleep but I wake up like 4 hours later every time. My brain cannot keep up with this cycle.

Has anyone stopped them and gone back to normal?

Does anyone have both migraines and gastritis?
And how are you coping? I need help :(

Hi I know there’s a lot of mixed reviews on this. But does anyone ever find fighting through some headaches/migraines actually helps?
Especially with MOH??

I had one weird time where I came off a steroid fought through the first headache and went 10 whole days without a single headache I was amazed. I haven’t been able to get this result again but I feel like it’s because I take too many abortives.

I suspect I got gastritis from chronic use of nsaid and then a steroid pack that did me over

I get chronic migraines mind you that’s why I’ve taken so many NSAIDs.

They put me on omeprazole 20mg morning and night for almost a month and I didn’t feel much difference so I stopped (I really didn’t know how long this should take)

I got an endoscopy that confirmed mild chronic and acute inflammation but the doctors kind of just brushed by it for some reason.

I went on a bland diet for a little bit and felt like my stomach was getting somewhat better I still had no appetite but it wasn’t as uncomfortable. Flash forward I keep getting horrible migraines so I’m taking more medication I can feel my stomach getting worse and worse. I took meloxicam and rizatriptan like an idiot yesterday and I’m in extreme pain now. Honestly I didn’t know if this was gastritis all along or not

They prescribed me pantoprazole 40mg but I haven’t taken it yet because I’m legit terrified of getting sibo

MAIN GIST:

Can I please hear good results you guys have had from taking ppis and not getting sibo especially ones caused from NSAIDs?? cause I’ve also heard you can have low stomach acid and gastritis at the same time and that worries me everything worries me :(

Have you guys experimented with stopping your preventatives and seeing how your headaches/migraines are?
Do they get worse than before? Just curious.
Thank you.

Has anyone felt like a lot of stomach discomfort after taking ubrelvy multiple days in a row?

How long did it take for qulipta to work for you guys?

Well I just progressed to the point where none of my abortives are working however I’ve been avoiding nsaids at all costs due to my gastritis but I’m about to say f*** it to try to break this migraine
I’ve taken
Ubrelvy 100mg and
Fiorcet so far today
I know no one is a doctor here but has anyone taken multiple abortives in one day… and been okay….
I was gonna wait four hours and take excedrin

I’m really really suffering right now 🥲 and really cannot afford to go to er as I have been twice already this year for different reasons. Any advice/recommendations appreciated

Has anyone taken qulipta and not have it affect their appetite/weight?
I need something that is not going to affect this.
I’m considering nortryptilline but I’ve heard mixed reviews…and it sounds like a bitch to taper off.
What do you guys think?

I have been in the process of healing my gastritis for the last 3 months around 2 months is when I realized it’s most likely gastritis- positive endoscopy.
I took ppis for almost 2 months before finding out the gastritis and didn’t really notice much. Of a difference then I got scared about potential sibo so I stopped.
Ever since I’ve been on a pretty strict diet trying not to eat anything that might inflame my gut.
My main symptom is nausea and appetite loss/weight loss. I feel like I’m making progress very… slowly.
The problem is I also have chronic migraines because god loves me.
I feel like taking medicine (not nsaids but cgrp antags and triptans) for that is contradicting the healing.
Idk if I should add in pantoprazole 40mg daily in the morning again maybe just for a short time?
I’m not sure if anyone has had an experience like this specifically from most likely nsaid overuse

I’m just mourning my old life.
I always had headaches but it was manageable with Excedrin and honestly I never thought twice about it
Ever since I tried to get off Excedrin and try to do things the right way my migraines have morphed and become unbearable.
I don’t want to have to take something everyday of my life with side effects and doing god knows what to my body but now what choice do I have. I feel so sad and helpless. I just want to be a normal person that can be healthy without having to rely on medication and hope to god it’s not making me worse somehow.
Sorry I just needed to rant and I really need support right now. A lot of you guys are a lot stronger minded than me but I have been crying for months over this. It just feels like I’m never going to be the same ever again.

Hey guys I’m dealing with a really rough episode of gastritis and I’m also a chronic migraine sufferer. Is anyone else in the same boat? Which preventative works for you and doesn’t make gastritis worse? I’m so worried to take anything, but I’m in so much pain :(

Hey guys
27F
This has been a nightmare last 3 months I wanted to share and see if anyone has any advice.
For reference I have had migraines all my life and I took excedrin unfortunately for a very long time and i also would stress a lot.
I finally wanted to make a change and I took a steroid pack prescribed by neurologist to try to help me ween off excedrin.
I lost my appetite about threee days in and it’s been gone ever since. This is almost 3 months now

I took 20mg omeprazole for a while once a day for like 2 weeks which did nothing and I wound up in the ER because i was terrified from the discomfort and the amount of weight I lost, almost 15 lbs.
They then took out my appendix for no apparent reason. They thought it looked inflamed but then basically said it wasn’t inflamed at all after they took it out. They then told me I prob have an ulcer and should take omeprazole twice a day.
I took omeprazole twice a day once in morning and night for about a month and finally got my endoscopy.
They didn’t find any ulcer but it was positive for mild acute and chronic inflammation.

They were like oh I guess you don’t have an ulcer. I was like so should I stop taking ppi? They said sure. They now want to test me for sibo and gastroparesis.
They also prescribed me 40mg pantoprazole before the endoscopy I only took for a couple days

Anyway I still have no appetite bursts of nausea and feel so full after I eat it hurts. I wake up in the middle of the night in pain/ nausea. I get internal shakes sometimes. It’s just basically a nightmare.

She said I could continue taking the pantoprazole and I’m wondering if I should or not cause I feel like a lot of you have had similar symptoms ?? I’m kind of scared to take it in fear of sibo and especially since I don’t even have a damn appendix anymore. I’m just so uncomfortable every day I want to feel normal again.

Please please please let me know any advice you have.
Thank you in advance 🥺

TLDR; nausea loss of appetite lost 15 lbs and feel so full after eating for 3 months. Endoscopy showed mild acute and chronic inflammation of astral mucosa. I was taking ppis but stopped them. Don’t know if this is gastritis or something else. Getting sibo kit soon.
Should I start taking pantoprazole 40mg again? Doctor doesn’t seem to think it’ll matter either way. Idk why she doesn’t think this is gastritis. I think she feels like the symptoms are too severe?

Hey guys I have been having a reeeeeaally hard time these last couple months and I have a sneaky suspicion I’ve developed an autoimmune disease.
Idk for sure because the rheumatologist was literally booked out for 4 months.. I’ve been literally losing my mind going to every doctor to try to figure this out.

Anyways, my main and first symptom was loss of appetite and it’s been gone now for 3 months. Yes I’ve lost a lot of weight. I’ve been having chronic nausea. I get migraines anyway cause I’m just so very blessed but they’ve been nonstop.
The last couple days my joints mainly hips and knees have not been feeling too hot and I get random itchy spots on my body.

I know majority of you are not doctors but idk what do you think? And what should I do in the meantime. Like I’m really struggling here

Ps I also got two Ana positive titers over the last like year but I was told they were both fairly low I guess 1:4. Idk. I really don’t know anything all I know is I need help and I’m really sorry you guys have to live with these frustrating and debilitating conditions.

Has anyone taken fiorcet and then ubrelvy after?
The fiorcet just hasn’t quite taken away the pain :/