▲ 2 r/Celiac

Where do you feel abdominal pain and does it sometimes get better after eating?

Diagnosed recently by endoscopy but still waiting for blood results. Got the scope done because of sharp pain under my left rib and through to my back. It’s sharp and cramping and hurts usually when my stomach is empty and gets better briefly when I eat. Antacids (tums) don’t help. I was expecting the scope to find stomach ulcers or h pylori because of these symptoms but my biopsy was negative for h pylori and my doctor was pretty certain it was celiac. So now I’m wondering if this is something people with celiac experience or if I maybe still have some kind of stomach acid problem going on?

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u/SnooCompliments283 — 1 day ago

What could present as celiac on endoscopy but not actually be celiac?

I tested negative for celiac blood test, but my endoscopy showed damage to my duodenal bulb consistent with celiac (visually and on biopsy, although intraepithelial lymphocytosis was not seen). What else could be causing this injury to the duodenum (blunted villus architecture, and overlapping peptic injury) if not celiac? I think the peptic injury is the real clue here but I’m not sure what would cause peptic injury in the duodenum only but not in the esophagus or stomach. Thanks!

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u/SnooCompliments283 — 2 days ago
▲ 4 r/Celiac

A lot of people talk about false negatives, but is it possible to have a false positive endoscopy?

Recent endoscopy and biopsy showed injury to duodenum/duodenal bulb (cobblestoning, blunted villi, although no lymphocytosis). From biopsies my doctor is pretty sure it is celiac. I wasn’t expecting this diagnosis and got the scope for pain, so I haven’t had a celiac blood test. Will be getting the test in a couple weeks but I’m wondering if the blood test will be negative and I’m not sure what the conclusion of my scope will be then. I guess the people in this sub wouldn’t be here if they got false positives 😅 but is anyone aware of conditions that could appear on the scope similarly to celiac? (Path ruled out h pylori, no frequent use of NSAIDs, no GERD, no damage to esophagus.) Just signs of celiac in duodenum + some peptic injury! I’m nervous and would love someone who has nerded-out on this before to give some insight.

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u/SnooCompliments283 — 6 days ago
▲ 132 r/Celiac

Weirdest symptom you didn’t realize was celiac until you were diagnosed?

I was recently diagnosed unexpectedly with celiac (from endoscopy) after dealing with stomach pain. I never noticed that gluten made my symptoms worse, and eating gluten free (for about 4 weeks) didn’t make me magically better either.

Now that it’s confirmed, I’m wondering what other symptoms I’ve had were actually signs of celiac all along. Canker sores and itchy bumps on my hands/fingers when I first started eating gluten again after being gluten free are the main two that come to mind. Anyone else?

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u/SnooCompliments283 — 9 days ago
▲ 2 r/ibs

Identified my FODMAP triggers, started amitriptyline, and finally felt like I “cured” my IBS. Upper endoscopy just diagnosed me with potential celiac (duodenal bulb inflammation/scarring, pending biopsy results) despite wheat not being one of my triggers.

Has anyone experienced this? I was finally feeling certain that IBS was truly the culprit of my GI problems, since amitriptyline, psyllium, and cutting out my FODMAP triggers made me feel almost normal again.

I had been having sharp stomach pains off and on (for a few years, but finally decided to investigate since I recently started regularly seeing a GI) so I got an upper endoscopy. I fully expected nothing to be found, to be told my pain was trapped gas, and to move on with my life continuing with my course of treatment for IBS.

However they found tissue damage in my duodenum, consistent with celiac disease. Biopsy results still pending. I’ve been eating wheat for about 4 weeks now after reintroducing it (did my FODMAP trial and found that wheat was not a trigger) so this really came as a surprise.

Does anyone have experience with endoscopy results that presented as celiac but turned out to be something else? Eating gluten free for about 1-2 months didn’t clear up my symptoms, so it feels unlikely. I know my biopsy results will reveal my answer eventually, but I’d like to hear first hand experiences

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u/SnooCompliments283 — 11 days ago

Episode 23 vote for dumping

Spoilers!

Simba was 100% right about the favoritism BS. Voting to save Tommy after he was the reason why him and Halle were on the bottom two is so messed up. And the way Aidan and Kav were rooting so hard for him, get these Murphys OFF MY SCREEN! All 3 of em! Sick of it

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u/SnooCompliments283 — 11 days ago

Is this avocado safe to eat?

I’ve had this avocado for a week, been kept in the fridge. Just noticed this wrinkled dry spot with some white specks. I haven’t cut into it yet. Is the mold only on the skin or is the inside compromised too?

Edit: this is NOT the stem bump, this is a spot on the middle of the side of the avocado

u/SnooCompliments283 — 17 days ago
▲ 2 r/ibs

Question about amitriptyline

Been on 10 mg for almost 2 weeks now, after 1 week I noticed an improvement in my bowel habits. However I still can’t eat certain FODMAP triggers- when I do, I revert back to my usual IBS flare symptoms. From the success stories I’ve seen posted on here about amitriptyline, it seems like people can eat whatever they want with no symptoms at all. Will I get to that point after more time or is amitriptyline not my cure?

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u/SnooCompliments283 — 22 days ago
▲ 1 r/ibs

Anyone whose doctor recommended trying bile acid binders without exhibiting common BAM symptoms?

I’m not as bad off as how most people make BAM seem, no urgency, no watery diarrhea. But my stool is always yellow, always soft, and going 3-4x a day. My pancreas, gallbladder, and liver have been checked and are normal. Colonoscopy was clear. No severe pain except cramping on left side sometimes. Still in the process of identifying my FODMAP triggers but even when I was fully low FODMAP I wasn’t completely free of symptoms.

Did anyone try bile acid binders to treat symptoms like this? Not sure if my GI will be game, but wondering if it’ll be worth asking.

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u/SnooCompliments283 — 29 days ago

Inconsistency in the books

Reading book 10: Deadly and Emily refers to the fact that she was going to attend NC state for college, but in previous books she had committed to the swim team at UNC. Like what lol

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u/SnooCompliments283 — 29 days ago
▲ 1 r/ibs

Anyone had success turning their 3+ morning bowel movements into 1 bowel movement?

IBS D, managing symptoms with low FODMAP and lots of psyllium fiber. I’d say I’m 85% back to normal. However instead of having 1 bowel movement in the morning, I always have 3-4. Then sometimes another after lunch. I take a LOT of fiber, 1 tablespoon with each meal. My stools still aren’t perfectly solid though, often type 5 Bristol.

Anyway, I’d be curious to hear if anyone had success with anything other than fiber that helps reduce the number of bathroom visits. Mornings just feel so unpredictable because of this, since I never know when I’m done.

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u/SnooCompliments283 — 1 month ago
▲ 1 r/ibs

Been dealing with sudden IBS for 4 months, stool test just came back positive for norovirus?

Does anyone know what this means? It’s been 4 months of GI troubles which have been attributed to IBS. No nausea or vomiting and no loss of appetite. Never had a fever or felt sick. But my stool test came back positive for norovirus. Is it possible this has been the cause for my IBS-D? How is something like this treated?

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u/SnooCompliments283 — 1 month ago

How does the Lexapro make you feel in hot weather?

This is my first summer on Lexapro and it’s quite hot here this week in the southeast. Whenever I sit outside I feel like my feet and legs get hot and swollen and it’s impossible to cool them down. This is unusual for me and I’m wondering if it’s due to the Lexapro? I also feel like I get dehydrated quicker. I might be imagining things but I know SSRIs can mess with temp regulation so I want to hear some experiences!

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u/SnooCompliments283 — 2 months ago

Kiwi with hold of mold inside

Is this kiwi with a cave of mold safe to eat? It doesn’t seem to go very deep and the rest of the kiwi looks ok. Has the mold contaminated the whole fruit?

u/SnooCompliments283 — 2 months ago

Morning vs night time doses

I currently take 10 mg at night time (have been on lex for 7 weeks now), anywhere from 8-10 pm usually. I’ve been experiencing a lot of fatigue during the day, like a heavy sedated feeling that is definitely unusual for me. It seems like most people switch to night time doses to help with the fatigue, but does anyone have any experience with the opposite effect working for them? Like maybe the fatigue kicks in for me like 12 hours after I take it. Might give it a shot just to see but I wanted to know if anyone else dealt with this! I sleep great too, so it’s not a lack of sleep problem

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u/SnooCompliments283 — 2 months ago
▲ 8 r/ibs

Symptoms around period?

Does anyone notice a chance in their symptoms in the week leading up to your period or the week of your period?

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u/SnooCompliments283 — 2 months ago
▲ 3 r/ibs

Experience with l-glutamine?

Any positive or negative stories about taking l-glutamine? If positive, what dose did you take and what time of day? How long until you saw benefits?

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u/SnooCompliments283 — 2 months ago
▲ 2 r/ibs

Psyllium husk success stories, how is your diet now?

IBS-D having great success with psyllium fiber but still on the elimination phase of my low FODMAP diet. Going to start reintroducing in a week or so. But since I’m still waiting I’m wondering, for people who had success with psyllium fiber, how does your diet look now?

Since I haven’t yet reintroduced my FODMAPs I’m still not sure what my triggers are, but I’m worried I’m also triggered by things that aren’t FODMAPs, like just greasy food/fried food in general. I haven’t tried French fries since starting my fiber so maybe it will be ok. What are other people’s experiences? When the psyllium started helping you, were you able to eat whatever you wanted as long as you took your fiber? Or are you still restricted in some ways (in addition to FODMAPs)? My hope is to be able to eat relatively normal again eventually, so I’m looking for some hope!

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u/SnooCompliments283 — 2 months ago
▲ 1 r/ibs

Has anyone dealt with this and gotten a diagnosis other than IBS? I’m suspecting some malabsorption problem, but I don’t have the urgent watery bowel movements commonly associated with BAM. Not sure what to ask my GI to look for, and have a while until I see him

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u/SnooCompliments283 — 2 months ago