u/StrongProof9083

So exactly six weeks ago I received a ganglion Stellate block. And since it not went well i
wrote an update it. That one i will link here:

https://www.reddit.com/r/dysautonomia/s/7ZU18eyanP

Because a lot of people where thankfull for the honest update i thought I’d post an update two weeks later. So here we are.

Well, those days that I felt a little better where short lived. Unfortunately. I lost a little track of time but maybe a couple of days after my post i felt worse again. Fatique, anxious, no appetite. Just feel bad. I still was/am housebound, couchebound and am not able to take care of out daughter.
Thats why last week I descided to up my Zoloft from 75 to 100 mg because i also had increased anxiety still. That is now day 7 and obviously i am struggling with the increase of dosage.

Would I do it again? No. Hell to tha no.
I guess its just not my treatment,
But Still, i cant descide for you if you should take the block or not. However, my conclusions for when It can or cannot work are these. And these are my own, so its just an opinion.
I could work if your primary problem is not mainly focussed on the nervous system and/or you are not flaring right now. If there is something like inflammation it could be beneficial as well.
I would not do it if my nervous system was wrecked or if i had a flare from anything. It is a heavy procedure for the body it self.

I still have hope I will feel back to baseline at least soon. Hope for me too. And in the meantime, but only if you Guys are interested, I can do updates of how I feel after the block. On to a new treatment 🍀🍀

So exactly six weeks ago I received a ganglion Stellate block. And since it not went well i
wrote an update it. That one i will link here:

https://www.reddit.com/r/dysautonomia/s/7ZU18eyanP

Because a lot of people where thankfull for the honest update i thought I’d post an update two weeks later. So here we are.

Well, those days that I felt a little better where short lived. Unfortunately. I lost a little track of time but maybe a couple of days after my post i felt worse again. Fatique, anxious, no appetite. Just feel bad. I still was/am housebound, couchebound and am not able to take care of out daughter.
Thats why last week I descided to up my Zoloft from 75 to 100 mg because i also had increased anxiety still. That is now day 7 and obviously i am struggling with the increase of dosage.

Would I do it again? No. Hell to tha no.
I guess its just not my treatment,
But Still, i cant descide for you if you should take the block or not. However, my conclusions for when It can or cannot work are these. And these are my own, so its just an opinion.
I could work if your primary problem is not mainly focussed on the nervous system and/or you are not flaring right now. If there is something like inflammation it could be beneficial as well.
I would not do it if my nervous system was wrecked or if i had a flare from anything. It is a heavy procedure for the body it self.

I still have hope I will feel back to baseline at least soon. Hope for me too. And in the meantime, but only if you Guys are interested, I can do updates of how I feel after the block. On to a new treatment 🍀🍀

Btw happy to answer any questions, so feel free to ask them!

So exactly six weeks ago I received a ganglion Stellate block. And since it not went well i
wrote an update it. That one i will link here:

https://www.reddit.com/r/dysautonomia/s/7ZU18eyanP

Because a lot of people where thankfull for the honest update i thought I’d post an update two weeks later. So here we are.

Well, those days that I felt a little better where short lived. Unfortunately. I lost a little track of time but maybe a couple of days after my post i felt worse again. Fatique, anxious, no appetite. Just feel bad. I still was/am housebound, couchebound and am not able to take care of out daughter.
Thats why last week I descided to up my Zoloft from 75 to 100 mg because i also had increased anxiety still. That is now day 7 and obviously i am struggling with the increase of dosage.

Would I do it again? No. Hell to tha no.
I guess its just not my treatment,
But Still, i cant descide for you if you should take the block or not. However, my conclusions for when It can or cannot work are these. And these are my own, so its just an opinion.
I could work if your primary problem is not mainly focussed on the nervous system and/or you are not flaring right now. If there is something like inflammation it could be beneficial as well.
I would not do it if my nervous system was wrecked or if i had a flare from anything. It is a heavy procedure for the body it self.

I still have hope I will feel back to baseline at least soon. Hope for me too. And in the meantime, but only if you Guys are interested, I can do updates of how I feel after the block. On to a new treatment 🍀🍀

And if time was it, then you can say time and the second best thing! Thanks!

Like the title says, if i listen to huberman he says there are lots of published articles about the efficiacy of red light. But did anyone here actually use it? And did it help? For which complaints? I think I am going to get one but start with like 1 minute per 2 days or so, since i am super sensitive!
Honest reviews please, no selling!

Like the title says, if i listen to huberman he says there are lots of published articles about the efficiacy of red light. But did anyone here actually use it? And did it help? For which complaints? I think I am going to get one but start with like 1 minute per 2 days or so, since i am super sensitive!
Honest reviews please, no selling!

Like the title says, if i listen to huberman he says there are lots of published articles about the efficiacy of red light. But did anyone here actually use it? And did it help? For which complaints? I think I am going to get one but start with like 1 minute per 2 days or so, since i am super sensitive!
Honest reviews please, no selling!

I’ve been on Zoloft for quite a few years now with succes. I was on 50 mg up until last year when I upped my dose to 75 mg after a rough period.
It did do something but i never felt fully the old me and stayed anxious at times. My main problem looks like anxiety/hyperaurasal/deep fried nervous system.
It basically looks like my system is always “on”.
So when i heard about a stellate ganglion block last year i did some research and descided to try it in the end. The doc did a right sided block and that is now one month ago and it did not go the way i hoped it would go.
Directly after i experienced increased anxiety over nothing (i saved a little duck from a hole and thought for a week i was gonna die from bird flu. Trust me, I know, i am coucou) higher heart rate and just overall misery. I could not take care of our daughter and it was awfull and i was bedbound. I deeply regretted the block. My doc wants to do the left side, but i sad no that.
Very slowly I thought this past week it became a little better, but it is far from good and I still am mostly housebound. It sucks.
So now that it has been a month I am seriously considering going up again with my Zoloft, to 100 mg. My system just needs to chill.
Did anyone experienced same things as me and upped his dose? Would love to hear stories that can give me hope. Or did people do an sgb and experienced the same? Or just people who went up to 100 mg and it made a difference?

Hi! Its a long story but i would say the bottom line is I have anxiety and a wrecked nervous system. I already tried a lot and a neuropath told me earlier to take zeolite. I did it two months ago and don’t think I really felt better or worse. It just stayed the same how I felt I would say.
One month ago however I had a Stellate ganglion block for my anxiety, but it totally fucked me up. I was supposed to relax my nervous system but it actually did the opposite. I became more anxious and my heart rate started going up. Its been super rough.
I don’t know why I thought it was a good plan (Maybe because my neuropath sayd it could help with the histamine overload of which he thinks my system is currently dealing with) but I started zeolite 4 days ago and took a teasoon at lunch a day.
However i slowly started to become even worse! Headache, nausea, and just overall misery. I feel so bad!
I will quit it immediately eitherway, but is this possible due to the zeolite? That my system just cant proces it? Or am i making this up?
Tips for easing this are also welcome! Thanks

Hi! Its a long story but i would say the bottom line is I have anxiety and a wrecked nervous system. I already tried a lot and a neuropath told me earlier to take zeolite. I did it two months ago and don’t think I really felt better or worse. It just stayed the same how I felt I would say.
One month ago however I had a Stellate ganglion block for my anxiety, but it totally fucked me up. I was supposed to relax my nervous system but it actually did the opposite. I became more anxious and my heart rate started going up. Its been super rough.
I don’t know why I thought it was a good plan (Maybe because my neuropath sayd it could help with the histamine overload of which he thinks my system is currently dealing with) but I started zeolite 4 days ago and took a teasoon at lunch a day.
However i slowly started to become even worse! Headache, nausea, and just overall misery. I feel so bad!
I will quit it immediately eitherway, but is this possible due to the zeolite? That my system just cant proces it? Or am i making this up?
Tips for easing this are also welcome! Thanks

Hi! Its a long story but i would say the bottom line is I have anxiety and a wrecked nervous system. I already tried a lot and a neuropath told me earlier to take zeolite. I did it two months ago and don’t think I really felt better or worse. It just stayed the same how I felt I would say.
One month ago however I had a Stellate ganglion block for my anxiety, but it totally fucked me up. I was supposed to relax my nervous system but it actually did the opposite. I became more anxious and my heart rate started going up. Its been super rough.
I don’t know why I thought it was a good plan (Maybe because my neuropath sayd it could help with the histamine overload of which he thinks my system is currently dealing with) but I started zeolite 4 days ago and took a teasoon at lunch a day.
However i slowly started to become even worse! Headache, nausea, and just overall misery. I feel so bad!
I will quit it immediately eitherway, but is this possible due to the zeolite? That my system just cant proces it? Or am i making this up?
Tips for easing this are also welcome! Thanks

Hi! Its a long story but i would say the bottom line is I have anxiety and a wrecked nervous system. I already tried a lot and a neuropath told me earlier to take zeolite. I did it two months ago and don’t think I really felt better or worse. It just stayed the same how I felt I would say.
One month ago however I had a Stellate ganglion block for my anxiety, but it totally fucked me up. I was supposed to relax my nervous system but it actually did the opposite. I became more anxious and my heart rate started going up. Its been super rough.
I don’t know why I thought it was a good plan (Maybe because my neuropath sayd it could help with the histamine overload of which he thinks my system is currently dealing with) but I started zeolite 4 days ago and took a teasoon at lunch a day.
However i slowly started to become even worse! Headache, nausea, and just overall misery. I feel so bad!
I will quit it immediately eitherway, but is this possible due to the zeolite? That my system just cant proces it? Or am i making this up?
Tips for easing this are also welcome! Thanks

Hi! Its a long story but i would say the bottom line is I have anxiety and a wrecked nervous system. I already tried a lot and a neuropath told me earlier to take zeolite. I did it two months ago and don’t think I really felt better or worse. It just stayed the same how I felt I would say.
One month ago however I had a Stellate ganglion block for my anxiety, but it totally fucked me up. I was supposed to relax my nervous system but it actually did the opposite. I became more anxious and my heart rate started going up. Its been super rough.
I don’t know why I thought it was a good plan (Maybe because my neuropath sayd it could help with the histamine overload of which he thinks my system is currently dealing with) but I started zeolite 4 days ago and took a teasoon at lunch a day.
However i slowly started to become even worse! Headache, nausea, and just overall misery. I feel so bad!
I will quit it immediately eitherway, but is this possible due to the zeolite? That my system just cant proces it? Or am i making this up?
Tips for easing this are also welcome! Thanks

I’ve been on Zoloft for quite a few years now with succes. I was on 50 mg up until last year when I upped my dose to 75 mg after a rough period.
It did do something but i never felt fully the old me and stayed anxious at times. My main problem looks like anxiety/hyperaurasal/deep fried nervous system.
It basically looks like my system is always “on”.
So when i heard about a stellate ganglion block last year i did some research and descided to try it in the end. The doc did a right sided block and that is now one month ago and it did not go the way i hoped it would go.
Directly after i experienced increased anxiety over nothing (i saved a little duck from a hole and thought for a week i was gonna die from bird flu. Trust me, I know, i am coucou) higher heart rate and just overall misery. I could not take care of our daughter and it was awfull and i was bedbound. I deeply regretted the block. My doc wants to do the left side, but i sad no that.
Very slowly I thought this past week it became a little better, but it is far from good and I still am mostly housebound. It sucks.
So now that it has been a month I am seriously considering going up again with my Zoloft, to 100 mg. My system just needs to chill.
Did anyone experienced same things as me and upped his dose? Would love to hear stories that can give me hope. Or did people do an sgb and experienced the same? Or just people who went up to 100 mg and it made a difference?

I’ve been on Zoloft for quite a few years now with succes. I was on 50 mg up until last year when I upped my dose to 75 mg after a rough period.
It did do something but i never felt fully the old me and stayed anxious at times. My main problem looks like anxiety/hyperaurasal/deep fried nervous system.
It basically looks like my system is always “on”.
So when i heard about a stellate ganglion block last year i did some research and descided to try it in the end. The doc did a right sided block and that is now one month ago and it did not go the way i hoped it would go.
Directly after i experienced increased anxiety over nothing (i saved a little duck from a hole and thought for a week i was gonna die from bird flu. Trust me, I know, i am coucou) higher heart rate and just overall misery. I could not take care of our daughter and it was awfull and i was bedbound. I deeply regretted the block. My doc wants to do the left side, but i sad no that.
Very slowly I thought this past week it became a little better, but it is far from good and I still am mostly housebound. It sucks.
So now that it has been a month I am seriously considering going up again with my Zoloft, to 100 mg. My system just needs to chill.
Did anyone experienced same things as me and upped his dose? Would love to hear stories that can give me hope. Or did people do an sgb and experienced the same? Or just people who went up to 100 mg and it made a difference?

I’ve been on Zoloft for quite a few years now with succes. I was on 50 mg up until last year when I upped my dose to 75 mg after a rough period.
It did do something but i never felt fully the old me and stayed anxious at times. My main problem looks like anxiety/hyperaurasal/deep fried nervous system.
It basically looks like my system is always “on”.
So when i heard about a stellate ganglion block last year i did some research and descided to try it in the end. The doc did a right sided block and that is now one month ago and it did not go the way i hoped it would go.
Directly after i experienced increased anxiety over nothing (i saved a little duck from a hole and thought for a week i was gonna die from bird flu. Trust me, I know, i am coucou) higher heart rate and just overall misery. I could not take care of our daughter and it was awfull and i was bedbound. I deeply regretted the block. My doc wants to do the left side, but i sad no that.
Very slowly I thought this past week it became a little better, but it is far from good and I still am mostly housebound. It sucks.
So now that it has been a month I am seriously considering going up again with my Zoloft, to 100 mg. My system just needs to chill.
Did anyone experienced same things as me and upped his dose? Would love to hear stories that can give me hope. Or did people do an sgb and experienced the same? Or just people who went up to 100 mg and it made a difference?

I’ve been on Zoloft for quite a few years now with succes. I was on 50 mg up until last year when I upped my dose to 75 mg after a rough period.
It did do something but i never felt fully the old me and stayed anxious at times. My main problem looks like anxiety/hyperaurasal/deep fried nervous system.
It basically looks like my system is always “on”.
So when i heard about a stellate ganglion block last year i did some research and descided to try it in the end. The doc did a right sided block and that is now one month ago and it did not go the way i hoped it would go.
Directly after i experienced increased anxiety over nothing (i saved a little duck from a hole and thought for a week i was gonna die from bird flu. Trust me, I know, i am coucou) higher heart rate and just overall misery. I could not take care of our daughter and it was awfull and i was bedbound. I deeply regretted the block. My doc wants to do the left side, but i sad no that.
Very slowly I thought this past week it became a little better, but it is far from good and I still am mostly housebound. It sucks.
So now that it has been a month I am seriously considering going up again with my Zoloft, to 100 mg. My system just needs to chill.
Did anyone experienced same things as me and upped his dose? Would love to hear stories that can give me hope. Or did people do an sgb and experienced the same? Or just people who went up to 100 mg and it made a difference?

Sooo, since i flooded this sub the past month with questions like “will i be ok???” and “are there any people who experienced the same thing?” I thought it would also be nice to post some positive story.

So today exactly a month ago i received my right sided sgb. I was extremely nervous on beforehand. Not for the treatment itself (honestly, easy peasy, i would rather have 1000 sgb’s at the same time then 1 more labour) but for the outcome and how i would feel after it. My main problem on beforehand was, I just cant describe it otherwise, a fucked nervous system. Whether it was due to myself, stress, covid etc etc, I truly believe that that is the root core. Your nervous system not being able to chill anymore die to whatever reason. I know I Will make enemies by saying this (but i am an MD myself so i kinda also see it from both sides) but also things as mcas, pots, dysautonomia? Wracked/deep fried nervous system. In my opinion at least.

That being sad, my complaints on beforehand were hyperaurasal (higher resting heart rate), fatique after doing nothing, brain fog, anxiety. The usual. I also experience palpitaitons after eating. It all started after I got COVID in the first wave (easy when you’re in the front line) and exacerbated after I gave labour to our daughter. Back then I thought it was post partum anxiety and received high dose Zoloft, which actually worked after five weeks. The next five years i would fluctuate betwreen Allright and good. But I quit my job as an md and never fully recovered.
Because I had a flare last year and did not recover fully yet I decided to try the sgb.
My doc had super good results en believed this could help me.

Unfortunately, the sgb did not have the outcome i hoped. I became super anxious, my heart rate went up after wards and i was so stressed that I was nausious all the time (also diarrhea). That lasted maybe for about three weeks and i would describe it as hell. I was bedbound, and could not take care of our daughter. I slept very poorly and woke up 3 times a night with palpitations. My conclusion (again, don’t get mad): the sgb was just too much for my nervous system or I was so anxious on beforehand I triggered myself into a flare. Eitherway, it sucked.

This last saturday however I started to feel some very light changes. My heart rate went a little down (less high in mornings after waking up and I started to eat a little bit), i could go downstairs for a while and actually play (whilst laying on the couch) with my girl and started Walking outside. The past few days I slowly slowly became better and better.
I am totally not there yet. Definately not. But I am out of that never ending loop of constant stress and anxiety. It comes Rather in waves now.

And I thought it was good to let this sub this know, as they maybe also read my panic posts.

I am not saying you should or shouldnt get the block (tbh if you would ask me right now I don’t think I would do it again, but ask me again In a month?), i am just telling my story hoping it will help people make a proper descision or just that they can read this when they experience the same. I contacted some redditors during my lowest of which some of them were super super sweet so I want to give something back as well.
Just know, you Will be ok. It will get better. And I hope I will for the next days. You can always ask me Anything!

Sooo, since i flooded this sub the past month with questions like “will i be ok???” and “are there any people who experienced the same thing?” I thought it would also be nice to post some positive story.

So today exactly a month ago i received my right sided sgb. I was extremely nervous on beforehand. Not for the treatment itself (honestly, easy peasy, i would rather have 1000 sgb’s at the same time then 1 more labour) but for the outcome and how i would feel after it. My main problem on beforehand was, I just cant describe it otherwise, a fucked nervous system. Whether it was due to myself, stress, covid etc etc, I truly believe that that is the root core. Your nervous system not being able to chill anymore die to whatever reason. I know I Will make enemies by saying this (but i am an MD myself so i kinda also see it from both sides) but also things as mcas, pots, dysautonomia? Wracked/deep fried nervous system. In my opinion at least.

That being sad, my complaints on beforehand were hyperaurasal (higher resting heart rate), fatique after doing nothing, brain fog, anxiety. The usual. I also experience palpitaitons after eating. It all started after I got COVID in the first wave (easy when you’re in the front line) and exacerbated after I gave labour to our daughter. Back then I thought it was post partum anxiety and received high dose Zoloft, which actually worked after five weeks. The next five years i would fluctuate betwreen Allright and good. But I quit my job as an md and never fully recovered.
Because I had a flare last year and did not recover fully yet I decided to try the sgb.
My doc had super good results en believed this could help me.

Unfortunately, the sgb did not have the outcome i hoped. I became super anxious, my heart rate went up after wards and i was so stressed that I was nausious all the time (also diarrhea). That lasted maybe for about three weeks and i would describe it as hell. I was bedbound, and could not take care of our daughter. I slept very poorly and woke up 3 times a night with palpitations. My conclusion (again, don’t get mad): the sgb was just too much for my nervous system or I was so anxious on beforehand I triggered myself into a flare. Eitherway, it sucked.

This last saturday however I started to feel some very light changes. My heart rate went a little down (less high in mornings after waking up and I started to eat a little bit), i could go downstairs for a while and actually play (whilst laying on the couch) with my girl and started Walking outside. The past few days I slowly slowly became better and better.
I am totally not there yet. Definately not. But I am out of that never ending loop of constant stress and anxiety. It comes Rather in waves now.

And I thought it was good to let this sub this know, as they maybe also read my panic posts.

I am not saying you should or shouldnt get the block (tbh if you would ask me right now I don’t think I would do it again, but ask me again In a month?), i am just telling my story hoping it will help people make a proper descision or just that they can read this when they experience the same. I contacted some redditors during my lowest of which some of them were super super sweet so I want to give something back as well.
Just know, you Will be ok. It will get better. And I hope I will for the next days. You can always ask me Anything!

————-
Edit 8/5: I did not expect this post to blow up like this, but I am glad it resonated. As i sad I am totally not a baseline yet (and today is actually a little mweh again) but i will keep hoping to improve the next days/weeks! Feel free to send me a message whenever you need it!