u/Training-Post9032

Hi guys,

How did you get rid of this thing? I am taking 4 anti h1 a day (let’s not say anything about mucosis dryness) and 300 mg Xolair every four weeks and I am still very much annoyed by it.

It used to be angiœdema mainly, with the occasional red plaques on autoinflammatory experiences.

But now that I am taking Xolair (and also, arguably, now that decades of political "leaders" have -successfully- changed France into Sahara) I have more issues with my UC than before.

It’s hell on earth. My allergologist will be pleased, as she was frowning an eye about my UC hurting and not really itching. Now the scenerey is complete, itching it is (too) and I think I have every distinct urticaria manifestation you can think of.

So. How did you get rid of this? Black magic rituals? What did it take for you to get your life back?

I am thinking expatriation, Scotland (I can’t go far up North as I have also huge health problems when it gets cold...).

Thanks for any help and advice.

It was not really "troubled" but there were particles inside. A lot. I told myself it was just condensation on the outside of the tube (I couldn’t reach...)

Now I get headache, axial pain, stiffness like I had no med at all, and I have to wait four weeks to get another one. I was about to take my first vacation in six years and I might have to cancel my plans. I hope it ’ ll be better than nothing but for now it’s like no drug at all.

I always use an insulated pouch to take ot to the fridge I never had this before....

I will never again accept a seringe with the slightest doubt regarding the product’s appearance.

The difficulty is I can’t check it on the spot I think you need to let it warm to ambient temperature to usefully inspect it (?). So you need to take it back to the pharmacy, which is great when youre in a flare... Making clear you were very careful and never had any issue like this before in years and have them replace the product, no discussion, thank you very much.

Does something like this happened to you? What happened in the following weeks?

Edit: so I phoned the lab. They were extremely kind , told me to bring the seringe back, that they would send another one for free and run an investigation to check what happened.

At the hospital, they told me they can’t let me do a new injection as long as they don’t know what happened. So here I am with back pain migraine, extreme dryness, and a fever. Four weeks.

Of course both gently scolded me : do not do the injection if there ’s the slightest doubt. But I thought this never happened... I was being picky... Lesson learned I guess, trust yourself.

Edit 2: what I did not know was, it’s really common the white precipitate form along the glass tube.

I would like to know if someone else is experiencing concomittant gastro intestinal issues ?

Mines entirely disappeared when I began Tremfya, reappeared with Covid, and now they are leaving their best life.

It's constant pain and diarrhea and colics and cramps and so on. It's even worse with rice and pasta, although I have no pb with gluten (we checked). It's exhausting.

I thought this could be due to MCAS but it seems very closely linked to my tremfya injections schedule.

I've just read that GI issues could require a higher Tremfya dosage than 100 mg every four weeks, which never seemed to cover the fourth week for my joints and skin. I have to wait until November to ask my GI specialist.

Do you also have GI symptoms ? How do they manifest ? How do you treat them ? Did you find Tremfya or another drug helped with that too ? And if so, are your docs aware of links between PsA and GI issues?

Qu’est-ce qui est mis en place sur ce forum, qielles sont les bonnes pratiques internes pour protéger les victimes d’agressions qui dénoncent des faits particulièrement graves? Les règles d’accueil des victimes d’agression er de violences sont elles respectées sur ce forum? Quelles sont les règles d’accueil des victimes?

Comment vous assurez-vous qu’elles sont entendues et protégées, et pas agressés par des monsieur Je-sais-tout qui sigbent des contrat pour carrefour et se prennent pour des enquêteurs de la pj?

Quelles sont les règles d’accueil des victimes dans ce forum?

Salut,

Mon voisin râcle en permanence contre le mur mitoyen. Il tape contre le mur de ma salle de bain. Il me réveille systématiquement une demie heure après que je sois endormie, c’est sa manière de me harceler. Tous les jours. Soir et sieste.

Il ne sort jamais de chez lui. Il s’arrange pour me croiser quand je ne vais pas bien , il fait référence à des données personnelles l’air de ne pas y toucher et il ricane comme un sale petit pervers à chaque fois que je lui adresse normamement la parole. (Il ricane parce que je me suis fait voler mon vélo, il ricane parce que je suis malade bref c’est vraiment un déchet de la race humaine)

Je suis presque certaine qu’il a piraté mes données personnelles, vu son manège dégueulasse. Mais la police dit qu’ils ne peuvent rien faire tant qu’il est discret. J’ai déposé une main courante mais il continue.

On peut faire quoi pour se prémunir contre ce genre de sale petite ordure acharnée ? Évidemment je suis seule et très malade, sinon il aurait peur.

LRAR "merci d’arrêter de faire du bruit". Mais pour les violences physiques et psychologiques? Quelles démarches pour qu’il réponde de ses actes?

À l’heure où je tape ces lignes il s’excite comme un gros crétin sur le mur à 23 heures. (pour donner une idée du déchet en pleine action...).

Why did it say I had unblock the user ? This post was very agressive - the guy had a sexual account, posted something his filthy delirium in a general for fun sub , and then the site said I cannot block them because I had already blocked and unblocked the (bright) user.

That’s really really strange considering I had just reported sexual abuses sooner.

I can’t believe someone at reddit uses its access to the platform to caution sexual abuse or make fun at a plaintiff ?

Surely, it must be someone exterior who pirated my phone navigator?

Hello,

I have been dating someone who I think is the epitome. Very insistant chase knowing full well I was ill, charming at first until agressive sexual gestures without consent, on our first night, impotence. Frustration deliberatly imposed. Not a word of regret. Never. I think I just went through three or four sexual agressions.

Mirroring behaviour 24/7, overlooking and contempt, under a "humor" labelling. Oh and complaining about his "duties" and gaslighting. And sparks of sheer anti social behaviour.

So. A few weeks and I feel I've just saved my own life. I am thinking a lot about the previous spouse who repportedly suffered from a long burnout, probably because of him. I am wondering if there was anything I could do. Like a word of support... I wish she could hear me.

Regards to all of us.