33F - Progressive neurological symptoms, normal initial tests, looking for similar experiences
Hi everyone,
I’m a 33-year-old female from Australia and I’m hoping to hear from anyone who has experienced something similar while I continue working with my doctors. I’m otherwise healthy. The only medication I take is letrozole for ovulation induction. I don’t have any significant medical conditions that I’m aware of except for asthma and thalassemia (minor).
Over the last few weeks or so I’ve developed a collection of symptoms that seem to be getting worse rather than better, and they’re becoming quite concerning.
My symptoms include:
Numbness and tingling affecting different parts of my body.
Weakness and a heavy feeling, particularly on one side at times.
A feeling that my coordination and balance aren’t quite right.
Neck pain and pain around my upper spine.
Episodes where taking a deep breath feels difficult or unsatisfying, even though I can breathe and my oxygen levels have been normal.
Dizziness and feeling “off”.
A sensation that something neurological is happening, although I can’t explain it well.
Symptoms seem to fluctuate throughout the day but overall have gradually progressed.
This has happened to me in the past, but only very rarely when I’ve been hungover and at the time thought that was the cause. This is no longer a factor as I am TTC (2.5 years).
I’ve been assessed medically. (Attended the ED twice). My vital signs have generally been normal and I’ve had some initial investigations that haven’t shown an obvious cause including blood tests and a contrast CT scan on my head and neck. Despite that, the symptoms continue, and I’m still waiting for further assessment.
I’m not looking for a diagnosis or medical advice. I’m simply wondering:
Has anyone experienced a similar combination of neurological symptoms that initially had normal tests?
If so, what did it eventually turn out to be?
Were there any investigations that ended up providing the answer (MRI, nerve conduction studies, blood tests, etc.)?
Did anyone have symptoms that came and went before becoming more persistent?
I’m continuing to follow up with my doctors and will seek urgent medical care again if things worsen, but I’d really appreciate hearing from anyone who’s been through something similar.
I’ve seen a cardiologist today, and am waiting for a referral to see a neurologist.
Thank you for reading.