u/hehasmastcells

It's getting really hot where I am at and I have a wall unit air conditioner, but it blows dust into my apartment when I turn it on. It is hell on my asthma. I even ran it for a couple days with an air filter in front of it to see if it just had to run its course but it still blows dust. There's no way to clean it out, it doesn't come apart at all. Should I give up and just buy a couple fans? Has anyone delt with this sort of thing before?

I got diagnosed a couple years ago but haven't been on hydroxychloroquine (homeless, transient, etc) except for a short stint when pre-diagnosis. And I am extremely sick. I am starting back on it tomorrow, but I have surgery in 2 months. I am not established with a rheumatologist in the United States and I have no idea how untreated Lupus is going to affect my surgery and recover. Does anyone have any advice? Thoughts/experience? I'm trying not to stress out.

As long as you do it because you like the pain and not because you hate yourself

I want to get a vnectomy with hysto becaude of atrophy, but I plan on doing phallo and I know surgeons tend to want to use v tissue for UL. But wouldnt that tissue atrophy down the line too? Would I need to use estriol cream on my genitals forever then? Does anyone know of an alternative for UL?

I frequently find myself harboring a lot of annoyance and resentment to people in my life/ people I meet who say they are disabled but are more abled than I am. I know its not a competition, and many people are more disabled than me, but I feel often that those who are partially or "slightly" disabled assume the same for me. Of course, people who are not disabled do the same thing, but it stings more when it cones from someone who you would think would understand.

I don't want to be bitter or get a complex about being more disabled than others, but I often find myself reminding myself that I need to have grace for others inherently because they aren't in the state I am in. But it has gotten to the point where I have little to know sympathy for struggle that feel less than my own and I resent others for talking about them. I never talk about mine, and I know that's just my nature and other people are different. But it rubs me the wrong way.

TLDR: Struggling to not be bitter over people with disabilities of lesser severity than my own.

All my friends are cis the only trans people I have met are the kind that are open about being trans and comfortable with it. I'm stealth, I'm trying to just survive and get my surgeries. But sometimes it just feels so isolating. Nobody who gets it. The feeling of crawling out of your skin, the complicated stressful messy medical system, and the societal impending genocide we got going for us.

I'm just kinda on my own with it. And even though i got a lot of solid people in my life I still feel lonely not being understood by anyone. Just trying to sort this shit out on my own. Fucking sucks.

I had my second xolair shot two weeks ago at 300mg and had my first one 10 days prior to that at 150mg. I'm due for my next one this Tuesday. But these past two weeks my asthma has been insane, as well as my environmental allergies. I have been struggling with any sort of minor scent or fragrance. Today I had the worst asthma attack of my life from the scent of laundry detergent, the same one we always use. I don't know what to do. Is it from Xolair??

I also have bad food allergies but those haven't been any better or worse that I have noticed.

Any thoughts or advice greatly appreciated

My asthma has gone from bad to severe this past week to the point I am have asthma attacks from the scent of laundry detergent. Its never been this bad. The only thing that I can think to correlate it with is I got my second Xolair shot two weeks ago. It seems like its been increasingly worsening ever since. Has anyone experienced something similar?

I also have horrible food allergies and those haven't gotten any worse, but I am debating canceling/post-poning my next shot.

I live in an apartment complex and every night around 12-1230am someone smoke weed off their balcony. I have really severe asthma and allergies and run air filters 24/7 and sleep with my window open. If I sleep with it closed I wake up repeatedly throughout the night unable to breath. But the trouble is, I am anaphylactic to cannabis, even tracely second hand. I have been trying to stay up or wake up to open my windows around 1am but I have to wake up early and the lack of sleep is doing a number on me too. I don't know what to do. I don't know which neighbor it is so I can't talk to them about it. I'm about ready to out a note on everyone's door explaining I'm allergic and begging them not to smoke off their balcony. Do I just keep buying more air filters? It is against our lease and against city ordinance, but I haven't called my landlord because a) I don't think they will care and b) I'd rather just talk to my neighbors rather than jeopardizing their lease. It is possible that its someone in the building next to ours, but I have no way of knowing because I can't go out to check.

My total IgE consistently comes back as undetectable, but I have severe severe asthma and food allergies and go into anaphylaxis on a regular basis.

My allergist doesn't know what to do with me because all of my allergy testing comes back negative. Does anyone have any thoughts or know how to make sense of if?

I have been severely severely sick since my early childhood with food and environmental allergies. I take loads of medications and finally got on Xolair and after two doses already feel better. But I got blood testing done and after seeing my Ige is all negative for allergy and my serum tryptase is low my doctor doesnt see there being enough justification to keep me on it. he doesnt think my symptoms are enough when I have no blood work backing me up.

Does anyone know of any way I can convince him? Is it a lost cause? What to do? ​