u/jewelbjule

Went to see my mom today at her new assisted living place. Immediately upon entering her room I smelled feces. In bathroom I noticed she had recently had a BM (more like diarrhea) and had not flushed so I assumed it might be that. I was also aware she had not showered In at least 3 weeks so I had her shower. Her place said they’d remind her and help her shower, but that’s not happening. Put her in fresh clothes after shower, but the poo smell lingered. I then noticed a poop stain on her comforter which I packed up with a couple other dirty clothes items to launder at my house. I noticed all the pants and some of the underwear had poop smeared all over them.

I didn’t quiz her about any this, I mean what’s the point? Do I on next visit do the poop smear search on her clothes and belongings? Is this just weird dementia stuff (bad wiping, etc) Do I alert AL staff? They do the absolute minimum there so I’m not sure much would change in terms of her care…

Hoping this was a one off due to eating something that gave her loose BM’s? Any advice from those who have seen this transition is welcome. It’s been 5 years since her ALZ diagnosis, so is this about the time incontinence would start? And let me scream this into the void I FUCKING HATE THIS DISEASE

Just left from a visit with mom at her new AL/MC facility. She appeared to be well, but for the life of her she cannot get her head around the concept of changing clothes and that includes underwear. She had on the same thing I saw her wearing 10 days ago. I checked around her room for a pile of dirty clothes and saw none. This has been a struggle for her since her dementia/ALZ diagnosis and I can’t think of anyway to assist her. She sleeps in these same clothes. She smells a little off, nothing too nasty. I’m not going to bother anyone there either about it. They’ll say, ya sure we’ll help her and then nothing changes. Complaining won’t change anything and might put her on a few CNA’s bad side. At this new place I think the assistance with dressing will only happen in MC. She’s sort of at a crossroad of needing memory care but not really. She can toliet herself, feed herself but needs constant direction. At her previous assisted living which we left due to extremely expensive pricing we were actually paying additional “ADL” assistance fees of $33 a day for someone to redirect her to change clothes and they basically blew it off because I’d see the same pattern there. Same clothes weeks at a time, sleeping in them too. Complaining did nothing.

The underwear part disturbs me because wearing the same underpants for days on end could probably contribute to a UTI. Short of driving out there morning and night to help her change I don’t really think there’s much I can do.

Dementia fucking sucks😖

I’ve been on Wegovy for almost 2 months now, down 10 pounds. Happy with the results and even happier with the minimal side effects I’m experiencing.

I’m very aware during the last week over my increased ability to multitask efficiently and not feel stressed and overwhelmed. So I read that since it really does reduce the food noise that it can create more bandwidth for you to have better cognitive control on other areas that need your attention. I suspect I’ve had mild ADHD and I feel like this drug is helping me!

Anyone else getting side effects mentally that they feel are a big boost?

I desperately want to and need to get my collection of I’m guessing approx 3000 photos that is housed in half a dozen shoeboxes and 12 photo album books and wicker bins down to about 300 saved photos. Maybe one box and the rest in 3 or 4 albums.

How do I even begin? How do I decide what makes the cut? Help me help me please!!

So today we’re moving my 87 y.o. mom who has late onset ALZ from her current AL/MC to one that will take Medicaid when her funds dry up (we’re like 2 years away from that)…

I came by yesterday to pack up all her clothes and this morning noticed she never got into her pajamas I layed out last night and her bed looked barely slept in. So after asking some questions I learned she just sleeps in the clothes she has on and doesn’t get under her sheets and blanket, just sleeps on top of the bed with a throw covering her.

3 years ago this would have really bothered me and I would become fixated on her unwillingness to change into pajamas at bedtime and sleep under her blanket. I can completely let this stuff go today.

She’s fed, she’s relatively clean, not covered in bedsores. And if she can sleep in jeans and a sweatshirt, I’m fine with that!

I’m closing in on day 20 of the lowest starter dose and I am feeling different. I’ve lost 3# but more importantly the “feeling full” when half way through a sandwich, a serving, a meal has really kicked in. I still get hunger pangs and feel famished with strong cues to eat at least twice a day, but after a few bites I truly feel full. I’m throwing out more food than I’m eating. The portion control effect will be a huge for me!

Also, nothing overly unpleasant with side effects. No major GI disturbances.

Did anyone else see changes this early with Wegovy? I feel very very hopeful that this stuff will truly work. 65F, pre-diabetic, 5’4” and currently 215#, aiming for 150#. Was never overweight until menopause. So excited to fit comfortably in a plane seat again and walk miles without knee pain!

Looking for advice on how to best inform my 87 year old Mom that she will be moving from her current pricey assisted living facility that she’s lived at for 3 years. We are facing the possibility she may outlive her money, so we are being proactive and moving her to a facility that accepts Medicaid should the need arise. Best case scenario is that we have about 2.5 years of funds left, so she may pass before or may not. She has a 92 year old sister who is alive and well so longevity in her family is not uncommon (although two siblings died at 88 & 89 recently)

She has fairly advanced dementia, stage 5, maybe early stage 6. I know anything we tell her she will not remember and I’m not even sure telling her she’s moving in a couple months serves any purpose. Should we just show up on moving day and keep her busy until her current assisted living apartment is packed and moved out? And then just drive her to her new home? She’s not particularly prone to anxiety and her capacity with language is really diminished.

Any input from anyone who’s had to move a parent with ALZ/dementia from one facility to a new one is welcome…and a word to the wise: pick a facility that is private pay/medicaid friendly when you decide to rehome your parent ALZ/dementia. I never thought we’d run out of money when this started although I knew it would be tight, but man it went fast! Once she needed more assistance the bills at the pricey private AL we are at got insane!