u/lexa246

28M, 6+ weeks into something my doctors can’t figure out — anyone been through this?

Hoping someone has been through something similar.

I’m 28, generally healthy. Back in November 2023 I had a minor concussion playing football. A couple days later I started peeing constantly about 6L a day, drinking water nonstop, constant thirst, had a racing heart, body temp fluctuations, brain fog. Lasted 3-4 weeks then went away completely. Did check ups at one point my thyroid tsh was low but went back to normal.

August 2024 I tapped my head on an overhead luggage bin getting off a plane. Few hours later, same thing — peeing 6L more a day and thirst. Lasted 2 weeks, resolved.

Then 19 months of being totally fine. Ran a marathon. Lived normally. Bumped my head a few times during that period and nothing happened.

April 12 this year it came back with no trigger. Hadn’t hit my head in months. Wasn’t sick or stressed. Just started.

But this one is completely different.

First 5 days were like before — excessive thirst, peeing 4-5L a day. Then April 17 it flipped. Output dropped to 400-1200mL despite drinking 2-3L. Concentrated urine. Headaches, dizziness started.

April 27 my thirst just disappeared. Not reduced — gone. Next day my hunger went too. Can’t tell when I’m hungry, can’t tell when I’m full. Three weeks later, still gone.

Then it started flip-flopping. Brief bursts of peeing a lot, then clamping down hard for days. Drink 2L, pee 400mL. Next day pee constantly. No pattern.

I got a full workup at a major hospital. 3T MRI brain and pituitary with contrast — clean except partial empty sella (apparently common, often incidental). Sodium stable at 138-141 throughout. Cortisol stim test normal. All pituitary hormones normal. Kidneys fine. Inflammation markers clean.

Doctors couldn’t find anything. Everything looks normal.

I’m at week 6-7 now. Still no thirst. Still no hunger. Still oscillating between peeing a lot and clamping completely. Sleep is broken. Constant low-level headache. Weak on standing. Brain fog.

My sodium is still fine. Everything keeps testing clean. But I keep flip-flopping and the not-knowing is killing me.

The first two episodes had clear triggers and resolved cleanly. This one has no trigger, keeps evolving, and has lasted 4x longer than my previous ones.

Anyone been through something like this? Episodes that come and go for years then one that’s completely different? Multi-system stuff where thirst, hunger, and sleep all get affected at once? Cant find anything online at all.

Nothing is making sense and I’m worried this time around it’s permanent because no one can explain and no one has ever heard of this. And this episode whatever it is, is so different compared to any of the other episodes. And I only started getting these weird episodes after I hit my head.

28M, 6+ weeks into something my doctors can’t figure out — anyone been through this?

Hoping someone has been through something similar.

I’m 28, generally healthy. Back in November 2023 I had a minor concussion playing football. A couple days later I started peeing constantly about 6L a day, drinking water nonstop, constant thirst, had a racing heart, body temp fluctuations, brain fog. Lasted 3-4 weeks then went away completely. Did check ups at one point my thyroid tsh was low but went back to normal.

August 2024 I tapped my head on an overhead luggage bin getting off a plane. Few hours later, same thing — peeing 6L more a day and thirst. Lasted 2 weeks, resolved.

Then 19 months of being totally fine. Ran a marathon. Lived normally. Bumped my head a few times during that period and nothing happened.

April 12 this year it came back with no trigger. Hadn’t hit my head in months. Wasn’t sick or stressed. Just started.

But this one is completely different.

First 5 days were like before — excessive thirst, peeing 4-5L a day. Then April 17 it flipped. Output dropped to 400-1200mL despite drinking 2-3L. Concentrated urine. Headaches, dizziness started.

April 27 my thirst just disappeared. Not reduced — gone. Next day my hunger went too. Can’t tell when I’m hungry, can’t tell when I’m full. Three weeks later, still gone.

Then it started flip-flopping. Brief bursts of peeing a lot, then clamping down hard for days. Drink 2L, pee 400mL. Next day pee constantly. No pattern.

I got a full workup at a major hospital. 3T MRI brain and pituitary with contrast — clean except partial empty sella (apparently common, often incidental). Sodium stable at 138-141 throughout. Cortisol stim test normal. All pituitary hormones normal. Kidneys fine. Inflammation markers clean.

Doctors couldn’t find anything. Everything looks normal.

I’m at week 6-7 now. Still no thirst. Still no hunger. Still oscillating between peeing a lot and clamping completely. Sleep is broken. Constant low-level headache. Weak on standing. Brain fog.

My sodium is still fine. Everything keeps testing clean. But I keep flip-flopping and the not-knowing is killing me.

The first two episodes had clear triggers and resolved cleanly. This one has no trigger, keeps evolving, and has lasted 4x longer than my previous ones.

Anyone been through something like this? Episodes that come and go for years then one that’s completely different? Multi-system stuff where thirst, hunger, and sleep all get affected at once? Cant find anything online at all.

Nothing is making sense and I’m worried this time around it’s permanent because no one can explain and no one has ever heard of this. And this episode whatever it is, is so different compared to any of the other episodes. And I only started getting these weird episodes after I hit my head.