▲ 28 r/POTS

Wearable Devices: anything with real time alerts before things get too bad?

I currently have an Apple Watch (3 years old) and perhaps there’s something I could or should be utilizing for alert systems but I’m not techie.

Would something like the visible band or oura ring be able to give me an alert about stress level or heart rate before I’m suddenly having pre-syncope seemingly out of nowhere?

I’m ok with paying for any sort of subscription for peace of mind or getting an app to add to my Apple Watch. It seems like visible has been a great tool for many with the real time HR tracking. I also am having pelvic/gyn issues that seem to correlated, luckily found a lovely and very informed specialist who will be assessing for pelvic congestion and adeno.

Context for ask: I haven’t had a severe pre-syncope event in over two years now (I still struggle but luckily have gotten to know my body well enough to do what helps). Today I was in the car with my kids and what felt like completely out of the blue, I went into a full pre-syncope event while driving. Luckily/ironically I was on the way to the hematologist (for my low ferritin I very much need an infusion for), pulled up to the ER and yelled for help and told them my kids were in the car. I’m tearing up writing this because having my kids in the car while it happened made me horrified and think of the worst that could happen. I’m very lucky that my body is hyper resistant to fainting even at very low BP (lowest recorded standing at the doctors required two nurses manual and was 52/28, they were horrified, I was so Ill I didn’t have time to be)

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u/queenleo93 — 6 days ago
▲ 5 r/PlymouthMI+1 crossposts

Experience with working in Plymouth Canton/Livonia/Northville/Novi/Salem/South Lyon/Ann Arbor or other metro Detroit school districts?

Hi all!
Looking for individuals with experience working in Plymouth Canton schools to get the energy on culture. I am a Northville native but have been living out of the state for a decade, we are potentially moving back to the area and I work in education. I’m trying to get a grasp on the culture of working in districts like Plymouth Canton, Northville, Livonia and any other.

For context, I am a very progressive liberal, in my thirties, married with kids. It’s important for me to work in educational environments that love and accept all people out loud (not behind closed doors), feels like a true community, not just one from the outside, and you feel has fair (not perfect) leadership style from the top, not one acting like a corporation. I am coming from a well resourced district in another state that looks very shiny on the outside and had the best test scores, but the culture was toxic, I would have positive culture over higher pay and step increases any day (although both are deserved in education 🤪)

My first go to was Ann Arbor, but it looks like they historically have not taken good care of their employees. Culturally, it seems like many of the schools would fit what I’m looking for.

Public education is tough right now, there are no unicorns, times are weird for all, but I would love to get some insight.

Thanks for any and all!

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u/queenleo93 — 12 days ago

Almost a year since our girl died very suddenly

It’s been almost a year since we lost our big, beautiful gentle girl suddenly at 5.5. We feel her with is often. I am intuitive and recover messages sometimes but will easily question them. I think she told me she did her job here, she knew her journey would be shorter but wouldn’t change it. She traded places to make sure my sister was ok. She was a healer, a very powerful one. We miss her so much still every day and I’m wondering if anyone else is getting messages from her. Anything is so greatly appreciated ❤️

u/queenleo93 — 20 days ago

Finally Left

It’s hard to write this, because like anyone who goes into school SW, or into education/social work in general know, we do it for the passion of the work.

I’ve spent a decade in schools, a few years in mid/low income settings and the rest in a higher income district. I think anyone who has been in either knows that stress is stress. The stress looks slightly different in one setting vs the other, but it is still just as present. The severity of the behaviors, the lack of kindness and respect from parents, the out of touch attitudes of the admins and district office, the many invisible hats we wear, the brunt we take on of the most disgruntled parents. It has taken such a toll.

Despite the stress, leaving my school, my coworkers, and my students, was unbelievably painful. I’m still grieving. There’s a part of me desperate to find another school even though I have already started my new job at a well established and well run non profit (Rare words as well) and I do like it a lot so far. I think in a way I became addicted to the adrenaline pushing me through most days, but I was so aware of how it was harming me physically and making it difficult to show up for my own kids when I got home.

Education is on the brink of collapse right now, and I think the only people who know how real that statement is are those who have lived it prior to the 19/20 school year. Things were already getting a lot tougher before Covid. Societally, we can’t sustain what is happening in our schools with the limited resources and the zeitgeist that has painted public education as the enemy.

I wanted to put this here for anyone who is thinking of leaving or those thinking of entering. This is not a friendly lane of social work for those who are neurodiverse, parents to very young kids, or both. I could see myself MAYBE trying again in a couple years when both of my kiddos are elementary age, but I would be very mindful of the school culture and type of admin I would be working with.

So long for now and best of luck to those still in it ❤️❤️ You’re amazing, even if you don’t hear it as much as you deserve to.

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u/queenleo93 — 25 days ago

Small victory!

I just started LDN a couple weeks ago at 1.5 mg. I’m one of the very sensitive people (it seems my community tends to be POTS, hEDS, MCAS) and starting flaring on day 3. Saw some of the posts on here and decided to try .5 after a couple days off and back to baseline. So far, almost a week in I don’t have any side effects.

Yesterday I did a lot of physical work, gardening and movement with my kids, the sun was also pretty strong. I could feel the type of exhaustion where I knew I was overdoing it and would typically have bad PEM. Instead, I got inside, cooled off, had a snack, had more water and even after two night with less than normal sleep I’m feeling quite good today and have no PEM or flare symptoms. It could be a coincidence, but I choose to believe that even at this small dose, the LDN is starting to work and I can’t wait to see the changes to come at higher doses 😀

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u/queenleo93 — 2 months ago