Specialist said no to fusion surgery for now

Specialist said no to fusion surgery for now

I’m trying to understand why the specialist won’t do fusion surgery on me when my pain has been steadily increasing since I was 12 years old. I went to an orthopedist nurse practitioner Thursday. He sent my x-rays to the actual specialist and had a talk with him. He doesn’t want to do the surgery because it’s not causing any issues or whatever. Just besides the crippling back pain and the ramp up in nerve issues in my legs and arms. He said I’m going to go get an MRI done to check for nerve issues and to start physical therapy somewhere again. I was given 8 days of steroids to help with things. I’m really hoping they find nerve issues so I can make a case that fusion would be the best idea for me. I was told when I was 16 it was up to me if I wanted surgery done because I was on the surgery border. I was scared so I said no. I am in so much pain now that it’s making all of my mental health issues worse. I can’t work at all. My best friend just moved in with me to pay all of the bills. Has anyone dealt with a specialist saying no to fusion? I’m at a loss. 25 and 48 degree s curve.

u/racinnic — 12 days ago

Do neurodivergent women just attract bad/horrible men?

I just got out of another terrible relationship with a cis man again. Thankfully, this time it was fairly short because I know my worth now. What’s up with these abusive and/or bad men seeming to flock to me? Is it also because I have trauma/PTSD besides the ADHD? I’m just tired of men thinking they can be shitty or abusive to me. It makes me want to just completely not allow cis men to be with me romantically or sexually anymore. It’s about to be cis women, trans women, trans men, and other trans folks for me because I haven’t had nearly the amount of problems with them in any way.

Do any of you ladies deal with the same issue? Are we just a magnet for them?

reddit.com
u/racinnic — 1 month ago

Coloring while smoking ☺️💨

I’ve been coloring and smoking/eating edibles to relax lately! It’s so enjoyable!

u/racinnic — 2 months ago

Struggling to keep going

(Mention of SI/SH)

So, I lost my library job in April of this year. I was put on paid administrative leave after I came back from the psych ward. I had a crisis in therapy. Psych ward doesn’t help much anyway. It never does. I was called the mean one by staff just because I was having a (C)PTSD episode brought on by how my boss was treating me. I screamed, cried, slammed my fists in the walls and floor because I was told I couldn’t have my stuffed animal with me.

This happened in the beginning of March. I had asked for accommodations back in the middle of December. So they fired me in the middle of all of that and a psych ward stay.

I didn’t get approved for unemployment because I didn’t make enough money while I worked there because even full time wasn’t full time hours. I took out my small retirement fund.

I’m now working as a contractor for a merchandising company. My anxiety about working has been god awful. My pain from my severe (48 degree curve) scoliosis is killing me just doing this job a few hours at a time. I’m trying to get on disability for my ADHD, PTSD (really CPTSD), severe scoliosis and hidradenitis suppurativa. I know it takes a long time though.

I’m not sure what to do because I can’t handle working full time and haven’t been able to handle that for a few years now. I can’t get a job that isn’t very physical, just cleaning and merchandising.

I’m not sure how to keep going. I just want to give up. I’m always in pain anyway, and now doing merchandising again it’s getting worse. I have bills to pay though and DoorDash doesn’t pay shit. Fuck this country. Fuck the way I get treated at almost every job because I’m physically and mentally disabled. My suicidal thoughts went away for a few months since starting vyvanse, but they’re back now, along with wanting to self harm. I don’t know what to do.

reddit.com
u/racinnic — 2 months ago

Got my first set!

Got my first set of Ohuhu markers!! Little present to myself for getting through a rough week. ☺️ I’m so excited!!

u/racinnic — 2 months ago

I didn’t remember my curve being this bad at 16, but it hasn’t changed. I don’t remember the surgeon telling me it was at surgery level. He just said I could get it done if I didn’t like how I looked. My results said “Chronic thoracic and lumbar scoliosis with 25 degrees levoconvex lower thoracic curvature and 48 degrees dextroconvex thoracolumbar curvature, not significantly changed.”

Have any of you other adults decided to get surgery if yours was severe? I’m going into pain management and physical therapy soon. I’m always in so much pain, can’t breathe well/right, and I’m dealing with chronic fatigue.

u/racinnic — 6 months ago