r/Dyshidrosis | reddlx

Weekly how are you doing/ place to vent about your dyshidrosis/ what you've done that's helped.

This is the place to discuss your dyshidrosis woes/ what's been helping or just to have a rant about it.

WTF

Guys I’m prob like 7 months in to this dyshidrosis life & I’m getting fed UP. Wtf are the bubbles??? Why do they develop ??? My hand was just starting to look good and now it’s starting to flare up again. LIKE what did I even do to cause the flare up. I don’t even know what to fucking do anymore. My doctor gave me some steroid cream I try not to use it all the time because she said that was bad. Now for my other hand WTF they gave me anti biotic cream but it looks awful imo I showed the doctor when it didn’t look /as/ yellowish and she’s telling me it’s fine and not infected like uhhh are you sure !?! I feel like I’ve been striked down with an awful curse and I’m just at my limit I just can’t do this anymore … WTF i feel like this is ruining my mental … my last straw was when my coworker said it looks like warts 😐
It feels impossible to find what’s triggering this it’s like. A twisted guessing game.

u/superkawaiiprincess — 11 days ago

▲ 10 r/Dyshidrosis

Worst flare ever

Had an archery shoot yesterday and was out in the bush all day now my hands are looking so gross I can hardly stand it. I don’t know what to do about it as if I cover it they rip and bleed either way. Any ideas?

u/Unknown_5461099 — 11 days ago

▲ 11 r/Dyshidrosis

I dont see dermatology for another few weeks...

2nd flare up that came back worse after applying ointment for a couple days...I have these little blisters in my palms and fingers and they seem to multiply everyday even after I stopped using the soap that I think may have triggered it. Any advice? Thank you

u/ObviousAardvark990 — 12 days ago

▲ 56 r/Dyshidrosis

Shrinkflation

Disembowelled top tube (60g) is what I was given in summer during an awful breakout that cracked my whole palm, and it lasted me about three months. Bottom tube (30g) is what I was given last month after seeing bubbles return. I used daily with weekends off (both for dyshidrosis and general eczema) and burned through the 30g tube like nothing. Anyone else noticed this with their cream or does my pharmacy just hate me

u/Yensial_0 — 14 days ago

▲ 19 r/Dyshidrosis

Finally - an actual solution (for me)

TLDR: Oral phosphatidylcholine worked for me

Background: I suffered with DE with no relief for about 6-8 months, was prescribed every steroid, jak inhibitor, topical immuno suppressant before finally getting approved for Dupixant which brought relief and and symptom remission. According to my derm I had the worst case of DE she had ever seen. You can see pics of my full timeline in a previous post.

Despite getting relief from Dupixant, when I started to space out my doses the itching and DE came back - full force. Dupixant is not a solution, just a bandaid. I also knew DE was not itself an illness but just a symptom of a mysterious something else. This kept me hopeful because it meant it could be solved.

What I discovered: I have to read, digest, and interpret a lot of scientific research for work. Much of this research is around or in molecular biology and biochemistry. I consider myself so lucky as I love to learn and occasionally experiment in a personal hypothesis in my free time.

I had already done extensive reading on DE, its unique structure and signaling. When I was in the worst of my suffering I just read and re read everything I could about what scientists knew about it, hoping i’d eventually figure a way out.

Then one day while working I had to interface with phosphatidylcholine and its cellular responsibly, structure, signaling, and studies. Phosphatidylcholine has not been studied specifically for DE. And not everything can be studied for curiosity as funding is limited. PC has been studied for some skin conditions with significant findings however the spotlight was taken by PC and its cardiovascular benefits which impacted a larger audience.

But what struck me was what phosphatidylcholine was responsible for and what mechanisms were at play for DE - in conjunction with what I already know about my own genetics and biology. ⬅️* This is most important because truly I have no way of knowing if anyone else would have the same outcome as me*.

Needless to say my brain had that lock in key moment I’d been waiting for.

The result: I got my oral phosphatidylcholine, and I am officially off Dupixant and DE free. Finally.

I decided to share this because, I know what it’s like to truly suffer with this and I believe only we are in the position to be our best health advocate.

Oral phosphatidylcholine worked for me, it replaced a very expensive pharmaceutical, and it finally gave me a solution that likely wouldn’t have been suggested to me by anyone. Everything is figureoutable. There are answers for those who seek to find them. You can do the thing 💓

reddit.com

u/Pretty_inPoker — 13 days ago

▲ 17 r/Dyshidrosis

anyone else flaring up like crazy 😔

my first post on here, didn’t realize there was a whole community for DE on its own!!
just put on some ointment which is why my hand looks greasy … i hate the ointment so much ITS SO OILY

still not 100% sure i have it but with the photos i’ve seen and how my hand looks without ointment on, it’s very similar especially with the gnarly blisters 😔
i used to work part-time as a fast food worker and washed my hands constantly; im really surprised i only started developing DE late last year as i’ve had that job for 3 years now. i would constantly wash my hands and im so surprised i only got it now lol. it started as a tiny patch and i asked my sister (she has it) if it looked like it last december and she was like “nahhhh i think you’ll be fine”…… turns out it was not fine and it spread all over my ring finger over the past 10 months 😔😔😔 it’s starting to spread in between my fingers and my palms which is so annoying.
i also live in a much more humid area for school now than i used to so i wonder if that ended up speeding the spread at all, if anyone knows anything about that lmk!!!

u/zerosegardens — 14 days ago

▲ 4 r/Dyshidrosis

Flared up again after finishing 2 weeks of Clobetasol ?

Hey everyone, my derm put me on Clobetasol for 2 weeks. Once I finished it, my hands flared up again 2-3 days later and I'm not sure why. Could it be fungal or staph?

For now I'm doing bleach baths and putting zinc oxide on every night until I see him again.

u/Wavenz — 14 days ago