I was just prescribed prednisone: 40mg (5days)-20mg (5days)-10mg (5 days). Has anyone done this course and had bad side effects? My ENT said he prescribes this often for polyps and side effects are rare.. 10%
Can anyone share their experience?
Thanks much
Hi, I had surgery 9 days ago and I had my splints removed 2 days ago. After I had my splints removed my surgeon informed me that all is well and to do saline rinses once in a while to clear out the area of any old blood etc. I looked in my nose that day and it was clear, with no inflammation or swelling. I did the saline rinse that same night and noticed extreme swelling and pain/redness. I called the clinic that morning and was told that it was normal and to not do any saline rinses anymore and to take Tylenol or Advil. Now I am about 48 hours into this inflammation and was going to make an appointment with my doctor/surgeon to make sure all is well but his office went on summer break for 3 weeks. :/ Has anyone else experienced this? Is it really normal and how long did it take for the swelling to go down?
Story: I ( 36m ) caught the flu 5 months ago, left nostril has been continuously clogged since and never really recovered. Diagnosed with a nasal polyp. Surgery got moved up but I still have a month until even the pre-op consultation, let alone the operation prob. 3 months later. ( Germany lol ) CT Shows also a polyp in left cavities.
I know steroid sprays and rinses are the standard answer and I'm already doing those. What I'm really asking is: what actually got you through the waiting period before surgery? Anything that made a real difference to daily life, or anything you wish you'd known sooner?
I got a private recipe for Budesonid for nasal shower as an additive, from a befriended doctor.
But two ENTs said that would not help.. while I read some posts here that it helped ?
Edit: I wake up every morning from the foulest taste in my mouth from nasal drippings...
Quality of life is genuinely down about 50% right now. Would appreciate hearing what worked for people who've been through this.
Much love and thank you for any suggestions and support.
In my 16th year of this journey, but only got diagnosed just over ten years ago. Had surgery. All kinds of meds. Had Dupixent. Now Nucala. Very greatful to have the access and availability so don't get me wrong. I am absolutely blessed. But today I went in for another checkin. Haven't had a sense of smell in months. And my polyps grew again. Will this ever end?
Fyi:
- surgery 10 years ago
- over 1 year of dupixent/nucala
- Fluticasone in AM and PM
- on keto diet
- BMI healthy, fit
:-(
I have pretty bad nasal polyps with a lot of post nasal drip, so much that it has started to cause a lot of wheezing, coughing, and constant throat clearing. Has anyone else ever experienced this?
I first started having bad breath & dry mouth in 2024. I noticed a loss of sense of smell and nose blockage & mucus building up. Also what I believe to be post nasal drip. Since then my symptoms have worsened by 10x. I constantly have a dry mouth & throat and the thing that bothers me the most is the heat I feel coming from my nose. It feels hot to the touch when I’m breathing out. Also sometimes when it’s really bad I can’t breath through one nostril at all like if I were to cover the nostril I could breath thru I’m not getting any air thru the blocked nostril. It scares me a lot. Has anyone experienced this? I had a nasal endoscopy last year but they didn’t see anything wrong
Have had sinusitis surgery in the past, roughly 2.5 years ago. Polyps stayed at bay but have reappeared though not as bad as when I had quite severe blockage. Lower sinus polyps have been reduced through budesonide and prednisone but upper polyps remain. I’ve been using a squeeze bottle, not a pulsing machine.
ENT recommended I use a hand stand trainer to get the budesonide up in that cavity but curious if anyone else has had success some other path to rinse the cavity? According to the ENT I will likely need to stay on budesonide for the rest of my life (42) which doesn’t seem right - but we do have two golden doodles which we keep out of our room the best we can and don’t shed. We also vacuum frequently and have air purifiers in each room so not sure what else to do in our environment to prevent the inflammation.
Any help would be great!
I (31F) have had polyps / the triad for about 2 years, I am on Dupixent so it is well controlled. However, I’ve noticed that when I catch a cold, sinus infection, URI, etc. that the polyps seem to flare despite the Dupixent. Has anyone else experienced this?
I fly and travel a lot for work so I often catch a common cold but I feel like it takes me sooo much longer to recover than it would prior to try the polyps emerging. After ~1 week, my aymptoms start to mirror exactly what it was like before I started on Dupixent- constant runny nose, cough, smell interrupted, etc. Curious if anyone else has this experience and if there are any suggestions. Thanks!