r/OcularMigraines

Hey all, about 2 or so months ago I was recommended baby aspirin daily for my visual auras and since then I haven’t had any surprisingly I was also suggested it as I’m pregnant with my second but I only started getting auras a little over a year ago so they where not pregnancy related. My question is how was everyone else experience who has taken baby aspirin to help their auras? I’m really nervous if I stop taking it they will definitely come back. I think one of the drs have said it’s safe to take long term but I mean if where talking as a nearly permanent thing to keep clear of the auras I’m nervous is this dangerous?

Hello, i have been experiencing these weird symptoms since approximately 6 to 8 weeks now:

- Horrible Pressure in temples and front (I feel compelled to keep placing my hand on my forehead to relieve the pressure) + very visible temporal arteries (snake-shaped).

- Decline in vision

- Pressure around the right eye

- Brutal and very quick hair loss (overall but specifically in the hairline corners), i've never had this, my hair lost 1/3 of its volume in like 1 month.

I already went to see an ophtalmologist that examined my fundus, and there is no edema.

28 Male, 185 cm, 95 kgs, non-smoker, non-drinker. I went to see lots of doctors but no-one seems interest to conduct an in depth analysis on the subject, they just prescribe normal blood tests.

I have symptoms of either a migraine or seizure disorder and I’m curious how your triggers work? For me if I don’t get enough sleep I’m almost definitely going to have an aura the next day or the day after. Another big one is if I overheat/overexert myself I almost always have one. How do your triggers work? What kinds of triggers do you have?

Hi, I am new here. I just started a new job where I work in a wharehouse with neons light. as soon as I get inside that working area, I start to have a very unpleasant headache. Its not a headache I am used to, but I definitely feel sick after like 15 minutes being there.

I can only describe that as "I need to close my eyes so bad"

I start to feel better as soon as I get out of there.

what is it!? the neons? I need glasses?

I thought it was because I needed glasses, but my prescription is really not that bad, I have a little bit of astigmatism. (waiting for a new pair of glasses)

My point is that I don't have that when I am home, or only if I read on my cellphone in the dark without my glasses.

Once that "migraine" starts, it last for hours. I need to go lay down, in the dark and close my eyes for a while.

what helps you with that? can it be the neons at work!? Really?

I use to not like the lighting in malls, but I've never had these intense migraine or head pressure before. It literally started after my first week at work. Can they fire me because of that? (I can totally do my work remote, but there's in office meetings that I can't assist. Should they arrange something for me, or eventually I will get fired because I am too demanding?

What are everyone’s post migraine with aura symptoms and how long do they usually last?

I think I have either a migraine or seizure disorder. I don’t get headaches but I do get auras which I think could be silent migraines. I was wondering how often you guys are getting migraines or auras. It’s normal for me to get 2-3 a day but I’ve definitely had more. I can also go days without one or only get one in a day. How frequent are your symptoms?

I started having classic migraines w/aura at 13 years old. Stress + dehydration + poor sleep seem to have been a triggering combo. The pain stop accompanying the aura a couple years ago. I am now 53. But now I get them in spurts but they seem to be increasing. I can sometimes go months without one and other times I can have several a week. Other than the visual disturbances and fatigue, I have the occasional speech and reading comprehension issues that come along with them.

I’ve always associated an attack as a sort of micro stroke. I had a brain MRI a few years ago and the doctor stated that the results looks like I had experienced a bunch of mini strokes, which alarmed me. So he scheduled another mri with contrast which showed a lot of spots in the gray matter. The doctor didn’t seem too concerned but wants me to repeat brain mris every few years.

I can’t help but think that with every attack, though no pain anymore, I am causing a little more damage to my brain. Anyone else feel this way?

For those who have migraines because of eye strain.. what do you do to make your eyes stop hurting?

Most if not all my migraines stem from my eyes.
I could do everything right - rest my eyes, not wear my glasses too long, use eye drops to help with dryness, dim lighting on all my devices, etc - but I’ll still get eye strain and get a migraine.

It’s irritating and I’m just looking to see what you guys have done to help get through the day.

I sometimes so the migraine McDonald’s meal which helps a lot but it doesn’t make it go away.

Any help is appreciated

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My sister woke up just over five weeks ago with a constant spinning spiral/black dot in her vision, visible with her eyes open and closed. She has a history of migraine with aura, but this is very different from her usual short episodes. Her MRI, CT, EEG, blood tests and eye examinations have been normal. The exact diagnosis is still unclear, with persistent migraine aura and visual snow–related symptoms being discussed.

It’s been very distressing and has caused a lot of anxiety. She’s found a CBT therapist she really likes, but she’s torn about how to approach it.

Some advice encourages acknowledging the symptom and learning to respond to it without fear such as CBT Therapy. Other advice says to stop focusing on it and carry on with normal life. She worries that working on it in therapy could make her pay even more attention to it, but also doesn’t want to withdraw from life while trying to reduce stress and “regulate her nervous system.”

For anyone with similar symptoms, what helped you? Did CBT or mindfulness help, or did gradually getting back to everyday life help more? How did you balance the two? She also has medication phobia so isn’t willing to try meds.