r/Tuberculosis

I have been on TB meds for like 6 months now, and I’m back in school. Yesterday while I was trying to see what was written on the board from the 4th bench, I couldn’t see it clearly. It was blurry, and I had to look at the front just to see the letters crisp and clear. Before the disease, I was able to see the board even while sitting at the last bench. Now I can’t even see it clearly from the 4th bench. I had to sit at the absolute first bench just to see what the teacher had written on the board.

I’m worried that its because of TB meds, even tho from what I have read online, it seems to be a very rare side effect. Maybe I should just go to an eye doctor and get it checked, cause I don’t want to go blind.

Iam on 6month medication

I heard only negative stories about it

Can u Share your experience with pulmonary tb

I feel symptoms like weakness,always

have a bitter taste in my mouth

Iam Lossing Weight

Medicine are harsh or to strong

Hi! 31F recently underwent cervical lymphadenectomy and was diagnosed with TB lymphadenitis with an abscess. The mass was surgically removed, but my IM-IDS prescribed 6 months of anti-TB medication.

For those who had a similar experience, is 6 months of treatment still necessary even though the mass was already removed?

Would appreciate any insights or experiences. Thank you!

on my third month and taking Duomax now, i don't know if my bloating is normal and cramps. What side effects did u guys have?

i finished my treatment in may, and since then i've become a hypochondriac😟 i overthink everything about my health and now am scared of cold weather/not eating enough/not being careful enough lol. i also had a biopsy on my right lung and sometimes it aches and i immediately start thinking that tb is back.

anyone with the same problem? ik that i should go to my therapist and talk it out but i don't have finances rn:(

Hi everyone,

I’m 25M and currently working in London. I came back to India for around two months and, while here, was diagnosed with pre-XDR TB (MDR/RR-TB with additional drug resistance).

I’m planning to start treatment in India and work from home for the next 1–2 months so that I can get through the initial phase of treatment here.

However, I won’t be able to remain in India for the full 6–7+ months of treatment, so I’ll eventually need to return to the UK and continue my treatment through the NHS.

I was wondering if anyone here has been through a similar situation, particularly starting MDR/pre-XDR TB treatment abroad and then transferring their care to the NHS.

If so, I’d really appreciate hearing about your experience. What did the process look like? Who did you contact before returning to the UK — your GP, a TB clinic, or an infectious diseases team? Was transferring your treatment and medical records relatively straightforward, and were there any issues with continuing the same drug regimen?

I’d also be interested in hearing from anyone who has been treated for MDR/pre-XDR TB through the NHS generally and what your experience was like.
Thank you — any advice or firsthand experience would be really helpful.

Is it common for tb meds to effect my BM . I just started the medicine and have not had a solid BM in almost 4 days

Is it true that contraceptive pills can be less effective while on fixcom?

Is it alright to drink an energy while on rifampicin?

Hemloooo domstoo My TB medication was stopped about 3 months ago. For almost 2–3 months after that, all my symptoms had completely gone away, but now the pain has started again on the left side, where my lung was affected and showed white on the X-ray. It hurts a lot, especially when I move or breathe. My cough has also gotten worse, and sometimes I have difficulty breathing while coughing. I also have completely white phlegm. I’m also getting a lot of red spots all over my skin, especially on my arms and legs. 😭 But these are just post-TB symptoms, right? 😭 TB hasn’t come back, right? I’m really scared, and I really don’t want to go back to the doctor.

Plzzz help

Hi! I’m a high-school student starting a long-term science-fair research project on tuberculosis.

I’m currently trying to explore the TB problem space broadly rather than choosing a specific topic yet. I’m looking into areas including transmission, latent TB, drug resistance, treatment, drug delivery, vaccines, immunology, host-pathogen interactions, epidemiology, healthcare systems, environmental factors, diagnostics, and AI/data science. I'm still pretty confused on what topic to choose so I am asking you all.

For TB patients, clinicians, researchers, public-health workers, or anyone with relevant experience:

What TB problem do you think is currently underappreciated, poorly understood, or just in need of better solutions?

What is something you wish more researchers or students were paying attention to? Even if its just a thought, please feel free to comment it. Doesn't have to be formal!

I’m especially interested in problems that remain unresolved despite existing research and interventions. Providing personal experiences is also helpful :)

I’d really appreciate any perspectives, resources, or research areas you think I should investigate.

Thank you! Stay safe and take care.

I just finished my TB treatment 2 months ago. I had three negative sputum tests, so my doctor cleared me from treatment. However, I had an X-ray last week, and it showed PTB and some lung scarring.

Hi, can I ask for some advice from you guys? I was clinically diagnosed with TB. My sputum test was negative (MTB not detected), but my pulmonologist prescribed TB medication for six months.

May I ask what kind of side effects I should expect? My work involves fieldwork, and I’m worried that the side effects might affect my ability to work. I’m scared that if I start my medication and experience severe side effects, I might lose my job.

Next, I will have an appointment for Doctors consultation regarding my IGRA TEST POSITIVE. Anyone who did treatment about it, How it goes? Thank you so much!

Been 5 years already, having lubg tb was a traumatic experience in my life, had to go through pleural effusion draining operations two times during 9 months of meds.

Didnot touch alcohol or cigs during and 1.5 years after the treatment was complete.

I have bad lung scarring and my operation scars from pleural effusion drainings, still hurt when i stand in a place for long hrs, lift some heavy weights or when i walk long hrs.

I know asking the question in the title looks so stupid after i tell you what i had been through and what problems i still have from those years of treatment.

But when my mental state is really bad, when i am depressed, anxious, especially during the exams, when life is stressful, cause i had failed many exams cause of hospital stays. Sometimes i find myself negotiating the whole day on whether to have a cig or not, and somedays i give in and have one cig.

I know cigs are bad for me, my chest burns after a cig and i immediately feel light headed after having a cig, maybe its because of long gap between cigs.

Have you been through this? What are your views on this situation?

Is masturbation safe while on tb treatment

Hi guys! So I just got back from my doctor's appointment. After 8 months of taking my tb meds (quadmax) he told me that I should stop now and just take some B vitamins from now on because I told him about the numbness and the pain I feel in my left arm.

I should be happy right that I'm done with taking the meds because goddamn my face and body is full of freaking acne that I've never ever had before.

But the problem is he told me to stop taking meds even before I do lab tests, he told me to do it and I will tomorrow, and to go back to my urologists to check up on my kidney. Because I only have 1 kidney now. Got a radical nephrectomy last year in October due to TB.

He also told me to go back to him once I'm done with the lab and the urologist.

What I'm concerned about is I told him that I think I might be underdosing because for 8 months I'm only taking 1 tablet a day of quadmax.

I asked him what if after a lab and my urologist appointment the tb bacteria is still there, he said he doesn't think so. I mean he's so sure about it and he told me that our concern right now is my kidney functions which I understand of course it's also my concern.

But still, getting off meds without doing any testing first if the tb is gone or not, that is also my concern.

Did any of you have the same experience? Getting off meds before taking testings?

My girlfriend has lumps above her collarbones, painful and began to produce pus two months ago. She’s been coughing for at least 7 months, dry cough, rarely any phlegm. She also had fever and chills every night that requires using hairdryer to heat herself up under a thick blanket, at least for 6 months. She didn’t get any diagnosis and treatment due to fear of Lymphoma and her not having insurance.

A month ago, she began having a strange headache. It persisted until two weeks ago, where it went away for 2 days, then coming back as the most severe headache that she had in her life, her entire spine also felt sore. She traveled back to her country and got admitted into the hospital within 5 days. In that period, she couldn’t walk properly and started vomiting, and fainted once.

After admitted to the hospital, Spinal Tap returned normal, blood test revealed severely low magnesium, X-ray revealed cloudy lungs and MRI returned temporal lobe encephalitis. She was fine the first few days, severe lethargy but able to speak and joke. Then she began to talk to herself, and no one can understand what she’s speaking on the 5th day. Admitted to the ICU on the 6th day. On the 7th day, she doesn’t recognize me at all. And finally on the 10th day, today, she finally got diagnosed with Pulmonary Tuberculosis, and got quarantined.

How likely can she survive this?

(On a side note, I probably should also get checked out for latent TB right? Since I’ve been living in the same room with her for the past year)

Hey if u are diagnosed by lymphnode tb on ur 15 th day or like after 2 weeks of tb treatment did any got symptoms like weakness , chills ,anxiety, tingling, heartbeat rise or breath not normal , leg pain , shoulder pain , drowsiness or sleepy ?