r/Tuberculosis

Im 24 yrsl old and It’s been 10 months into this journey. I'm suffering from MDR-TB and was initially on BPaLM regimen, which was changed to 18 months due to linezolid resistance. I'm stuck at my home. I had to leave my job. All of my friends have left me behind. Even my little brother has left me behind and is working. I'm trapped at home. I feel guilty every day. It's like I'm trapped, once I wake up, all these negative thoughts caves in. I'm six months into this new regimen and I have darkened quite a bit, which has impacted my self-confidence. My main concern right now is me comparing myself to others, which is majorly impacting my mental health. How’s your life after tb?

Hello everyone I am currently dealing with severe anxiety and DPDR because of tb meds. Each day feels like a battle I get heavy brain fog and I’m scared of that as well. How can I help myself…? Some days I feel like to end everything… please tell.. intrusive thoughts, it feels my brain is not working properly… what should I do..?

My rheumatologist had me do the quantiferon gold test when I first saw him. Came back positive. Did a repeat a month later- still positive. The xray is negative for active disease. Saw infectious disease med and she suggested this might be a false positive so I should wait 6 months and test again. Well, last week’s came back positive again. Her office just called to set up a telemedicine appointment. My understanding is that I am low risk unless my rheumatologist puts me on an immune suppressant (doubtful at this point) but it might be a good idea to do the course of treatment just in case. Anyone else in this situation? I have no idea where I got it- I’m from Boston, lived in NYC, now live in Philly. Have traveled to Europe and around the US but not to any high risk areas as far as I know. Kinda freaking out but trying not to. Have been hospitalized for c sections, thyroid cancer surgery, hysterectomy, back surgery, but never for more than a day or two. Don’t work in health care. Is this weird or am I overthinking it as it doesn’t really matter?

Thanks!

If yes please share how you treated it

For my case, my treatment started in September and took linozolid for initial 2 months of treatment till November, since September i started feeling neuropathic sympathy in my both feets and legs, which got worse by November and i was bearly able to walk till 1st week of January

Now after 6 months of stopping linozolid (8th month of treatment), burning and tingling is greatly reduced, and I'm able to walk and manage my daily tasks

But my feets are still stiff and numb, I hardly feel any sensation in my feets and sole and sometime get cramps and pain

Hi My little sister of 18 yr old is diagnosed with TB meningitis. Before the diagnosis we had rushed her to ER 4 times complaining of a severe headache and vomitting. All lab test blood test, mri, urinalysis returns normal and they always say it's a severve case of migraine and they always recommended pain meds. On the 4th time she got ER she was admitted to the hospital because she is experiencing the worst headache and is dehydrated. Did MRI, Xray, Blood Test and Urinalysis all returns normal result. Then they tried her medication for anti stress and pain relief only to work a little bit and after 2 days of confinement she developed double vission and her left eye is a bit misaligned and having neck pain. When we told her Neuro Doctor he rushed her to be tested via lumbar puncture (Lumbar tap). Results returned with TB Meningitis and her medication started immediately. There's no history of tb on our family, so our suspicions is a couple of weeks before her symtoms developed she is not eating and sleeping properly that might cause her immune system to be vulnerable and TB is endemic on our country or she might caught it during training for blood smear and using her friends blood as test subjects (She is a MedTech student). Right now she is on the 4th day of TB Meningitis medications. There are still recurring headache and neck pain but not too painful like 5-7/10 headache and they are doing theraphy for her double vission and sometimes experiencing mild headache. Other than that she doesn't have any neurological defects and she is very reponsive and eats a lot. She only have mild weakness/dizziness when standing, not sure if it's because of combination of her medications and toll of her sickness. Luckily TB Meds is free on our country and she is under close monitoring before we could take her home for 1 year medication for tbm. Just want to know if anyone here have the same experience. If you guys can share some treatment experience, things to look out for, side effects etc. that would be a great help

Hello everyone, I wanted to sincerely thank all the members of this group for your contribution. I have just finished my 6-month treatment and I am declared cured, but I will remain on the forum to help other patients. Thank you so much. After how long should I start feeling really, really good in my body?

I had a history of Primary tuberculosis in my childhood and got it fully treated by the age of 9 or so. My immune system is too weak. Recently, I'm coughing a lot.. like continuously for the past 2 months and it is a productive cough...I spit out yellowish phlegm whenever I cough

I'm really really tired and exhausted these days and I experience night sweats too....

Should I get checked for tb

Hi i was recently diagnosed with tb last april, i started my medication on the 25th. But even before i was diagnosed i never had any symptoms at all. Yes, I had persistent coughs back then but i thought it was just a cold or anything like that, also didn't experiment weight loss( I was always around 40-43kg). Now I'm really surprised to find blood mixed in my saliva, I'm scared of developing mdr tb ahha

I was diagnosed with ptb and is in 4 th month of treatment. I actually don't have any symptoms even before getting to know tb and no much side effects from meds too. But I feel this weird feeling of sickness like I am not sick but I remember I am sick. Ppl say a lot about tb and is it true,. Will we always be prone to respiratory disease will we always get sick easily should we be more extra careful always can't we live normally in future after meds?

Every day if I just don't take care of diet sleep I get anxiety of smtg going wrong will this always be like this

Just want to know from ppl who got cured

If smear microscopy turns out negative, we can get a culture test done for confirmation. But that takes several weeks for results. Are there any alternatives to detecting TB disease when bacterial loads do not meet the positivity threshold in smear microscopy?

Hello, I just found out I have latent TB. I’m obviously scared. I’m going to talk to my doctor in a few days. Im not sure what to do. Is it worth taking the chemo antibiotics when it doesn’t even completely go away? I feel so lost.

hello, normal bang side effects ng Rifam ang itchy skin? Anong ginagawa nyo sa ganon?