Roots, an MMORPG community, is looking for more disabled friends!

Hopefully an advertisement like this is allowed here, apologies if not!

We're focused on providing a space for disabled, neurodiverse, and LGBTQ+ mmorpg players which is both accommodating and affirming. We're focused around art and nature, and their mental and emotional healing properties.

My goal is to gather folks who struggles in the group aspects of MMORPGs, and give people like us a space to come together and do content both casual and hardcore with people who are just like us and who Get It. This can include feeling like an inconvenience or burden due to not being ab;e to play like an abled person, not wanting to face discrimination or slurs like the r-slur or transphobia, not being able to maintain a strict schedule due to medical or mental health stuff.

Discord is out main communication hub. This space is not just one FC/Guild sectioned off to one server. You are welcome into the space regardless which server you're on, and which FC or Guild you're in within any given MMORPG.

There's a couple accessibility bots already, such as Text-to-Speech, Speech-to-Text for voice chat, and PluralKit for Systems and people with Alters. I welcome any further suggestions to make it as accessible as I can to a variety of people.

Right now, our main game is FFxiv, on the Kraken server (Dynamis NA). We also have Brynhildr, and Balmung just opened up. Roleplay will be opening up this winter along with the final FC on Mateus.

We do have a Guild in WoW (America), but right now not many people are playing. We plan to eventually expand to Classic, Anniversary, and Forever. Black Desert PC is also an option but at the moment I'm the only one who plays, lol.

At the moment I'm reaching out to find more folks, we do casual stuff in XIV and my events leader has been running an EVA watch party leading up to Evercold. One of our members would like to put together a static of Disabled and ND players!

I will be hosting more low energy events like parallel play, watch parties, dance gatherings with music and giveaways, and party games over the cold months as those tend to be when the SAD kicks in and chronic pain flares up.

If there are any other Disabled communities in MMORPGs, you are also welcome to reach out about partnerships.

https://discord.gg/qWej6eXtvH

(hello to the spam bots that will inevitably join by posting here)

Lodestone pages for FFxiv
Kraken: https://na.finalfantasyxiv.com/lodestone/community_finder/78cb68b4cfded846725c3aab509d834be5335178/
Brynhildr: https://na.finalfantasyxiv.com/lodestone/community_finder/7406fb86dae87d7ad789141a76907f44c5a22ccb/
Balmung: https://na.finalfantasyxiv.com/lodestone/community_finder/92ff03c304ab61a8a150ffc62b0b79594c330832/

We're of course a progressive space. We forbid AI. Each month has a space to celebrate a different marginalized group, such as Pride month in June, Disability Pride Month in July, and Indigenous Heritage Month in November. I myself am a mixed-race FtM androgyne, with Autism and Stickler Syndrome.

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u/Afraid-Awareness21 — 12 days ago

Looking for affordable lawn service in Northampton (eco nerds preferred)

I live in a manufactured home park in Northampton and have 0 income due to being disabled and fighting for SSI.

I was paying 25$ every 2 weeks for simple lawn mowing and trim from a high school grad in the park, then this year he got a new job so I had to find someone on Clist in a pinch, who did it for 30$.

Just got a text that he'll no longer be able to do it bi-weekly because it messes with his business schedule, and it would move to every week for 25$. This would end up bumping my lawn care cost by 40$/mo for a total of 100$/mo. Unfortunately I can't afford this at all. I have 200$ to my name to last the rest of the year and will already have to borrow from my partner to make it to January.

I know shit's only getting more expensive due to the dog vomit slime mold in the white house, but I'm hoping I can find someone who is able to do it for about the same amount- at least until lawn season this year is over.

If I can find a lawn person who is as excited about native and naturalized plants as I am and isn't just part of the system that reinforces monoculture lawns to mimic Bri'ish royalty, I will insist on both keeping their services and also giving them plants and seeds and garden veggies. I have a pink princess philo baby and a handful of other things which can be propped. This is not in lieu of proper payment this is a "thank you for not wanting to kill my Philadelphia Fleabane and Indian Tobacco. Here's my emotional support Virginia Creeper, we can boo and hiss at the Amur Honeysuckle in my neighbor's yard".

Ordinary Lawn People can still apply, of course.

We'd schedule a time for them to come see the yard before agreeing to anything.

Thanks in advance!

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u/Afraid-Awareness21 — 2 months ago

Another "what do these funky numbers mean?" post

Recently 37, I have Stickler Syndrome which is a connective tissue birth defect where my body doesn't produce necessary collagens. I was told by the Marfan Foundation to get a DEXA scan.

My mother also had multiple fights with leukemia around my age, but I'm not sure if there's any possible risk factors there.

The results listed me as male, but I'm not sure if my scores are being compared to M or F since I'm transgender and often times labs go by my birth gender (F), nor how this potentially affects the metrics (like should it be measuring me against cis men, cis women, or a secret third thing). I will be talking to my endo about it too.

Lumbar spine (L1-4)
BMD 0.880 g/cm2
T-score -1.5
PR 84.0%

Hip (Femoral neck and total hip)
Neck BMD 0.606
T-score -2.2
PR 71.0%

Hip 0.801
T-score -1.2
PR 85.0%

Impression: Osteopenia of the lumbar spine and left femoral neck corresponding to increased fracture risk

I'm sure I'll get a call from my PCP about the results later today, and he may shoot me back to orthopedics or possibly to rheumatology. Either way, I want to make sure I'm armed with information because so many doctors are unfamiliar with Stickler and the special considerations we need.

Thanks in advance!

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u/Afraid-Awareness21 — 2 months ago

[Dynamis][Kraken][Crystal][Brynhildr][Discord][Disabled][LGBTQ][Casual] Roots Community seeking more friends!

Roots is a newly formed community for disabled, neurodivergent, and LGBTQ+, focused on accommodating and supporting MMORPG gamers who fall into those bubbles.

We know how hard it can be finding a space which can properly accommodate limitations, spur-of-the-moment schedule changes, and an affirming social space. Our goal is to provide a comfortable FFxiv experience, as well as real-world disability, LGBTQ+, and crisis resources for people who need them.

Currently we sway casual, but would not mind eventually trying to build statics for higher-end content which factor limitations to motor skills, verbal communication, or last minute schedule changes.

Maps currently run Thursday nights, FATEs on Fridays, and more events for Deep Dungeons, Field Exploration, and Limited Jobs are in the works.

Lore and venues for Roleplay are also in the works.

We keep an open dialogue to prevent any sudden, unwanted changes. We welcome any suggestions and comments to further improve the space for folks like us, and prevent the feeling of social gaps and alienation.

Our current team consists of three queer AuDHD players over 35, including one physically handicapped transgender person with extensive experience in running Guilds/FCs, and someone who has extensive experience with care homes for the disabled.

Our home base is Kraken, on Dynamis. However, we also have a spot on Brynhildr, and will be expanding to Balmung and Mateus later in the year (don't worry, we're stopping after that).

Even if you are not disabled or queer, we also welcome supportive allies!

Discord is our hub for everything, but we do also have both TTS and STT bots for the non and semi verbal among us.

You may find more (or redundant) info on our Lodestone pages:
Kraken: https://na.finalfantasyxiv.com/lodestone/community_finder/3a37f010b44751493b3f7a5a09f0ab6ad25b496d/

Brynhildr: https://na.finalfantasyxiv.com/lodestone/community_finder/c53eb5daa983945a55c70a9664c7786903c2bf51/

If you have any questions or would like more info, feel free to reach out to me here on Reddit, or on Discord (Cervidaedalus). Our community Discord link is also on the Lodestone pages.

u/Afraid-Awareness21 — 2 months ago

This is Sokka, adopted 2/11/2023 and peed on my lap on the way home

He was adopted in Orange County CA after my other seal point girl, Cinnamon, passed away late January after 16yrs. She was the last birthday gift for my mom before she passed. I wound up in housing instability but Cinnamon was bonded to me (as Siamese do) and severely neurotic so I refused to give her up. She became weak, and when her time came I laid her on one of her blankets in her favorite sunny spot so she could pass on warm and comfortable. She had been with me since she was a palm-sized kitten at the SPCA.

In the weeks following her death, I got ignored/denied by so many cat rescues when trying to adopt another Meezer, because I was on disability and not employed. I needed another Siamese because Cinnamon had become an “official” ESA (meaning I had a doctors note for her). Siamese kittens get snatched up almost instantly, but Petfinder was glitching and not showing pet photos. When I saw a new Siamese boy had been put up by a county shelter I didn’t need to go through a lengthy application process for, I told my housemate and we immediately drove to go see him. His shelter name was Brooklyn because he was found on Brooklyn Ave in Santa Ana. They said he was around 2 but he seemed younger.

They warned me that he had left eye nystagmus which is somewhat common in Siamese, and asked me if I still wanted to adopt- I said of course! I have very high irregular astigmatism from stickler syndrome and also have slight nystagmus, so we matched.

We put him in the carrier, completed the adoption process, and headed home. On the way home, I slightly unzipped the carrier just enough to slide my hand in and give him scritches. About 5min into the trip, my lap felt warm and I knew that feeling all too well from the last leg of my journey out to California when Cinnamon peed on my lap.

When we got home I let him explore my room for a bit just to direct him to the litter box while I threw him carrier in the bathroom sink and got the shower ready. I was worried I would make him hate me if I immediately brought him into this new environment and then tried to bathe him or wipe him down, but when I sat down on the bathroom floor, he IMMEDIATELY curled up in my lap, kneading and looking up at me.

He let me bring him into the tub to wipe him off with no issue. As he adjusted to his environment, we also learned his water bowl had to be weighted down because he would play with it and get water everywhere. He was named Sokka because of his doting but cautious personality, being somewhat of a himbo but still pretty smart, and affinity for water.

Months later I had to leave CA, and he flew with me back to PA. He’s attached at the hip just like Cinnamon. He likes to curl up in his pillow cave, and stands up on his back legs to do jumping high fives like 3ft into the air.

Due to his nystagmus, his pupils don’t fully close so he always has these big, pleading eyes.

u/Afraid-Awareness21 — 2 months ago

Surgeons and Medicaid (FMS)[Pennsylvania]

I've been looking to get FMS (Facial Masculinization Surgery) for a while, but I'm struggling to find surgeons who do it, AND are in my state, AND take Medicaid. The only one that shows up on trans surgeon directories is a certain infamous surgeon whose surname begins with an R and ends with a Medical Malpractice.

I have 0 income while fighting for SSI, so travel is not an option unless it were covered somehow which I don't think Medicaid is fancy enough to do. The most I could swing is staying with a friend in Phoenix AZ or Fullerton CA but I wouldn't have a mean to travel.

I also want jaw surgery for a recessed jaw and Obstructive Sleep Apnea. So my questions are:

  1. Has anyone else been in this situation trying to get WPATH-based gender-affirming surgery on Medicaid, and how were you able to get your surgery covered when no surgeons in network (or state) provide that procedure?
  2. Would it be viable to seek out orthognathic surgeons that don't specifically advertise FMS/FFS and see if they're able to do what I need, or is that too big of a risk if they're not versed in how to create a masculine look or WPATH?
  3. Equally, what if I looked up surgeons that list FFS, is it possible they could still do FMS? Because there's 2 somewhat locally (Dr. Hamidian-Jahromi at Temple and Dr. Katherine Rose at Main Line Health).
  4. If there's a better sub to ask this question, please point me there!

Thanks in advance.

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u/Afraid-Awareness21 — 3 months ago

It's time for the return of the ominous smoke

Canada is on fire again.

Hopefully it doesn't get to the levels it was a couple years ago where everything is a dense ochre.

u/Afraid-Awareness21 — 3 months ago

Disability lawyers for SSI

I'm on my second round of trying to get SSI, looking for reliable and attentive disability lawyers. I used North Penn Legal Services in Bethlehem last time, but the paralegal I was assigned really dropped the ball and seemed to have some other shit going on.

I have a complex case due to a rare degenerative condition, as well as mental health stuff. I'm on yr2 of fighting.

I tried Lori Mancini but got declined (I might try again now that I'm further along in the re-application). I'm looking for local lawyers and organizations only from the ABE or surrounding counties. I'm in Northampton County.

Thanks in advance!

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u/Afraid-Awareness21 — 3 months ago

Social relationships deeply impacted by what I believe is AvPD

Not asking for a diagnosis. I'm waiting to see my psych again and my therapist is currently out recovering from a procedure.

I have never been much of a social butterfly and tend to keep a few close friends rather than a large group of acquaintances and casual friends.

More recently I've been noticing that I've become far more withdrawn than I ever have been. I've had a couple people offer to come visit me, and I just never acknowledge the statement or get back to them on that, even if I think about or daydream the visits. There's people I want to message, message back, or call and I just haven't, for months even if its something I need to do. There's someone in my local sub struggling with homelessness who I've thought about reaching out to and offering some help, but I just don't end up doing it and I get stressed out more and more when I see him posting about issues I feel like I could solve.

I have AuDHD, I have PTSD and GAD. I know AuDHD causes problems with executive dysfunction, as well as Rejection Sensitive Dysphoria, which could be a factor. My avoidance of social relationships seems to have really worsened after significant social trauma in 2018 and 2024, and could be a result of the PTSD and GAD. I don't get anxiety symptoms about reaching out I just... don't do it. Almost like there's a pyshical block more than consciously mental. Whether or not it's brought on by something subconscious from the trauma or something else, I'm not sure.

I have plenty of friends online who I speak to, an LDR partner of several years, and in person I have my surrogate mom and her son who is another long-time friend, so it's not total self-isolation.

This will be brought up with my therapist and psychiatrist once I'm able. But for now, I'd ideally like to figure out some sort of coping mechanism so that I stop avoiding these social things.

Does anyone experience something similar, where you're not completely avoiding social situations to the point one having nobody in your life, but new or in-person socialization seems to bring on a passive, non-anxiety kind of avoidance?

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u/Afraid-Awareness21 — 3 months ago

Need a new phone, debating whether to factor vtubing into my choice

Some things to start:

  1. I'm disabled and have very little income, so splurging on an iPhone even 12 and lower at refurb/used is something I'd like to avoid.

  2. I wear glasses with a noticeable concave due to very high astigmatism. I've read that anything other than iphones can struggle with eye tracking through glasses, and not wearing them isn't an option. I'm extra concerned the shape of my lenses will worsen the issue.

With that said, I've searched in this sub and info on Android seems to largely say that you can use MeowFace and similar apps but they're all inferior to the iPhones. This doesn't really matter to me as I'm not looking for the highest tech for extreme expressiveness, like I don't care about cheek puffing or anything like that- just accurate eyeball and eyelid tracking, lip movement and positioning, face position, and eyebrow expression.

Howeverrrrr I don't want to screw myself over when it comes to the glasses issue. So I guess- does anyone who has glasses (especially folks with unusual prescriptions) have experience using things other than an iPhone for tracking, and what are your experiences?

Here's the other thing: I'm using a Lenovo Legion 7i gen9, which ofc has a built-in webcam. Ideally, since it's still a laptop, I'd like to offload some of the processing using a phone as my camera and tracking. I'm not sure if this will even matter considering it's fairly new and Vtubing isn't, so people have Vtubed perfectly fine on older hardware.
specs:
https://www.lenovo.com/us/en/p/laptops/legion-laptops/legion-7-series/legion-7i-gen-9-16-inch-intel/len101g0037#tech_specs

If my onboard camera will be better and my CPU and GPU can handle everything through the laptop itself, I don't want to spend more on a phone that will just be redundant or worse. So, am I able to use what I've got, and not bother factoring Vtubing into my phone choice?

And with those two questions, if I should go the route of factoring Vtubing in**, what Android phone models or what sort of specs should I look for in choosing an Android phone that can handle the load of being my camera and mocap device, without turning into a spicy poptart or crashing, etc?**

Sorry that's a lot lol, I just want to make an educated decision and properly allocate my finances. Thanks!

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u/Afraid-Awareness21 — 4 months ago

Provider says I need to buy a new phone due to legal name change

I was using the Lifeline program, with Safelink as my provider. My old phone wouldn't work with their SIM so I had them send me one of their free phones (a crappy MotoG Play) back in late 2023.

In July of last year, I had a legal name change. I changed my name on Lifeline when recertifying, but Safelink listed my service as Cancelled. When I contacted support, this told me I would need to re-apply. When I did so, and put in the MotoG Play's IMEI, it returned and error, which the Safelink customer service person told me was because the IMEI on that phone is registered to my old name.

I figured I'd ask here before spending money I can't afford on /another/ whole new phone, because while I know the IMEI data is an identifier of sorts, I would figure that a whole phone turning into a fancy brick over a legal name change is kind of absurd. Most places I reported the change to just wanted to see the stamped court order.

Should I try to get a different customer service person, or am I SoL?

Thanks!

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u/Afraid-Awareness21 — 4 months ago

[PA]Documentation for irrevocable trust

My grandparents set up an irrevocable Trust in 1989 when I was born, with me as the sole beneficiary. The Trustee is in independent CFP.

In recent months, communicating with her about the Trust has been extremely difficult. I've had problems with political ideology, patronization, and downright illiteracy. I'm disabled fighting for SSI so while the Trust doesn't have a whole lot (my grandparents were frugal, not rich), my life expenses currently are either welfare, or Trust.

I have never received any of the legal documentation about the Trust to know what my rights are, if she's getting paid, if I can assign a new Trustee, etc. Most of the time if I ask any questions about the Trust I'm given very vague answers or complete non-answers.

While I appreciate what she's done to help me via the Trust so far, I'm getting tired of being treated like a child or having to tell her things multiple times because she seems to have 0 reading comprehension.

I would like to be able to find out my rights and if I can assign a new Trustee, but she's an independent practice so I don't know if there's a way to get that documentation aside from asking her directly.

Does anyone know if there's a way to get the legal paperwork from when the Trust was established and any other documentation without having to go to the Trustee?

Idk if it matters, but for a more specific location, Trust was established in Bucks County.

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u/Afraid-Awareness21 — 5 months ago