Weird neurological symptoms please help

I am a 33-year-old male dealing with a combination of unusual and inconsistent symptoms that have become very debilitating, and I am trying to understand if anyone has experienced something similar or has any insight.
The main issue is not classic pain, but a constant, hard-to-describe discomfort that shifts between my feet, inner thighs, back thighs, and pelvic area. It alternates in location and intensity, which makes it very hard to sit, stand still, or lie down comfortably.
At times, my left foot in particular feels “weak” or off, and when that happens I struggle significantly with basic movements like sitting or getting into bed. Because of this, I have developed very specific routines to manage it. For example, I sometimes have to pace for extended periods (up to an hour) trying to find a “sweet spot” where the discomfort briefly settles. From that position, I will quickly move into bed in a very specific way (sometimes almost like a jump or flip) because even small changes in movement can determine whether the discomfort flares or calms.
I also have significant difficulty with basic clothing tasks such as putting on socks, shoes, and boxers. It is not sharp pain, but a strange hypersensitivity or discomfort that makes these sensations very difficult to tolerate. I believe this may be consistent with allodynia, although I am not certain.
I also have a history of a varicocele, and my symptoms seemed to begin around that time. I did undergo surgery and no longer have a varicocele, but the symptoms have persisted.
Another pattern I have noticed: I receive medical prostate massages, and the first time I had one, I experienced significant relief in my legs and feet afterward. However, I no longer seem to get the same level of relief from it, even though the procedure itself has not changed.
I have also noticed a possible pattern where when my bloating is worse, the discomfort in my legs and feet also seems to worsen. In addition, I sometimes get a pulling or tight sensation in my inner and back thighs that makes sitting nearly impossible.
What I have tried / seen so far:
Seen 3 gastroenterologists for persistent bloating (no clear resolution)
Seen a neurologist; had a nerve block that did not help
MRI showed a minor herniated disc, but neurologist did not think it explained my symptoms
Currently taking 225 mg Lyrica twice daily, with minimal effect
Tried a 30 mg Vyvanse dose once, which temporarily reduced symptoms significantly (about 70%), but only lasted that day
History of varicocele (surgically corrected, but symptoms began around that period)
This has been extremely debilitating physically and mentally. I am struggling with sitting, walking, and standing comfortably on a daily basis. The symptoms feel very real but difficult to describe or categorize, and I have not found anyone describing something quite like this

reddit.com
u/Better_Pineapple_235 — 2 months ago

Weird neurological symptoms please help

I am a 33-year-old male dealing with a combination of unusual and inconsistent symptoms that have become very debilitating, and I am trying to understand if anyone has experienced something similar or has any insight.
The main issue is not classic pain, but a constant, hard-to-describe discomfort that shifts between my feet, inner thighs, back thighs, and pelvic area. It alternates in location and intensity, which makes it very hard to sit, stand still, or lie down comfortably.
At times, my left foot in particular feels “weak” or off, and when that happens I struggle significantly with basic movements like sitting or getting into bed. Because of this, I have developed very specific routines to manage it. For example, I sometimes have to pace for extended periods (up to an hour) trying to find a “sweet spot” where the discomfort briefly settles. From that position, I will quickly move into bed in a very specific way (sometimes almost like a jump or flip) because even small changes in movement can determine whether the discomfort flares or calms.
I also have significant difficulty with basic clothing tasks such as putting on socks, shoes, and boxers. It is not sharp pain, but a strange hypersensitivity or discomfort that makes these sensations very difficult to tolerate. I believe this may be consistent with allodynia, although I am not certain.
I also have a history of a varicocele, and my symptoms seemed to begin around that time. I did undergo surgery and no longer have a varicocele, but the symptoms have persisted.
Another pattern I have noticed: I receive medical prostate massages, and the first time I had one, I experienced significant relief in my legs and feet afterward. However, I no longer seem to get the same level of relief from it, even though the procedure itself has not changed.
I have also noticed a possible pattern where when my bloating is worse, the discomfort in my legs and feet also seems to worsen. In addition, I sometimes get a pulling or tight sensation in my inner and back thighs that makes sitting nearly impossible.
What I have tried / seen so far:
Seen 3 gastroenterologists for persistent bloating (no clear resolution)
Seen a neurologist; had a nerve block that did not help
MRI showed a minor herniated disc, but neurologist did not think it explained my symptoms
Currently taking 225 mg Lyrica twice daily, with minimal effect
Tried a 30 mg Vyvanse dose once, which temporarily reduced symptoms significantly (about 70%), but only lasted that day
History of varicocele (surgically corrected, but symptoms began around that period)
This has been extremely debilitating physically and mentally. I am struggling with sitting, walking, and standing comfortably on a daily basis. The symptoms feel very real but difficult to describe or categorize, and I have not found anyone describing something quite like this

reddit.com
u/Better_Pineapple_235 — 2 months ago

Weird Neurological Symptoms - please help

I am a 33-year-old male dealing with a combination of unusual and inconsistent symptoms that have become very debilitating, and I am trying to understand if anyone has experienced something similar or has any insight.
The main issue is not classic pain, but a constant, hard-to-describe discomfort that shifts between my feet, inner thighs, back thighs, and pelvic area. It alternates in location and intensity, which makes it very hard to sit, stand still, or lie down comfortably.
At times, my left foot in particular feels “weak” or off, and when that happens I struggle significantly with basic movements like sitting or getting into bed. Because of this, I have developed very specific routines to manage it. For example, I sometimes have to pace for extended periods (up to an hour) trying to find a “sweet spot” where the discomfort briefly settles. From that position, I will quickly move into bed in a very specific way (sometimes almost like a jump or flip) because even small changes in movement can determine whether the discomfort flares or calms.
I also have significant difficulty with basic clothing tasks such as putting on socks, shoes, and boxers. It is not sharp pain, but a strange hypersensitivity or discomfort that makes these sensations very difficult to tolerate. I believe this may be consistent with allodynia, although I am not certain.
I also have a history of a varicocele, and my symptoms seemed to begin around that time. I did undergo surgery and no longer have a varicocele, but the symptoms have persisted.
Another pattern I have noticed: I receive medical prostate massages, and the first time I had one, I experienced significant relief in my legs and feet afterward. However, I no longer seem to get the same level of relief from it, even though the procedure itself has not changed.
I have also noticed a possible pattern where when my bloating is worse, the discomfort in my legs and feet also seems to worsen. In addition, I sometimes get a pulling or tight sensation in my inner and back thighs that makes sitting nearly impossible.
What I have tried / seen so far:
Seen 3 gastroenterologists for persistent bloating (no clear resolution)
Seen a neurologist; had a nerve block that did not help
MRI showed a minor herniated disc, but neurologist did not think it explained my symptoms
Currently taking 225 mg Lyrica twice daily, with minimal effect
Tried a 30 mg Vyvanse dose once, which temporarily reduced symptoms significantly (about 70%), but only lasted that day
History of varicocele (surgically corrected, but symptoms began around that period)
This has been extremely debilitating physically and mentally. I am struggling with sitting, walking, and standing comfortably on a daily basis. The symptoms feel very real but difficult to describe or categorize, and I have not found anyone describing something quite like this

reddit.com
u/Better_Pineapple_235 — 2 months ago

Weird Neurological Symptoms - please help

I am a 33-year-old male dealing with a combination of unusual and inconsistent symptoms that have become very debilitating, and I am trying to understand if anyone has experienced something similar or has any insight.
The main issue is not classic pain, but a constant, hard-to-describe discomfort that shifts between my feet, inner thighs, back thighs, and pelvic area. It alternates in location and intensity, which makes it very hard to sit, stand still, or lie down comfortably.
At times, my left foot in particular feels “weak” or off, and when that happens I struggle significantly with basic movements like sitting or getting into bed. Because of this, I have developed very specific routines to manage it. For example, I sometimes have to pace for extended periods (up to an hour) trying to find a “sweet spot” where the discomfort briefly settles. From that position, I will quickly move into bed in a very specific way (sometimes almost like a jump or flip) because even small changes in movement can determine whether the discomfort flares or calms.
I also have significant difficulty with basic clothing tasks such as putting on socks, shoes, and boxers. It is not sharp pain, but a strange hypersensitivity or discomfort that makes these sensations very difficult to tolerate. I believe this may be consistent with allodynia, although I am not certain.
I also have a history of a varicocele, and my symptoms seemed to begin around that time. I did undergo surgery and no longer have a varicocele, but the symptoms have persisted.
Another pattern I have noticed: I receive medical prostate massages, and the first time I had one, I experienced significant relief in my legs and feet afterward. However, I no longer seem to get the same level of relief from it, even though the procedure itself has not changed.
I have also noticed a possible pattern where when my bloating is worse, the discomfort in my legs and feet also seems to worsen. In addition, I sometimes get a pulling or tight sensation in my inner and back thighs that makes sitting nearly impossible.
What I have tried / seen so far:
Seen 3 gastroenterologists for persistent bloating (no clear resolution)
Seen a neurologist; had a nerve block that did not help
MRI showed a minor herniated disc, but neurologist did not think it explained my symptoms
Currently taking 225 mg Lyrica twice daily, with minimal effect
Tried a 30 mg Vyvanse dose once, which temporarily reduced symptoms significantly (about 70%), but only lasted that day
History of varicocele (surgically corrected, but symptoms began around that period)
This has been extremely debilitating physically and mentally. I am struggling with sitting, walking, and standing comfortably on a daily basis. The symptoms feel very real but difficult to describe or categorize, and I have not found anyone describing something quite like this

reddit.com
u/Better_Pineapple_235 — 2 months ago

Weird Neurological Symptoms - please help

I am a 33-year-old male dealing with a combination of unusual and inconsistent symptoms that have become very debilitating, and I am trying to understand if anyone has experienced something similar or has any insight.
The main issue is not classic pain, but a constant, hard-to-describe discomfort that shifts between my feet, inner thighs, back thighs, and pelvic area. It alternates in location and intensity, which makes it very hard to sit, stand still, or lie down comfortably.
At times, my left foot in particular feels “weak” or off, and when that happens I struggle significantly with basic movements like sitting or getting into bed. Because of this, I have developed very specific routines to manage it. For example, I sometimes have to pace for extended periods (up to an hour) trying to find a “sweet spot” where the discomfort briefly settles. From that position, I will quickly move into bed in a very specific way (sometimes almost like a jump or flip) because even small changes in movement can determine whether the discomfort flares or calms.
I also have significant difficulty with basic clothing tasks such as putting on socks, shoes, and boxers. It is not sharp pain, but a strange hypersensitivity or discomfort that makes these sensations very difficult to tolerate. I believe this may be consistent with allodynia, although I am not certain.
I also have a history of a varicocele, and my symptoms seemed to begin around that time. I did undergo surgery and no longer have a varicocele, but the symptoms have persisted.
Another pattern I have noticed: I receive medical prostate massages, and the first time I had one, I experienced significant relief in my legs and feet afterward. However, I no longer seem to get the same level of relief from it, even though the procedure itself has not changed.
I have also noticed a possible pattern where when my bloating is worse, the discomfort in my legs and feet also seems to worsen. In addition, I sometimes get a pulling or tight sensation in my inner and back thighs that makes sitting nearly impossible.
What I have tried / seen so far:
Seen 3 gastroenterologists for persistent bloating (no clear resolution)
Seen a neurologist; had a nerve block that did not help
MRI showed a minor herniated disc, but neurologist did not think it explained my symptoms
Currently taking 225 mg Lyrica twice daily, with minimal effect
Tried a 30 mg Vyvanse dose once, which temporarily reduced symptoms significantly (about 70%), but only lasted that day
History of varicocele (surgically corrected, but symptoms began around that period)
This has been extremely debilitating physically and mentally. I am struggling with sitting, walking, and standing comfortably on a daily basis. The symptoms feel very real but difficult to describe or categorize, and I have not found anyone describing something quite like this

reddit.com
u/Better_Pineapple_235 — 2 months ago
▲ 1 r/ibs

I (33M) genuinely feel like a medical anomaly at this point, so any information, similar experiences, or guidance would really mean a lot.

I have a history of varicocele, but for a long time now I have also been dealing with trapped gas/pressure along with this very uncomfortable pulling sensation on the left side that travels from the groin/inner thigh area all the way down into the foot sometimes. It is not necessarily sharp pain, more of a pulling/tight/heavy sensation that can become extremely uncomfortable.

At this point I cannot comfortably stand, sit, or lay down for long without noticing the pulling sensation. Sometimes it gets so bad that even trying to sit down in a car can take multiple attempts because certain positions seem to trigger or worsen the feeling.

The hardest part has honestly been the uncertainty. I have never struggled with my mental health like this before, but dealing with ongoing symptoms while feeling unable to get clear answers or a diagnosis has started taking a real toll on me mentally and emotionally.

I know nobody online can diagnose me, but I am wondering if anyone has experienced anything remotely similar, whether it ended up being related to varicocele, pelvic floor issues, nerves, circulation, GI problems, or something else. Even hearing how people navigated getting answers would really help

reddit.com
u/Better_Pineapple_235 — 3 months ago

Trapped Gas and Varicocele?

I (33M) genuinely feel like a medical anomaly at this point, so any information, similar experiences, or guidance would really mean a lot.

I have a history of varicocele, but for a long time now I have also been dealing with trapped gas/pressure along with this very uncomfortable pulling sensation on the left side that travels from the groin/inner thigh area all the way down into the foot sometimes. It is not necessarily sharp pain, more of a pulling/tight/heavy sensation that can become extremely uncomfortable.

At this point I cannot comfortably stand, sit, or lay down for long without noticing the pulling sensation. Sometimes it gets so bad that even trying to sit down in a car can take multiple attempts because certain positions seem to trigger or worsen the feeling.

The hardest part has honestly been the uncertainty. I have never struggled with my mental health like this before, but dealing with ongoing symptoms while feeling unable to get clear answers or a diagnosis has started taking a real toll on me mentally and emotionally.

I know nobody online can diagnose me, but I am wondering if anyone has experienced anything remotely similar, whether it ended up being related to varicocele, pelvic floor issues, nerves, circulation, GI problems, or something else. Even hearing how people navigated getting answers would really help.

reddit.com
u/Better_Pineapple_235 — 3 months ago

I (33M) genuinely feel like a medical anomaly at this point, so any information, similar experiences, or guidance would really mean a lot.

I have a history of varicocele, but for a long time now I have also been dealing with trapped gas/pressure along with this very uncomfortable pulling sensation on the left side that travels from the groin/inner thigh area all the way down into the foot sometimes. It is not necessarily sharp pain, more of a pulling/tight/heavy sensation that can become extremely uncomfortable. I also have gallstones and sludge.

At this point I cannot comfortably stand, sit, or lay down for long without noticing the pulling sensation. Sometimes it gets so bad that even trying to sit down in a car can take multiple attempts because certain positions seem to trigger or worsen the feeling.

The hardest part has honestly been the uncertainty. I have never struggled with my mental health like this before, but dealing with ongoing symptoms while feeling unable to get clear answers or a diagnosis has started taking a real toll on me mentally and emotionally.

I know nobody online can diagnose me, but I am wondering if anyone has experienced anything remotely similar, whether it ended up being related to varicocele, pelvic floor issues, nerves, circulation, GI problems, or something else. Even hearing how people navigated getting answers would really help.

reddit.com
u/Better_Pineapple_235 — 3 months ago

Trapped Gas and Varicocele?

I (33M) genuinely feel like a medical anomaly at this point, so any information, similar experiences, or guidance would really mean a lot.

I have a history of varicocele, but for a long time now I have also been dealing with trapped gas/pressure along with this very uncomfortable pulling sensation on the left side that travels from the groin/inner thigh area all the way down into the foot sometimes. It is not necessarily sharp pain, more of a pulling/tight/heavy sensation that can become extremely uncomfortable.

At this point I cannot comfortably stand, sit, or lay down for long without noticing the pulling sensation. Sometimes it gets so bad that even trying to sit down in a car can take multiple attempts because certain positions seem to trigger or worsen the feeling.

The hardest part has honestly been the uncertainty. I have never struggled with my mental health like this before, but dealing with ongoing symptoms while feeling unable to get clear answers or a diagnosis has started taking a real toll on me mentally and emotionally.

I know nobody online can diagnose me, but I am wondering if anyone has experienced anything remotely similar, whether it ended up being related to varicocele, pelvic floor issues, nerves, circulation, GI problems, or something else. Even hearing how people navigated getting answers would really help.

reddit.com
u/Better_Pineapple_235 — 3 months ago