I officially got my answers and I am done allowing HA control me. My brain and body is convinced something is wrong because I ALLOW my body and brain to be loud.
I am deleting reddit, focusing on therapy, and I will work on recovering from this beast. Life is too short to worry.
I hope everyone here finds answers, treatment, peace, and happiness.
EMG is clean. All my bloodwork is fine. I have MS and that’s it.
I’m done letting my brain convince me that something is wrong. So… Goodbye, farewell, I am deleting Reddit.
I hope everyone here finds answers, treatment, peace and happiness. Anxiety is a bitch
I’ve been dealing with HORRIBLE health anxiety for months now.
I finally got the order for an EMG coming up this Thursday. If it comes back clean, I promised myself i’m deleting Reddit and shifting my focus with my therapist to work on over coming this beast.
I already started writing down some things i’m determined to work on if all comes back clean and well. I’m done letting anxiety control my life and making my body and brain feel loud. I hope to update everyone then.
Context, I was diagnosed with MS last year that itself was a bomb dropped on my head, and before you comment the astronomical rarity of having both diseases at the same time. I know. But we well all know here, a lot of us are dealing with a form of anxiety and come here for comfort and advice. I hope I can be one to break the chain and finally heal from it. I constantly fuel my brain with temporary reassurance and I’m taking this upcoming EMG as my finish line to either accept whatever is to come, or overcome what has been haunting me for months.
A little background, I got diagnosed with MS last year but 3 months ago I developed fasciculations in my left calf constantly which at first were just painless pokes and pops. As that went on it was accompanied by a strained, sore, painful feeling in my calf as if it ran a marathon.
I 100% know I have anxiety and I work with a therapist which initially to find acceptance in my MS diagnosis.
I’ve had countless MRI’s done, nfl test, CK test, other blood work, etc. I’m a 25 year old female.
I am in shambles thinking I am going to get the news that I have MS + ALS.
The only test they never done that I actually just got an order for yesterday was an EMG. I am terrified to go in for this EMG next week and they tell me it’s consistent with denervation.
I’m just looking to vent, maybe get some advice. I know i’m anxious, you don’t have to tell me that again. I know it’s probably not helping my case but I feel incredibly alone with these symptoms and fearing the future.
For the past 10 1/2 weeks and funny enough this started the day after my annual MRI i developed one sided left calf fasciculations and some weird strained feeling in my leg. As weeks went by, the fasciculations have gradually became less intense and shortened in duration. They were pops and pokes all over my calf sometimes the belly, ankle, foot, knee, thigh. Painless but annoying. The pain, soreness, strained feeling has gotten worse i’ve noticed. Sometimes feels like my thigh and calf is strained when I walk or even when resting. I had already met with my neurologist who deemed this „benign”.
I take baclofen, been taking magnesium glycinate as of 3 weeks ago, try magnesium lotion, stretching, salt baths. It waxes and wanes. Additionally, my foot and toes get this weird mild spasm that feels like a squeaky rusty door hinge which makes my toes slightly spasm /: and I have restless legs.
No weakness or numbness. But has anyone else dealt with this and how have you managed it? I’m seeing my neuro again on the 19th for some better answers and direction going forward but in the meantime it’s annoying.
It’s a tie between Mexican and Italian for me.
Diagnosed a year ago but figured I ask because It’s only comical that my c3 and c4 lesions are left lateral so my left side is deemed my bad side and all my symptoms only hit there (luckily i’m right hand/foot dominant! lol) I also have brain and a T1 lesion.
Anyone else have this lesion mapping or „one sided symptoms” ? or if you have those lesion locations in general what symptoms do you experience?
LOVE : Smoked shotgun shells, lumpia, italian pasta salad, taco dip
HATE: Store bought mayo heavy salads, ramen noodle salad, anything savory combined with jello
Unpopular opinion: I love some Watergate Salad 🫶🏼🫣
For the past 10 weeks my left calf has been constantly twitching just pops and pokes all day.
It has no been accompanied by a strained sore feeling almost tightness? it’s hard to explain. The twitching had gone down in intensity the last 2 weeks but the soreness has not.
Has anyone else experienced this? Just a bit worried
What’s the best sauce, seasoning, or side do you eat with your pizza?
Does anyone else deal with fasciculations or twitches?
I’ve been having constant left calf fasciculations all day and they go away randomly and just come right back. Like popcorn or pokes. it’s been going on for 8 weeks now
Neuro said they were benign and marked it under the MS header in her clinical notes as a symptom but it’s annoying and quite frankly freaking me out
Happy Anniversary you dumb big back ugly smelly two timing hoe !
But seriously, It’s also cake day and I created my reddit when I got diagnosed. I appreciate every single person here who had reached out during my diagnostic period and helping me through this difficult time. Answering my questions, helping me fight through cursed steroid treatments, etc.
Now that’s it’s been a year, I will say, somethings got better and some things have fluctuated. Thanking MS for letting me adopt bitch ass health OCD and anxiety as well as a tingly twitchy leg, lhermitte’s sign, and MS hug.
But you know what? I think I came out stronger because of this diagnosis. I’m still grieving and healing but it did take this diagnosis to have me take my health more seriously. Work out, manage stress, meditate, eat better, and create boundaries. I might be healthier than “normal” people now.
To everyone who is newly diagnosed… It does get better. Give yourself some grace. Be patient. Work with your doctors. Keep family and friends around and take it one day at a time. It’s a marathon not a sprint
Diagnosed last year. Started have some weird symptoms about ~8 weeks ago. Funny enough, right after my first MRI since being on Kesimpta and it was stable.
For reference I have a T1 and left lateral c3-c4 lesions so my left side became my bad side. The hug only hits me there, the lhermitte’s signs only runs down my left side out my foot, my tingles in my fingers. You get it
SO for the past 8 weeks I developed painless left calf fasciculations. After having major anxiety about other sinister things I met with my neuro and PCP who said they’re benign. The fasciculations have gone down in intensity and duration but now my leg is so achy, tight, painful, kind of buzzing/tingling? It’s honestly so hard to explain. My neuro said she is not considering this a relapse or flare up. I’m so confused?? i thought new symptoms lasting longer than 48 hours warrant evaluation. Can someone tell me why they deemed this benign and maybe just a pseudo flare? Does she think this is just an expected symptoms based on the mapping of my lesions? I take baclofen 25mg a day which I know is a low-moderate dose and then started magnesium glycinate. The symptoms aren’t necessarily getting worse but change. Anyone experiencing this?
Does anyone know how long nfl results are good for ?
These are mine from this time around last year;
NEUROFILAMENT LIGHT CHAIN, SERUM (LABCORP)
NEUROFILAMENT LIGHT CHAIN
Normal value: 0.00 - 1.30 pg/mL
Value
0.77
Test performed by Roche Diagnostics Electrochemiluminescence Immunoassay (ECLIA). Values obtained with different assay methods or kits cannot be used interchangeably.
NFL, SERUM Z SCORE
Normal value: <2.00 S.D.
Value
<0.00
For the last 8 weeks i’ve had one sided left calf fasciculations otherwise painless but I can see and feel them like someone poking me from the inside out and my calf just feels strained, achy, painful. I’m worried /:
Ive been posting lately about my left leg experiencing fasciculations like popcorn or someone poking me constantly throughout the day for the past 8 weeks. My leg is also sore like strained? But now i’m noticing a slight change when I walk. I don’t have foot drop but I feel my toes are catching the floor or grip the floor more when I push off? Like a slight curl? I don’t know what to make of this 😵💫
Well I made a post a post about starting Magnesium Glycinate 250MG for my on going one sided calf fasciculations and… they haven’t helped ;(
It’s quite discouraging because for 8 weeks my leg has been twitching. like pop corn or someone poking me from the inside out constantly. Sometimes it goes away. Then the calf feels achy and strained when i’m walking like a pulled muscle.
Went to my neuro and PCP and neither of them want to order an EMG for me which I should take as a good sign but they also never pointed it directly to my MS either. Which in mind it sort of makes sense? All my lesions are left lateral in my cervical but I just wish a doctor could have concluded that but instead I still feel lost and sort of worried of what it could be.
Google takes me down the rabbit hole of ALS, BFS, NMD, Anxiety, etc.
Has anyone else experienced something similar or the same?
I am diagnosed with MS but this symptom never happened and neither my neurologist or PCP has pointed it to anything nor will they order me an EMG
For the past 8 weeks my left calf has developed fasciculations all day. Sometimes it’ll go away and I’ll scramble to wonder what I did to make it stop. I don’t feel them while standing or walking nor are they they there as soon as I wake up
Walking hurts feels like my calf is strained. Achy. Not necessarily cramps? no charlie horses but just achy.
No weakness or atrophy. Both doctors noted no babiński, clonus, 5/5 on strength and normal reflexes.
I also had my nFl taken last year during my MS diagnosis period and that’s was 0.77 with a z score of below 0.00.
I take b13, d3+k2, and magnesium glycinate to no avail.
I’m terrified I have both MS and ALS.
My MRI’s showed no spinal cord atrophy, I can no physical leg atrophy either.
I really don’t know what to make of us. I know I have anxiety but wtf this has been going on for 8 weeks now.
Do any of you just have overly emotional parents?
It’s been officially a year since my diagnosis. I obviously didn’t take it well, still dealing with it mentally just trying to accept and cope.
My husband, God bless him. Is my saving grace and has been so strong and supportive for me. Honestly my biggest helper.
My parents on the other hand, as much as they want to help, give advice, support me when I need it.. They are so emotional. I don’t need someone else crying over it. I don’t need someone else worrying about it. I don’t want them thinking then worst when I have already done all of the above a million times! It just stresses me out more and doesn’t make me want to talk about it.
I’m able bodied, medicated, for the most part I am physically just fine. Mentally I need some work because uhm thanks MS wtf.
It suck’s because sometimes I DO want to talk about how i’m feeling, what im going through, just rant about it but my parents always end up teary eyed and upset. I understand their love for me and how much they care. I’m their child. But I would have hoped they could have stayed a bit stronger especially how vulnerable it has been for me.
Anyone else only get it in one calf?
Doesn’t hurt. Sort of makes my leg feel tight and stiff. Looks like someone is poking me from the inside out sometimes in the ankle, sometimes calf belly, sometimes knee, sometimes my foot. It’s constant all day. Just jumps all throughout.
It’s annoying :(
Anyone else only get it in one calf?
Doesn’t hurt. Sort of makes my leg feel tight and stiff. Looks like someone is poking me from the inside out sometimes in the ankle, sometimes calf belly, sometimes knee, sometimes my foot. It’s constant all day. Just jumps all throughout.
It’s annoying :(