Not knowing anyone who can walk away from their life for a month may be preventing me from placement on transplant list.
I have PKD. been doing dialysis since the end of 2022. Earlier this year I went through the testing phase at Mayo Clinic in Florida, my application has been placed on hold because the person who had volunteered to be my caretaker had to back out because of some family issues.
Going for an initial visit at UAB tomorrow. I was going over the paperwork they sent me and noticed they also require someone to be with me post-transplant for 4-6 weeks. I don't know a single person who has the ability to just walk away from their life and responsibilities for an entire month.
feeling really frustrated at the moment that something beyond my control is potentially going to prevent me from getting put on a transplant list.