▲ 0 r/ADHDUK

Am I missing something about CareADHD?

I'm using RTC for CareADHD, and I got diagnosed pretty quickly after the referral (under 3 months) in November.

Ive been waiting since Ive handed in all my forms shortly after, and it's been complete radio silence. The wait times that keep updating on the website suggested I would’ve got it at least a few months ago.

I was getting these health forms every 2 months which stopped. Its like I've been completely forgotten.

I understand wait times can vary because of the amount of patients but why am I seeing newer patients getting titration appointments before me????? I have SEVERE ADHD symptoms, Ive told them this a few times, my life is essentially on pause until I have this medication. I literally have no life because of this vicious disease and there's people who are getting meds before me?

I dont know what to do. Ive contacted them about an update but its going to be the same stupid automated email again.

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u/Dragonvarine — 1 day ago
▲ 6 r/MTHFR

What is this?? Weird phenomenon taking Methylfolate

I dont know if I have MTHFR, but my blood test said 2 ug/l folate so I took 5mg of folic acid for 4 months and felt zero difference (no bloods to confirm till next week).

So I assumed maybe I do. So I bought 1mg Methylfolate.

First few days I felt incredible?? My fatigue was better, I was able to sleep 6 hours and function fine. Usually I sleep 10 hours and im still tired.

I cant tell what it is, its so quick it surely cant be the folate deficiency getting corrected? And if its the methyl part, then that also means I have a methyl group problem?

Problem is, its also giving me a LOT of anxiety.

It feels like ive taken an ADHD med.

What is going on??

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u/Dragonvarine — 6 days ago
▲ 28 r/Anxiety

Straight up living hell

Quit antidepressants in September cold turkey after 8 years on them. I was trying different antidepressants because I felt like absolute garbage and couldnt figure out why. I was anhedonic, tired, fatigued.

I was put on mirtazapine finally and the doctor even said I could just go cold turkey. I thought strange but that must be because my dosages were never insane (20mg prozac mostly). How very very very very wrong that was.

For most of my week I have this constant background anxiety that sometimes blows into panic that feels like im literally dying. I constantly believe I have something wrong with my heart.

Im on propranolol which does help but it never eliminates the anxiety completely. All the options for anxiety SUCK. Its either more SSRIs, benzos (bad for brain), Hydroxyzine (bad for brain), beta blockers (doesnt help brain anxiety), buspar (only considerable one).

And with buspar theres potential it can screw me up because my nervous system is already dysregulated after SSRI withdrawal.

Benzos also gives me this weird half-way anxiety and my nervous system feels like its pulling outwards. Hydroxyzine is the only one that works great but it cannot be used long term due to dementia risk and dopamine upregulation.

I cant even reinstate. Im stuck living this hell for 9 months now, when will this damn anxiety go away, the anxiety doesnt even make sense and yet my body WONT STOP.

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u/Dragonvarine — 7 days ago

[Facebook][2012] Hong Kong Turn-based dinosaur game that had a lot of cards during combat

Cant find a trace of it anywhere from its description but i'm hoping anyone from China or Hong Kong can remember this game.

The game that looks the most similar is DinoBash. Chibi-ish cute dinosaurs, and you had a bunch of cards to use in combat, it mightve summoned dinosaurs or had abilities.

You can level them up, egg mechanic possibly? Cant remember how they were collected.

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u/Dragonvarine — 1 month ago

Im talking protracted withdrawal. Im 7 months deep. Armodafinil caused anxiety so bad it brought me to ER, as in my blood pressure and heart rate was beyond extremely high.

This is absolutely brand new, I never had anxiety like this even with panic disorder pre-SSRI. This is most likely withdrawal.

Obviously since ADHD meds are stimulants and so is Armodafinil, Im wondering if it'd be too dangerous? I might be starting them within a month or so.

And you may ask "why dont you ask a doctor" because they barely believe in protracted withdrawal and think the only withdrawal is acute. I rather speak to people who actually take these things.

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u/Dragonvarine — 2 months ago

Im 7 months into quitting SSRIs, prozac for 7 years-ish, venlafaxine for 6 months, cross tapered with mirtazapine which was two months; finally cold turkey.

For the past 7 months I had pretty mild symptoms, loads of twitching, eye floaters visible, anxiety was bad though.

Now im getting less libido, im dizzy as hell right now, and a bit nauseous. I never had any sexual dysfunction while on the pills at all. Im a bit terrified so im wondering if I should just reinstate? Im more terrified of PSSD than anything. Obviously i will be talking to a doctor but i want to know from your guys experience who have actually taken ADs.

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u/Dragonvarine — 2 months ago

Its been about 7 months, tapered off venlafaxine 75mg in about 2 months, but was on prozac for like 6-7 years 20mg.

My biggest symptoms are mostly eye visual such as floaters, light imprinting in retina much easier, a lot more anxiety, and a weird head feeling on the right side of my head, eyes twitch, hands maybe a little.

Went to ER twice for taking armodafinil; nervous system absolutely cannot handle it at all. But ive recovered each time in a few weeks. So to me thats a good sign.

Just wondering if you guys think my case doesnt seem to crazy and Im likely to heal? The biggest thing I want back is my emotional depth and creativity.

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u/Dragonvarine — 2 months ago

Been on AD for 8 years, quit in september, was on all kinds, but always on a low-moderate dosage so my withdrawal isnt as brutal as you guys have it.

However, 6 months in, Im getting a massive influx of floaters (eye doctors say eye is perfectly fine), and lights seem to implant into my vision more? If I look at anything with some light it sticks to my vision, its like my eyes are a bad monitor.

Also Im seeing a lot more blue field entropic phenomena.

I dont know if its because I started eye contacts in the same month or something..

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u/Dragonvarine — 2 months ago