TBIs as early as 2yo, about a dozen over my lifetime. Looking for DIY therapies as I wait for the next neurologist appointment
Hey friends, I am having a really tough time in life.
I have overlapping diagnoses of TBI and CPTSD. As I get healthier and do more work, I am starting to realize that there is no "normal" to return to for me.
I fractured my face as a baby and was not taken to the hospital (learned recently during my last convo with my mother). I had a learning disability / speech problems for several years after a really bad one at 4yo when an adult fell ontop of me on tile floor.
Most of my other injuries have been back of the head and side. I struggle with cervicognic migraines and insomnia, light and smell sensitivity, memory lapses, ringing in the ears, my hearing and audio processing seems to only work right when I am in a fight-or-flight state. have tried really hard over the years to fix my speech and balance. I have been diagnosed with sleep apnea, both non-obstructive and obstructive, but mostly the former (around 8x / hr). Additionally, I cant recognize faces much, i struggle to track with my eyes, I get sporadic lazy eye and unilateral swelling of one eye, and I am still developing enough self awareness to learn about the other symptoms that I was taught to ignore / downplay. Video games and excessive screen use makes me motion sick, gives me a headache, and is no longer fun for me due to so many negative side effects.
My last head injury with extreme symptoms was spring 2025.
I am learning more about the regions of the brain and the effects of hyper/hypo activity. I am also in a brain injury support group.
I was wondering what experiences and treatments have worked and not worked for other TBI survivors.
I recently learned about Biofeedback, light tracking therapy, and EEG imaging. I plan to talk to the neurologist about them but the soonest they can see me is in November.
I would really like to learn more and try to find some things to try and do at home while I wait.
I look forward to learning more from the community.