Medication and stable life make my disorder worse, are there any others like me?
I (23F) was diagnosed with severe Bipolar 1 at 18yo. I also have a plethora of other diagnosed disorders since mental illness has always run in the family.
I was put on medication right away, it didn’t help. I crashed hard afterwards. Spent 5 years in and out of hospitals, trying, with so much hope and trust in the doctors, dozens of medications, hundreds of different combos and doses but nothing ever worked. I kept getting worse. I can’t even count the attempts, the crisis, the blackouts… During those 5 years, I was technically stable as I was maintained in a state of severe depression, hypersomnia and sometimes psychosis. 5 doctors, all told me they were at a loss and dropped me since they didn’t even know what to do anymore. Some even told me to give up hope and recommended euthanasia. The medication had turned me into a bitter hopeless out-of-her-mind monster by the end.
Until I just said fuck it and stopped seeing doctors, stopped taking medication (kept in touch weekly with my therapist though, I’m not stupid, I know I need supervision). I felt better right away. Still depressed, but at least I had enough energy to get a part time job. Slowly, I was feeling a bit better but still so bad, until my mom convinced me to give one last chance to doctors.
The one she took me to stunned me. After reviewing my file and examining me for a while, she said that medication is just ineffective on me. It doesn’t work, in fact, it makes it worse. It’s a rare thing, as a bipolar 1 is supposed to be on meds but possible. Routines and stable life also doesn’t work on me, it makes it all worse, again, very rare in a bipolar patient to need chaos and a messy life to stay stable. She offered another path. Studying the illness so that I can identify how to make it powerless. What makes it tick, what calms it and to change my whole world so that it gives me the best chances to stay stable and identify an episode at the beginning. Develop protocols to contain the episodes, to wait them out without mortifying consequences on my life. She gave me back hope.
I’m currently 10 months off my meds, I’ve never been more stable, happier, safer. I have a full time job that requires lots of traveling. I love my job and it’s such a mess, it helps me to keep cool. I manage episodes better and better with time, writing down everything I should do differently next time to be even safer. I still have a lot of work to do, but it feels incredible knowing that there is a path for me. I was just wondering if there were other people like me? People who don’t “fit” in the usual recovery system? Even through my many trips to the clinic and to charities and clubs, I’ve never met anyone like that, most people just look at me with annoyance when I share my experience, which is too bad, because one of them might be like me without knowing it.