Uk pots advice
I have recently been diagnosed with pots and I had to google everything because my “specialist” didn’t even want to offer me the tilt table test but I pushed for it (even though I knew it would be hell) and she finally diagnosed me with pots and all she said was “it’s probably most likely pots, use the POTS website for any help” and then basically shoved me out of the room. Obviously it’s a busy hospital but I’ve waited so long to figure out what’s wrong with me and then finally figured it out myself and then pushed for so many years for a diagnosis. Anyway.
I have finally got the diagnosis but what are some things that I can apply for or have as extra help?
I have briefly read about PIP but I am working full time (I had to google to see if you were allowed to claim pip if you worked and you can apparently) I know you can apply for an access card, I love music and concerts but sometimes have to pay for a standing ticket because I go alone and you can never get 1 singular ticket on its own. So having that would be good so I can buy a seated ticket. But what else is there that I’d be able to apply for? Can you guys let me know. And what are some reasonable accommodations I could ask for at work? I work in a supermarket and it’s pretty full on sometimes. Other days I’m sat on till for most of the shift. But other days I’m here there and everywhere.
And can you give me any other useful resources? I try to go on TikTok to see what people say about living with pots and some advice but for the most part I do all of it already: drink water, eat salt, go slow, pace yourself, plan your day, sleep early (I struggle so badly with sleep. It’s currently 4:20am writing this) compression (if anyone has any good middle compression, like stomach compression I’m all ears. I don’t know what would be best) electrolytes (so expensive 😭) salt tablets (still not sure what they are I, I need to do a dive into those. Because some say they’re chewy?idk 😂)
Any help, tips and tricks, advice would be awesome! Thank you!!